Edit - I realize that not everyone can participate in the following poll...many people have been organ donors for a while and many others are unable to be an organ donor for many reasons...this post is not meant to make anyone feel left out or guilty. The goal of this poll is simply to find out who may have been moved by Tricia's story to become an organ donor. I purposely didn't add other options, such as "I have always been an organ donor and have always known it's important", but please, feel free to leave a comment about yourself if you are unable to participate in the poll. Thanks!
During the 40 days that Tricia was on the transplant list (Feb. 22 - April 2), approximately 712 people (sons and daughters, parents, siblings, grandparents) died while awaiting an organ donation.
I have literally received thousands of comments and emails from people who have told me that they have become organ donors for the first time because of reading Tricia's story. I'm very curious to find out just how many people Tricia's story has effected in this way, because I think it is incredibly encouraging to know that we all have the ability to be used to change lives.
Please, take a few seconds to answer the following poll honestly. You can answer multiple times if more than one member of your family can participate. And, feel free to comment about your decision.
Thanks!
Nate
I'm D. An organ donor that has always been an organ donor but has encouraged those who aren't to become one, because of reading Tricia's story. I may have assisted in a few goals, let's say :)
ReplyDeleteHow about... I am an organ donor, have been one for a long time, and am because of my own experiences, although I appreciate your family's struggles.
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ReplyDeleteI have always been an organ donor, convinced my husband shortly after we were married to become an organ donor, When I was alot younger, my fathers friends life was saved by a heart transplant.. But watching your story unfold really has strengthen my conviction to be an organ donor!!
ReplyDeleteI always wanted to become an organ donor and told my husband/family about my wishes but made it official with the state because of the information I recieved on your blog! Thanks for the helpful information Nate!! Love to your family and precious girls!!! :)
ReplyDeleteDitto to Leonard's post at 3.08pm 18/4/08. Another option needed on the poll for me to be able to vote.
ReplyDeleteI just wanted to add that although I have been an organ donor for awhile but (I have two sons wcf) your story has really motivated me to really inform others about organ donation and really get the word out. My 17 year old niece and 16 year old nephew became organ donors after reading Tricia's story so I thought that was a huge impact!! Thanks again for all you have done with your blog and stories!!!
ReplyDeleteditto, too - I appreciate Tricia's story but I was an organ donor before it and my understanding of organ donation wasn't necessarily affected by Tricia's story (although I do appreciate everything that is happening in your family's life).
ReplyDeleteI think you might want to add some additional options for the poll to be accurate :) Just a friendly suggestion!
I have been an organ donor for a while. Your story has helped me know how it can truly impact a person/family.
ReplyDeleteDitto to what Leonard said too. I have CF and have been a donor ever since I knew it was possible with CF. A little over 1.5 years ago I had a double lungtx myself.
ReplyDeleteMarjolein
24 from the Netherlands
Hey Nate and family :) I became an organ donor almost two and a half years ago because of a friend of my sister's - a beautiful little baby girl called Poppy. She was born at term, but had a rare disease for an infant - pulmonary hypertension. We followed her story, much like hers and Tricia's through the short eight months of her life. Her parents were like you and Tricia - amazing people full of faith. Little Poppy did get her new lungs at about 7 months. It was a miracle. Unfortunately, she succumbed to a serious infection at eight and a half months> Like your story, many people learned about faith and God and hope from this story. Poppy certainly made her mark on this world. My husband has been a donor for much longer than me. I have already discussed organ donation with my children and let them know why I am doing it. I know that your story opened my eyes even wider than before and I thank God for these little reminders of how we can give back to others during our time and after our time on this earth. Thank you to you and Tricia and Gwyneth for sharing yours and educating us all in faith and miracles. I passed your website on to Poppy's Mom and Dad by the way - they live in Canada now. They are trying to adopt and are avid promoters of organ donation too. Thank you for your inspiration. Tricia (N. Virginia) :)
ReplyDeleteI voted the 2nd option, and I've learned a lot about organ donation through your story, and have been really touched by it, but I've been signed up as a donor since I got my driver's license at 16... Never knew why exactly, it was just the normal thing to do for me.
ReplyDeleteSo I guess for your poll to be acurate, you'd need another choice: "I have been organ donor for a really long time by my own choice. But your story is amazing and I hope it encourages others to do so!" ;)
I will go one better. I became an organ donor not in part, but BECAUSE of Tricia's story. My kids used to shame me all the time scolding me for not listing it on my license. Well, they all have a document now (because of your blog links) stating that organ donation is my wish.
ReplyDeleteThanks for sharing your family so openly and entertaining us all at the same time.
PS Still waiting on the next chapter of "The Story of US"
Love from WV,
Susan
Actually, I think you need a fourth option! I have been an organ donor since the very first day I got a Driver's License, and had told my parents many times before that, that I wanted
ReplyDeleteto donate my organs. Even so, it wasn't until about 6 years ago, when I "met" Aiden, that I really starting seeing how important organ donation is. He is my son's age, and as a baby, received a new liver. The address to his website is:
http://www.caringbridge.org/fl/aiden
I am also registered with the National Bone Marrow Reg. which is also another great way to make a difference.
