Plans

It seems that our story is far from over.

We received a call from Duke this past Wednesday that the Epstein Virus (Mononucleosis) has been found in Tricia's system. This in and of itself is not necessarily a horrible thing, but on Thursday we received another call telling us that there are some growths in Tricia's lungs. These growths could be the first signs of a common type of cancer called Post-Transplant Lymphoproliferative Disorder that develops in post-transplant patients, brought on by the mono virus because of the immunosuppressant drugs Tricia is now taking.

We'll be driving to Duke early Tuesday (tomorrow) morning to get a clinic visit in for Gwyneth, who has been breathing a little heavy and fast the past few days. It does not appear to be affecting her in any way, but it's something that needs to be checked out just in case.

Tricia has a PET Scan early Wednesday morning. She will probably also have a biopsy (where they'll remove a small part of her lungs). Hopefully this can be done via a bronchoscope. If not, they may need to perform a surgical biopsy. She'll most likely be admitted as an in-patient on Wednesday as well, hopefully for no more than a few days.

They should have a diagnosis within 24 hours of the biopsy.

If she indeed is diagnosed with PTLD, they will consult their oncology specialists to take over administering the Rituximab, which it is generally given weekly for a month or so.

It could all just be a fungus infection, but it appears pretty suspicious for the PTLD.

This is not something we were aware could happen (not that anything really surprises us anymore), and to be honest, we really don't know much about it or what could happen from here. The idea of going back to Duke and being in the hospital is not something that we really want to think about right now, as it really messes with our plans. We're not sure how long we'll be in Durham, but we're hoping we'll be back within a week.

So, once again, we find ourselves in an unfamiliar, and very scary place. But, if we have learned anything during this incredible journey, we’ve learned to simply trust God.

When I am at my weakest, He makes His strength most evident.

I'm believing more and more that, after this part of our journey is over, God will still be Who He is, no matter the outcome. My plans are only worth anything if they are God's plans, and thankfully, His plans are always perfect.

Jeremiah 29:11 (The Message)

I'll show up and take care of you as I promised
and bring you back home.
I know what I'm doing.
I have it all planned out -
plans to take care of you,
not abandon you,
plans to give you the future you hope for.

We have no reason to doubt that God is still in control. Thanks for your thoughts and prayers this week. I'll let you know when we know more about both of the girls.

Thanks!

Nate