Gwyneth Rose is doing better than she was yesterday. Her distention is gone and she has not desated in the past 20 hours. I did find out yesterday (not sure why they didn't tell me this up front...) that she'll be in contact isolation for 4 weeks as she'll need four negative test results. This is a bummer because it means I won't be able to touch her skin to skin (including Kangaroo Care) until then...I can hold her in a blanket, which hopefully I'll be able to do soon.
Here's Tricia with one of her gifts (one of those Hallmark stuffed talking/moving toys that she told me she had to have...):
Nate
Glad the procedure went well. Happy Valentines Day guys!!
ReplyDeletexoxo,
Jenn K
So glad to know that all went well. Tricia looks great after having had surgery such a short time ago. What a beautiful smile!
ReplyDeleteDenise, Louisville, KY
awww! i am so glad that Tricia is doing well and Gwenyth is wonderful other that than the isolation part. is this good that she has been desated?
ReplyDeleteGlad things went well. I am also happy to see that Trish is getting to wear her own clothes again.
ReplyDeleteHAPPY VALENTINE'S DAY, TRICIA, NATE, AND GWYNETH!!!!!
ReplyDelete~ becky b
what she wants... is what she gets right now! I would buy her a 1000 pink Halmark stuffed animals... she is a trooper and so are you!!! we're praying......
ReplyDeleteCongratulations on the surgary! I am glad there is no pain right now. I hope all goes well with Gwyneth and you get those four negative test results. Happy Valentine's Day!
ReplyDeleteThat smile would make the best Hallmark commercial! Happy Valentine's Day to you all. I am glad Tricia's procedure went well.
ReplyDeleteGlad all went well. Will pray for an uneventful evening and rest for Tricia.
ReplyDeleteThankful all is well-praise God! Happy Valentine's Day to you and your girls!
ReplyDeleteKim
fellow NC'er
Incidentally-thanks for the tip about Corolla/Corrolla-checking into it!
Oh it is so good to see that smile on her face...she looks Great! and so cozy~
ReplyDeleteHaPpY Valentines Day to you all~
Glad it all went well! Happy Valentimes:))
ReplyDeletePraise the Lord! So glad everything went well!
ReplyDeleteHappy Valentine's Day! The pink fuzzy is cute!
Shari
So glad to hear all went well. I will pray that the 4 weeks of isolation go quickly for you. Happy Valentines day to all of you!!
ReplyDeleteTammy
We're still praying. Glad to hear that so far that you are without pain Tricia!
ReplyDeleteWhen you posted about praying for donor families we did. It was something we had never really thought about before. Little did we know that we were praying for our friends. On Sunday morning a friend's mom passed away suddenly from a brain aneurysm. This week her kids were told that 6 of her organs have been (so far successfully) transplanted into people who desperately needed them. In the heart-wrenching pain that they are experiencing they have said that "it is good" to know that her death hasn't been wasted. Thanks for encouraging us to pray for donor families, I wouldn't have been praying for them already otherwise.
In His arms,
Corinne
Happy Valentines Day to you both. Her smile in these pictures are great!!!
ReplyDeleteTricia,
ReplyDeleteYou look so beautiful and so healthy in those pictures!! I pray that God will continue to strengthen you and prepare your body for the transplant..
Happy Valentine's Day to all of you!!
Yeah!!!!!!!!! I'm so glad that everything went well and I'll continue to pray that Trisha does not experience any pain. So glad to hear that Gwyneth is doing better today! Bummer about the contact isolation but at least you can hold her in a blanket! Let's hope that happens soon!
ReplyDeleteHow beautiful can one beautiful woman's smile get. You do not know me, but I am from N.C. My family are also avid lovers of the Outer Banks. I am not quite sure how I found this site, but very glad I did. I know this life you have together, has been one tremendous hurtle, but one I know that the Lord has complete control over. You 3 are a total inpiration to so many, me included. Have a wonderful Valentines Day. I am praying for you, Nate, Tricia and Gwenyth. Rest well.
ReplyDeleteHappy Valentine's Day! You all are such a beautiful example of true love!
ReplyDeleteGod bless!!!!
Happy Valentines Day to the three of you, your first as parents. So thankful Tricia's procedure went well and it is over. I am always amazed that no matter what, her spirit shines through in that SMILE. She is looking healthier every day, thank the Lord. Have a wonderful day.
ReplyDeleteLove, Laurie in Ca.
So glad Tricia's procedure is over and done with and so glad for Gwyneth's distention and desats being GONE. Hope that means Gwyneth can have more milk! Prayers continue.
ReplyDeleteGlad to hear the Tricia is doing good! Hugs to Gwyneth.
ReplyDeletelook at the relief on her face! Happy V-day Natha, Tricia and Gwyneth!!!
ReplyDeleteTricia looks beautiful in those pictures! She looks like she is doing great! Glad to hear Gwyneth's distention is gone. Bummer about not being able to touch her skin, though! We are continuously sending prayers your way. Happy Valentine's Day!!
ReplyDeleteI just found your site. For some reason and not sure why God directed me to you. I have had a hard time lately with my daughter's CF. You both have given me inspiration to fight this disease with all I have so my daughter will continue the fight for herself. Allie has a carepage and you can visit it when you can at www.carepages.com and her page name is AllieClaycomb
ReplyDeleteGOD BLESS
and we are praying hard in New Paris Pennsylvania
Brandy Claycomb
A proud Mommy of two girls
Maria 9 and no CF
Allie 5 with CF,feeding tube
Praise the Lord! all went well Praying for no pain at all for Tricia
ReplyDeleteVery sweet! I hope that the port removal went smoothly. My husband recently had his port removed and a new one placed.
ReplyDeleteI have seen some of your blog and wanted to just introduce myself. I am Lisa and my husband has CF. I am active on the CF.com forums site.
I wish you, Trista, and Gwenyth the best and I will try to keep up with the blog!
Chelsea got that same animal for her birthday and LOVES IT!!! LALALALALA HUG HUG KISS KISS....will be in your head for the rest of the week!
ReplyDeleteHappy Valentine's Day!
Carey and Chelsea, www.cbranam.blogspot.com
Happy to hear today is a good day!
ReplyDeletePraying your girls have a restful night and awaken tomorrow with renewed energy and better healthy.
Have a wonderful Valentine's Day!
Wow, you guys are like the perfect couple! I hope that your life can be filled with the happiness & the time together you deserve. God will provide, and I KNOW that someday, you three will at be at home..with your cute doggie. I'll pray for all of you. Stay strong!!!
ReplyDeleteIn Christ, Annie
So glad things went well...
ReplyDeleteStill praying for you and your two princesses!
~ Dana Haupfear
Just wanted to let you know that I found your blog tonight and will be praying for your beautiful family! Thank you for sharing all of this with the world. I am glad that Tricia and Gwenyth are going well today. I will pray for many more good days.
ReplyDeleteI am SO happy to hear that Tricia's portacath was removed successfully and that she's without pain. God continues to bless! YAY! :)
ReplyDeleteI'm sorry about the disappointing news that Gwyneth will be on contact isolation for a longer period of time. I pray you're still able to hold her soon with a blanket and that that will be a special time between now and the next time you can do "kangaroo care."
Lots of Love!