God bless you and your family for spreadng teh word about how important Organ donation is.
I have always (well, at least since getting my first driver's license) been an organ donor. I would be posthumously horrified if my family ever went against my wishes so I've talked to *everyone* and let them know in no uncertain terms that I am to be recycled! My next step, from reading Tricia's story, is going to be sure other people at least seriously consider doing the same.
ReplyDeleteDoes anyone else think it's just a little strange (in a cool way) that Tricia was on the list for 40 days?
I have been an organ donor since I was 18 (34 Now). Since reading your story I made it a priority to find out what all the members of my family were so I knew their wishes if anything were to happen. Even convinced hubby to sign up. Still praying for you guys!
ReplyDeleteI've been an organ donor since I was 16 and checked the "yes" box on my driver license. Only after reading your story, however, have I made sure to express my wishes to my family and print out and sign a card for my wallet. When my husband and I have our wills drawn up later this year, the issue will be addressed in writing. Thank you for bringing awareness to this issue!
ReplyDeleteI voted and have always know the importance of being an organ donor, but Tricia's story has truly made it more meaningful and more convicting to me. Thanks for sharing your story with so many people!
ReplyDeleteMy option isn't listed. I'm an organ donor and have been since I was old enough to list it on my license :) I became one for a variety of reasons and can't pin point one specific reason that made me become one. I am because that is the type of person that I am :)
ReplyDeleteNathan, I'm so glad to see you back blogging after your much needed break! You guys are an inspiration to me and so many. I know what it is like being thrown into the public eye and I think you guys have done a magnficant job, even if only on the outside, in dealing with it! My oldest (age 11) reads every day. Tricia has touched him in so many ways and I am thankful for you opening up your lives to so many. Just the other day he pulled out his own preemie book to compare him and Gwenyth! So thank you!!!
I've been an organ donor since I turned 16 (I'm 23 now), just because I've always felt it was needed. Three years ago my cousin's life was saved because she received a heart transplant. That encouraged me to know I had made the right decision. Tricia's story has encouraged me even more and I am much more likely to ask people about it now than I have ever been.
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ReplyDeleteWe have so loved reading your story and praying with you.
ReplyDeleteMy hubby has always been an organ donor, and I became one after I met Jenny. She had CF and died waiting for a lung transplant. She was just out of college. So I did become a donor because of a bright, wonderful woman...just a different one.
elisa engesser
Another D here! Have been, always will be, and if I ever had to make that decision on behalf of my children, I'd do it in a heartbeat!
ReplyDeleteI'm also a regular blood donor and am on the National Blood Marrow Donor Registry.
The poll doesn't apply to me, but I think it's awesome that so many people have chosen to be because of hearing Tricia's story! I've been an organ donor since 1999 when one of my best friends died and donated his. :)
ReplyDeleteI'm a D too. An organ donor that has been an organ donor since she first got her license when she was sixteen (almost TWENTY years ago). I am nearly obnoxious as about every six months or so I remind everyone in my family to be sure the doctors and nurses know should it be necessary. I love to use Tricia's story as a case in point about the desperate need. You guys are awesome and are doing so much to raise awareness of this. Seems lots of people don't become one because they don't like to ponder their own mortality.
ReplyDeleteKeep up the amazing work!!!!
I am an organ donor and have been for quite a while. But I only did it because I thought that I'd feel guilty if I didn't. Silly reason, I know.
ReplyDeleteBut now, after following Tricia's journey I am so happy I am an organ donor and I have expressed my wishes to my family. I also encourage others to become organ donors.
Thanks for letting so many in on your journey. My thoughts and prayers are with you every day.
I have been an organ doner since I got my driver's license. I am also a doner on my Military I.D (An Army wife here) I also became a bone marrow doner last year. You story just show me that the decision I made was truely the right one.
ReplyDeleteI have always been an organ donor, but really never thought much of it. Until reading about Tricia's journey. Since then I have confirmed my organ donor status as well as encouraged other family and friends to seriously consider becoming a donor.
ReplyDeleteHeartbreaking to learn that over 700 people have died in the last 40 days awaiting a transplant.
Hi, I found your blog through a friend. I have been reading only since the end of March. I check back often, and think of you guys often. I am not an organ donor, and honestly have never put thought into it until now.
ReplyDeleteI absolutely want to be now, but am unsure how to go about the process as the links you have on this site are in the USA, and I am from Canada.
Tricia's story has definately changed how I think.
I am forever talking about your blog to my husband and one evening about 2 weeks ago, I said, "We should become organ donors". He said he didn't know if he is or not, so he pulled out his license and looked and he is! So i looked at my license too and i am and didn't even know it! I guess I just said, "Yeah, whatever" when they asked if I want to be and now I see how important it is from Tricia's story! Thanks for having this blog and broadening my horizons and building my faith in God!
ReplyDeleteI've been an organ donor for years, however, have been conflicted about it in the past. Reading Tricia's story make me feel more confident and comfortable with my decision.
ReplyDeleteYour story has caused me to want to have the conversation with my husband about our girls (3 and 10 mths) being organ donors. It was not something I had really thought about. But if through a loss of one of them (can't imagine that) we could give another child a chance at life, I would want to do that. I know that they will have perfect new bodies and will be sitting at the feet of Jesus!!
ReplyDeleteI realised that I could no longer read your blog if I didn't become an organ donor. It somehow didn't work. I couldn't pray for Tricia to get new lungs and not be willing to give her mine. (although they wouldn't be that great by the time they reached her from the uk!) My husband was always meaning to become one but hadn't got round to it. He made the step when I did.
ReplyDeleteFor info's sake the uk organ donor website is:
www.uktransplant.org.uk
It took me all of 2 mins to register.I am glad I did.
Still praying for you and your girls.
I think you need more options on your poll! I am an organ donor, and while Trica's story did not make me think more about my decion and how important organ donation is, another CF lung transplant story did.
ReplyDeleteI have always been an organ donor but... my son never wanted to be until he has read your story. He has now become an organ donor. Thanks you have helped end endless arguments over this issue.
ReplyDeleteI am an organ donor and have been since I got my driver's license (15 years ago). BUT, after reading Tricia's story I have filled out the online registry for my state (which I didn't know there was until reading this blog) and I made sure that my husband, parents and sister know that those are my wishes upon my death. I am pretty sure they knew but I opted to send them an email from the registry letting them know.
ReplyDeletedarcy
http://ittybittyblog.wordpress.com
Always been an organ donor as listed on my license. I didn't realize until yesterday (had to have my ID renewed) that my military (dependent) ID also allows for identification as an organ donor. I have had an ID for ten years and never knew that - go figure! Now it's on both:)
ReplyDeleteI was an organ donor before I received a double lung transplant in 2005. I don't think I can be an organ donor but do encourage people to become donors.
ReplyDeleteI have loved following your story
I became an organ donor after reading Tricia's story. :)
ReplyDeleteWith my health being what it is, I pretty much doubt they'd be able to use my organs, but I am a donor anyway; I figure UNOS can make the final call and who knows, maybe someone with worse health than mine will still be able to benefit from my organs after I'm done with them. In the event that none of my organs are suitable, I have elected to donate my body for study, since I have a rare genetic syndrome and would at the very least like to help future doctors learn how to better treat my kids (who were born before I knew I carried an autosomal-dominant genetic syndrome) and anyone else with this disease. I've been referring everyone to your blog, though, and even did a post about your family urging my (tiny) readership to become donors. So I guess I'm a D too?
ReplyDeleteI am an organ recipient, so I don't know if I can be an organ donor (because of blood transfusions) but I still mark the "yes" box when I go for my drivers license. I am very intimately aware of the importance of organ donation - although I haven't done nearly enough to further the cause.
ReplyDeleteI never thought much about being an organ donor until I found out my husband needed a transplant. Now, I am a donor and I always encourage others to register.
ReplyDeleteThanks, Nate, for helping spread the word about organ donation.
I've always been an organ donor, but the post about the little boy from Raleigh who was able to save another little boy got me thinking about my own children. My daughter suffered a stroke about 6 months ago, and may have to undergo brain surgery. If anything should happen to her, I would want her to "live on" in that way, and have indicated as such in her hospital paperwork.
ReplyDeleteI really don't know why I've always known that's it's the right thing to be an organ donor, but from the moment I had the right to choose for myself I've been one. I even "forced" my husband to be one! (I use the term very loosely, lol! He was kinda like "I dunno..." and I said "You die, I'm donating your organs, so you might as well just sign the paper!" He laughed and did ;D He'd just never thought about it.)
ReplyDeleteTo be honest I have been scared to become an organ donor. My family has always told me that they harvest people for their organs and that if you are sick they will let you die to have your organs because they make money on them. I never really thought about it until this story and then I realized how stupid that sounded and that it really is quite an ignorant way to look at things. So, I have signed up to be an organ donor because of Tricia. I figure that God knows what he is doing and you have to have a little faith. I am also on the bone marrow transplant list which also needs donors. So please consider that also if anybody wants to do it.
ReplyDeleteI have been an organ donor since I was 16. As a young teen, a friend in my church youth group took his own life, and his parents donated his organs to help others, which really touched me.
ReplyDeleteI also am friends with a family whose little boy has CF and had a double lung transplant 2 years ago. Unfortunately, he is suffering chronic rejection. Back in October, he was given 3 weeks to live... and this week, celebrated his 10th birthday. His family is savoring every minute with him.
Tricia's story just furthers my resolve to make sure that my wishes get carried out!
I have been an organ donor for a while. As a cancer survivor, I know the chances of them using my organs is small, and that saddens me.
ReplyDeleteI've always been a donor. Tricia's story is a great reminder of why this decision is such an important one.
ReplyDeleteI have always been, but last weekend had the chance to encourge my in-laws family to give also. We had an unexpected death and he wasn't a donor, but I was able to talk my in-laws into seeing if he could be a donor, which he was able to, but has a very rare blood type, and was only able to help with a kidney and liver. It made me sad to know that someone is waiting for lungs and a heart, and they went to waste, but something is better than nothing. After their decision, I showed them this blog, and they were very emotional, but grateful that he was helping someone, someone else like Tricia, and we are all at peace with that. God Bless you, and I pray for all three of you everyday, and keep smiling, you guys are amazing!!!!
ReplyDeleteI have been an organ donor for awhile now. My dad had a kidney transplant when I was 15 so I firsthand saw the impact it had on our family! So, while it was my dad who inspired me to become an organ donor, Trisha's story has been very encouraging also!!
ReplyDeleteI am in the group that can't donate. I was on the National Bone Marrow Registry and had my license signed to donate my organs. Unfortunately life happened and most of my organs and tissues will be rejected. I tried though.
ReplyDeleteMy dad passed away 3 yrs ago. He could not donate his organs but was a tissue donor. There was some comfort in knowing he helped others as his final act. A family friend had a pancreas/kidney transplant and is doing well. She is now working for the Organ/Tissue procurement organization in our state. Amazing woman!
Thank you for sharing your story.
My heartfelt prayers for your precious wife and daughter,
DR
I am an organ donor, my husband is an organ donor, and we donated our 14 month old daughter's organs (her kidneys and heart valves were matched) last October when she passed away suddenly. I am a firm believer in it, always have been, but donating has brought me so much joy. Your blog has let me see the side of the recipient so I can understand, not just from the donor side of things.
ReplyDeleteI have always been an organ donor, but my husband is not, or was he aware that I am. (I'm 40, he's 50, and we've been married 3 years) It's just always been on my ID and I never thought to tell him about it. So, because of Tricia's blog we have discussed some things that weren't previously discussed. My wishes, his wishes, etc. Thanks for the reminder to do so!
ReplyDeleteI have always been an organ donor - ever since I got a driver's license. But I never had a true sense of the magnitude of this choice until following your story. You and your family can rest (but I know you won't!) assured that you have brought organ donation to the forefront and illustrated the importance first hand. You guys have certainly made a difference and impacted so many! Keep it up!
ReplyDeleteMuch Love,
The Vande Castles.
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ReplyDeleteI'm sort of D, as I've been an organ donor since I was 20... but then, that's mostly because I needed a parental release if I was to agree to be one when I got my first license which was valid for four years (and didn't feel like paying $50 for a new card when I could just pay $70 in another two years to get the little heart added to the card when I was "old enough" to decide for myself). I believe my parents are both donors, unless medical complications now prevent them, and my sister is also one... so that makes my whole family! My husband and his whole family are also donors, and to my knowledge, always have been.
ReplyDeleteOrgan donor listed on my driver's license many years ago...lost the sticker...never really officially registered anywhere as an organ donor...was motivated to do all of the above again because of Tricia's story.
ReplyDeleteBy the way... I just signed the registry with my state... I didn't even see it on your blog until I saw someone reference it here in the comments. Pretty cool!
ReplyDeleteJenny
I just registered as a donor through the link on your site! I thought I was registered through my drivers license, but I wasn't.
ReplyDeleteBlessings to you and your ladies. I've been praying for you and will continue to do so. Thank you for sharing your powerful stories with us.
Angie
I was listed as an organ donor for years. I also donated blood on a regular basis to the local red cross. I have had blood cancer/lymphoma for over ten years and other genitic blood problems. I am not able to donate at this point.
ReplyDeleteHowever I sitting here typing this due to others who have been so giving to give blood to those of us in need.
I am also involve with the National Bone Marrow Registry as well do to bone marrow problems with my lymphoma. I didn't have a donor in the registry from 97 till 2001 when they finally typed my sisters one of which is a perfect match. So if I get in a transplant situation again. I have a donor. It was really hard to go through the process and coming up empty for so long.
So I am a D I think. I really encourage others to get out there and become a donor. Its a good feeling because its something only we can do for another person. Something money can't buy but giving never changes it changes us in so many ways.
Nath. Had I not had to deal with my health issues. I would for sure stay on the donor list. Your story just enforces the need for more of us out there that would do so. I am glad that you put your Families story out here. I didn't know much about CF and I do now. As well as organ transplants.
Your story also keeps me firmly planted in the Power of God and Prayer.
My prayers are still with you Nate ,Tricia and your baby Gwyneth.
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ReplyDeleteI've been a donor since I lost one of my best friends to CF while she was waiting for lungs. (I was in college - this was in 1992).
ReplyDeleteWhen our 13 month old daughter passed away last year we tried to donate her organs...but she was ineligable due to multiple infections. That made me very sad. I would have loved to think that her organs helped someone.
I consider myself an organ donor even though it may not be on my drivers license. My husband knows I want to be an organ donor though.
ReplyDeleteI always have been. When I was 16 and got my licence, I checked it off and have always been happy with the decision, especially reading this story.
ReplyDeleteI've known I'd be one and had signed the back of my dl, but laws do change so I went online and found out about the laws in my state because of Tricia's story. I now am a registered organ donor in the state of Illinois.
ReplyDeleteLike many, I'm one who has been an organ donor for many years because I understood the significance. Tricia's story is an example of the difference it can make.
ReplyDeleteI've been an organ donor for a long time, but have emphasized it on my blog and added links because of Tricia's story.
ReplyDeleteHey Nate & tricia,
ReplyDeleteMy husband (an RN) and I have always been Organ donors since the time we were 16. There's never been a question for us, and I'm always stunned when people arent willing to be. Each of my family members are as well, not sure about his.
Tricia's story did cause me to talk to my 9yr old son about it as he was reading over my shoulder one night. That was a good thing.
I'm also "D"...when my sister in law died, we were able to donate her eyes and other parts of her (her internal organs were not able to be transplanted though due to the mechanism of death)...and it made us all feel better about our loss. We found out later that she gave the gift of sight to people, aided burn victims, and other people through her donation. She had the little heart on her licence, and the rest of us do too!
ReplyDeleteNate, My name is Brenda. I saw a link for your blog on a friend's site and have been following your story as it progresses. I am a student at Valley Forge Christian College in Phoenixville, Pa. I just wanted to let you know that there are many students here who are now praying for you and praising God in the wonderful things He is doing for you and your family.
ReplyDeleteI wish I could be an organ donor. But because of my illness that is something I will never be able to achieve. Although, I am an organ donor at heart. It's something I have preached since I was about 9 or 10 (going on 14 years) now.
ReplyDeleteMy best friend is now on the transplant list for a heart and lung transplant. I'm praying for something soon and that in the meantime God will heal her body just enough for her to finish the current semester at the Univ. of Okla.
My uncle had diabetes and received 2 kidney transplants (from family) but also a donor pancreas that made him no longer have diabetes. It was a wonderful gift that the family of a teenage boy in an accident gave to our family. We have been donors due to my uncle...and others like you!
ReplyDeleteD. Have been an organ donor since I could drive as my mom has a severe liver disease and will eventually need a transplant --many of her friends with the same disease have had transplants in that time or died waiting.
ReplyDeleteHave been reading for a while and family is praying along with you all.
I like the option 'D'...or maybe 'E', once my daugther was DX with CF and we were looking at the possiblity of a liver tx in the first year of life, I really understand why organ donornation was important. Also when a very good friend of mine lost their child while waiting for a liver, I came to understand that children so be donors too. Not just adults.
ReplyDeleteYour story effects me by giving me hope that my child could have a family someday. Yeah I dont think I want hers to be um... quite as interesting and challenging but hey if you guys did it...she probably could to if thats her choice.
Thats why I look at older CF blogs...to give me hope that my child could lead a 'normal' life and to know about possible stuggles in the future...
I've always been an organ donor and have a greater understanding of the importance of this through what you've shared.
ReplyDeleteI just filled out the form last week to become an organ donor, 100% because of this blog. I am in Ontario, so all I had to do was fill out a little card and put it in my wallet, and let my family know- which I did.
ReplyDeleteI am not an organ donor, as I myself have Cystic Fibrosis, but if any part of me was usable I would gladly allow my organs to be donated for transplant.
ReplyDeleteI have been an organ donor now for sixteen years and since reading your life story I try and convince others close to me the importance of being an organ donor. My husband decided in Feburary to become a donor when he renewed his drivers liscense. When he told me, I was totally SHOCKED! So yes, your story has been a great influence to my family.
ReplyDeleteThank You :)
I guess I could say that I'm D also. I've always been an organ donor, and have really started encouraging people since reading about Tricia.
ReplyDeleteI have been an organ donor since I renewed my license under my married name (almost 18 years ago). This week it was brought home to me, beyond what I've experienced in your amazing stories, just how important organ donation is - from the other side of the story.
ReplyDeleteYou see, my cousin's only child was killed in a car accident last past week and the family donated her organs and her eyes to other hurting families and waiting patients. I never got to know my cousin's daughter as an adult, and only remember her as a gorgeous toddler with amazing blue eyes. Knowing that her organs are giving others a second chance has brought me tremendous comfort - especially in light of the fact that I'm fairly certain she did not know Jesus personally.
Thank you for all you are doing to spread the word about Organ Donations - I'm telling everyone I know about your story and about my cousin's daughter's gift.
I've been a donor since I got my first drivers liscense but never really thought about it. Your story has made this decision so much more personal to me. I feel like I can leave a legacy beyond my children's lives by donating my organs etc to whoever needs them.
ReplyDeleteYou did inspire me to register with (I think it's called) donate life to make SURE my wishes get carried out.
You guys have had a HUGE impact on so many people & it's a blessing to witness it.
God bless!
been an organ donor since I was legally allowed...about a year ago I found a little boy age 3 waiting a liver transplant, and have prayed for a couple others for transplants... but after reading your story unfold since the beginning of December, it has made me THAT MUCH more aware of the need.
ReplyDeleteThank you for educating us all...you guys rock!!!
None of the above.
ReplyDeleteI've been an organ donor for as long as I can remember.
As is my hubby.
My kids are too young to make this decision, but if something happened, we'd donate their organs. And we've talked about it with them, so I think when they are old enough, they will make the decision to be donors.
I was toatlly not interested in organ donation before reading your story. Iam not sure why, but I was, and last week during you break from blogging I decided to become a donor. Thanks for opening my eyes to organ donation,my husband also is an organ donor
ReplyDeleteI have been of thinking of becoming an organ donor for a long time, but I thought with Cerebral Palsy, I couldn't do. After Tricia got her lung, I felt happy and wanted to ask I could become a donor. So I asked a nurse, and she talked with her boss, and her boss didn't see why I couldn't be. So i sign a donor card and told my family. I'm so glad that Tricia and the baby are dooing great. You are in my prayer.
ReplyDeleteI've been an organ donor for about 15 years, but I'm always fearful that my organs will go to an unqualified candidate. Meaning, an alcoholic needing a new liver. (e.g., the Mickey Mantle debacle) Or a chain smoker needing new lungs. Or an illegal immigrant. Or even someone who moves to another area of the country to be bumped to the top of the list / improve their odds of receiving an organ? (I couldn't imagine being the one bumped...)
ReplyDeleteBut how can I question their "qualification" when they are a loved one that a family hopes to be saved from illness? I mean, who wants to get into a predicament of having to choose the recipient (I know this doesn't happening, just hypothetically speaking)? But still, it weighs on me.
Though it will NEVER change my decision to be a donor. I choose to be a donor because it's the right thing for me to do, and knowing how I love my family, I only hope the recipient will enjoy a lifetime of similar love, no matter who they are.
My husband is also an organ donor, and should anything happen to my children while they are young, they will become organ donors as well.
My father passed away at 47 and had his body donated to science. His eye tissue did go on to help someone see again. But he became a cadaver for medical school students.
My mother will also be donating her body to science.
I am an organ donor. It's very close to my heart, literally and figuratively, because my best friend's daughter was born with congenital heart defects and a heart transplant saved her life. My son also has CHD and it may someday save his as well.
ReplyDeleteI think being an organ donor is the most unselfish act possible.
Take care!
I have alway signed the back of my driver licensis I however did just relize that MI now had a regestration and did in fact regester in big part because of you guys
ReplyDeleteI've been an organ donor for over 20 yrs. My father and his identical twin brother both were recipients of donor kidneys. My uncle was one of the first people to receive a kidney transplant in the late 60's and lived for over 20 yrs with his kidney. My father, alas, only lived for 3 months with his due to complications. I wouldn't hesitate to donate my own (or, god forbid, my children's) organs if a decision needed to be made.
ReplyDeleteI became an organ donor after my brother in law went on the transplant list for a kidney/pancreas. He went to Florida for his surgery a year ago. The pancreas did not work; the kidney did work. He is now on the transplant list at UNC!! We are praying that this time, the pancreas will take--he has been diabetic (I) for a long time. I KNOW what organ donation does--I love your blog and I pray for you guys daily!!
ReplyDeleteCindyO.
i've been an organ donor since getting my driver's license 13 (ahhh--am i that old?) years ago. but following your story made me realize what an incredible thing that really is. it also provoked a conversation with my husband where we really talked specifically about what we each would want. those are hard conversations to have, but it's good to know that you can make the right choice for the ones that you love in the event that something happens.
ReplyDeleteI told my husband and mother that I wanted to donate my organs if that time ever came. I have been on the bone marrow list for 10 years but have not been contacted. I started giving blood a few years ago and found out I have one of the more rare types of blood that is free of some particular virus that is especially important for some recipients. I love that there are now the little plastic red hearts that can be stuck on our drivers license in Michigan. I had always relied on the information being on the back of my license but during the days surrounding Tricia's transplant I officially registered with the State of Michigan and received my sticker.
ReplyDeleteThank you for continuing to share your story.
Always been one. My hubby has never fully understood why. he doesn't really like the idea of parts of my body going someplace else. i think as we get older he is starting to see the value of becoming a donor.
ReplyDeleteglad that people are learning about it and making a choice to change their death wishes.
I just posted about "donating life" in general just yesterday....weird. I'm urging people to sign up on the national registry to make their wishes known and to encourage them to also think about getting on the National Bone Marrow Registry.
ReplyDeleteI signed up to be an organ donor years ago, but Trisha's story made it more "real" for me.
ReplyDeleteContinued prayers,
Blessings,
Lesley
Hey Nate I should probably know the answer to this but I don't... Can you be an organ donor with CF I don't think I can because who would want my organs that don't work? But there is some parts of me that could be used. So I'm just curious if you knew the answer. Because If i could become one I would just from Tricia's story alone makes me want to be organ donor.
ReplyDeleteI chose A, though technically I won't be an organ donor for a little while longer til I get my license. I do, however have that little card in my wallet, signed by myself and witnesses, which I ordered after reading this blog. I am an organ donor because of Tricia.
ReplyDeleteEveryone knew I wanted to be an organ donor but I made it legal using the information on your site (and posted about it on my own blog). Many thoughts and prayers sent your way daily!
ReplyDeleteThe last time I had my license renewed I had checked the organ donor slot but after I received my license it didn't have the red heart on it. My son-in-law is a career Military man and you always have to show ID when getting on base.They all fussed because I was not an organ donor. After reading Tricia's story I have emailed DMV for a pin # that allows me to file a change on my license so I will be an organ donor. The story of your strong faith in God and love of family has caused me to persue this honor that I could help others when I am called home to be with the Lord...May God Bless!!!
ReplyDeleteI have always been an organ donor since receiving my license. When I was 19, a good friend was killed in a car accident, and his parents donated his organs, at his funeral the pastor read a thank you letter from the family of the patient that got his heart, no names, no details, just the gift to his family and friends to know what a precious gift he had given to them. The pastor went on to say what a precious gift we could all give, and be a part in the Lords will. that eulogy stayed with me almost 16 years, and then I found your blog. I found the voice to share your story, and your journey and to encourage more family and friends to be organ donors. I have even talked to my girls about it, sharing both the story of old, and the story of new.
ReplyDeleteAs always thank you for sharing your story, and giving me the gift of a precious reminder of my dear friend, and how precious his gift of life was.
Praying as always
For longer than I care to remember I've been an organ donor.
ReplyDeleteSitting with the number of families each year who have just lost a loved one that I do, I've always encouraged them to consider organ donation.
Now I'll be a little more encouraging in those situations.
I am a transplant recipient, so I encourage organ donation. When I die, If they are able to use anything else from my body, I hope they do! I think transplant patients and families are walking testament to the wonderful gift that transplant it. There are so many myths about transplant, and people like Tricia, and myself help to dispell those myths!
ReplyDeleteI fall into the last category. I've always been an organ donor from the time I got my first driver's license at 17. I proudly placed the little pink sticker on it. As a family, we have talked multiple times about organ donation with our kids (14 and 10) because I think it's important for every family member, young and old, to know what your wishes are and the reasoning behind it. Having said that, if I was not already an organ donor before reading your blog, you can bet your bottom dollar I would be now! (Eek! Did I just use a quote from Annie??)
ReplyDeleteBoth my parents passed away while I was in high school, and for me, that really solidified in my mind that I needed to be an organ donor. They're simply of no use to me once I check out of this Earth, and "move on up to the East side."
ReplyDeleteI think that you guys being willing to share your family's story though has really reminded me of the significance of being an organ donor, and it's also encouraged me to encourage others to be an organ donor, and also gotten me to make sure that all those that are close to me know my wish to be an organ donor. If nothing else, it's been a powerful reminder of the consequences of the decision that I already made years ago....it's like getting to watch part of the story of whoever will get a second chance at life with my organs.
I have been a donor in my state for almost 20 years. I did get hubby to sign up a few years back and he won the incentive which was a full year at the top of the line fitness club free we go to. sadly, he never goes. go figure. I do!
ReplyDeletecute little poll I have been a donor for a long time Erma Bombeck is the one how hit my heart years ago. keep up the good work.
ReplyDeleteMy husband and I have been listed as donors for as long as we've had drivers licenses... about 16 years each (gosh, half our lives!). But the link on your site the other day also encouraged us to register online through donatelifenw.org - I didn't realize that we could/should do more than check the box on our license application.
ReplyDeleteWhen my mom had a stroke almost a year ago at age 65, I became her POA for health care and property. The one thing I was "looking forward to" (if I can say that) was being able to allow her organs to be donated in the event of her death. Unfortunately, she had it written into her living will that she did NOT want to donate organs and that her POA could not do that on her behalf... old school Roman Catholic church teachings that have long since been revised. I wish that her organs, if they would have been usable after all the other health crises she had going on when she died, would have done more than just gone underground. But we're doing what we can to teach others around us... including our kids... how important organ donation can be to others when you just simply don't need them anymore.
I am option E. I told my parents at 13 that if anything happened to me, I wanted them to donate my organs. Some six years later, when I got my drivers' license--that little organ donar dot was on there. But three years ago I was diagnosed with thyroid cancer and now my organs (and my blood) are persona non grata. :(
ReplyDeleteBut I would be one if I could.
Hi Nate,
ReplyDeleteI've been an organ donor ever since I can remember. I have always thought it is so cool that your organs can still work in another body. SO AMAZING!!! God created us as such unique individuals, but we all have and NEED the same organs to live.
My husband was always a little hesitant about organ donation b/c he had heard all those myths, but when he had to get a new VA license 5 years ago, he check NO on organ donation, but the DMV made a mistake and put the little red heart that says you are an organ donor. He didn't feel like going through all the work to get it changed and then he never thought much about it after that. But after hearing your story, he is so glad that the DMV made that mistake and is so happy now to be a "true" organ donor because of your girl.
Thanks for sharing your story!
What about E? I've been a donor since I GOT my license, but because of Tricia I re-signed the donor form on the back of my license (because my original signature had worn off). I wanted to make sure that, should I die, my family knew my wishes.
ReplyDeleteI became an organ donor, and whatever else I don't need when the time comes, last week, due to knowing that someone else did it and saved the life of your wife.
ReplyDeleteI have been an organ donor for a while. My father's life was saved by a liver transplant and as a result he was able to walk me down the aisle and later meet his grandchildren.
ReplyDeleteYour story has helped my motivate others and strengthen my conviction.
I fall under the I have always been an organ donor and have always known it's important. In college I did a persuasive speech on it in an English Lit and health science class.
ReplyDeleteI have always been an organ donor, but I can relate to Tricia's story helping others make that decision. Due to my own daughter's need for a double lung transplant, many people I know have made the organ donation decision.
ReplyDeletePraise God for those & for all those who were moved by Tricia's story as well.
Don't take your organs to Heaven, as Heaven knows we need them here.
Blessings,
Karen
Your story is amazing! I am completely addicted to your blog. I feel as if I know your family. It is crazy! I am in constant awe of the faithfulness you all have shown. It has really made me appreciate my own health and the health of my twin babies. Thank you for sharing your story. You are touching so many lives, including my own.. Your family is in my prayers! Oh and I am not currently a donor but am feeling the Lord leading me in that direction. Thanks for opening my eyes to it while the Lord is preparing my heart!
ReplyDeleteI recently (in 2006) choose to be an organ donor when it was time to renew my license. Since having my license renewed the time before, I had a friend lose their teenage daughter in a tragic accident. It was such a horrible situation but the family wanted to help others through their grief. They had their daughters organs donated. Three separate people benefited from their generosity. So when I was asked this time around if I would like to be an organ donor I proudly said "YES!". If something unfortunate we to happen to me, I would hope that I would still be able to give back and help someone else.
ReplyDeleteI commented above, but forgot that I am on the Bone Marrow registry. I signed up when there was a bone/blood marrow drive for a little boy in Virginia Beach. The response was overwhelming. Over 1000 people signed up and overtook a middle school gymnasium. My sister and I stood in line for over 3 hours to wait our turn. It was so worth it, but unfortunately, no one was a match for the little boy. However, many people committed to sustaining life that day, and that is a beautiful thing.
ReplyDeleteI'm actually saddened that I haven't been called upon to help. Maybe because I wrote this I'll get a phone call soon?
I voted twice - I chose the second option for myself - I've been listed as an organ donor on my driver's license for a long time, but because of your story had a serious conversation with my family members about my wishes, and have truly realized what an amazing gift organ donation is.
ReplyDeleteI voted for the first option for my sister. I don't know if she's even read the blog, but after telling her of your story she said "I want to be an organ donor. Because of that. Because I could help someone spend more time with their baby or their husband. I want to do that."
So, Thank You!
I'm one of the ones that can't participate in the poll as I have always been an organ donor but I do keep moaning at my mum to become one too - fingers crossed I will get there someday! :o) I am so happy that both your girls are doing so well XXXX
ReplyDeleteMy husband and I have always had our dl's listed as organ donors. It is something we believe in very passionately. We have had friends and family members benefit from donations of all kinds(cornia, tissue, kidney and others). Tricia's story is truely amazing and we are blessed by your sharing it with the rest of us.
ReplyDeleteI just became an organ donor after reading your story... Thank you for opening my eyes to helping others.
ReplyDeleteI was never against organ donation, but I just never gave much thought. I'm so thankful to you guys for opening my eyes to this.
Thank you!
Still praying,
Tyra
I wrote this right after Tricia got her lungs.
ReplyDeletehttp://wordssetfree.blogspot.com/2008/04/read-this-and-then-this.html
I guess I'd be "D". I have been a decided donor since I turned 18, and have been following your story, praying for you and have shared your blog with others. I'm very glad to hear that your girls are getting stronger!
ReplyDeleteI registered with our state registry due to this blog and Tricia's story. ( I wanted to donate before but never made it "official") I am now telling everyone my wishes too! (friends and family)
ReplyDeleteI have became an organ donor for the first time because of Tricia's story.
ReplyDeleteAlso D
ReplyDeleteHave Been a Donor, since I could!!
Tamara
I answered I have always been an organ donor. I have seen organ donation firsthand, about 10ish years ago, I have always known how important it was.
ReplyDeleteI've been reading your blog daily since the announcement that Tricia was going into surgery and it has given me a whole new respect and perspective on organ donation. Well, my co-worker (and friend) suddenly and unexpectedly lost her father a little over a week ago...he was 55. Knowing your story, I took some comfort in learning that he was an organ donor and that somewhere there is likely a family that is as grateful as you are. I'm hoping someday my co-worker will also learn of how much her father's organ(s) may have helped one or more people have a better, longer life.
ReplyDeleteI have been following your story for about a month now. Thank you for sharing this. My husband & I are both listed on our dl's as organ donors but because of Tricia's story & the link you provided, we have registered again with our state online. You are in our prayers.
ReplyDeleteI have always been an organ donor because of a family friend of mine and my sister's that died at age 17 from CF. I always wanted to help someone just like her and Tricia's story gives me hope that it does make a difference to make that decision.
ReplyDeleteD) none of the above. I've had the box checked on my license since I got it at the age of 16 and have had many discussions with my husband about my desire to be a donor. Tricia's story reaffirms that this is the right choice for me - because I imagine that, should I die suddenly, there might be another story like yours out there only the person giving that gift of prolonged life might be me, and how can I NOT give someone that opportunity?
ReplyDeleteThe only thing I won't donate is my brain because it usually doesn't work all that great.
ReplyDeleteTrish and Nate, I have been following your story first through cysticfibrosis.com and now through Nate's blog. We have a son with cf and thought about becoming a donor, yet never did. Well, I am now a donor and so are several members of our family. Thank you for bringing cf to the fore front of so many peoples lives.
ReplyDelete