Gwyneth had her first visit with a new doctor. She is now officially diagnosed with mild cerebral palsy, which we had assumed for a now. She continues to wear her AFO (ankle braces), but is making great progress. She is falling less and less while walking on her own, and is now able to step up and down short steps.
We're also making plans for Gwyneth to have another dual surgery...eye muscle surgery for her stabismus which has returned, and another ear tube placement as her first set has recently fallen out and she is continuing to experience ear infections. Hopefully these can both happen on the same day in the same ER as before.
While we were at Duke waiting for mommy to get done with her appointments, Gwyneth and I walked over the the gardens for a few shots...
Nate
She is so sweet! Glad to hear good reports on both girls. :)
ReplyDeleteYou know, sometimes a diagnosis is hard. But sometimes having a name to say "This is what it is!" helps. I'm not sure where y'all are in that...but I hope that having an official name for things will be helpful and everyone is comfortable with it.
ReplyDeleteIf she isnt completely precious! What a miracle.
ReplyDeleteNate and Tricia, she is just getting prettier and prettier every time I see her. I can see her mom in her so much but also you, Nate! God bless you all!!
ReplyDeleteWhat a sweetie! And YAY for Tricia's good news!!!
ReplyDeleteHi Nate - I've followed you and Tricia's blogs for a long time now and just had to tell you, I think those first two pics on the blog, in the garden, are two of my favorite pics of sweet Gwyneth. What a sweetheart. Thanks for sharing and so glad to hear how the check-ups went.
ReplyDeleteWhat a PRECIOUS little girl... and I have not forgotten what a miracle she is!
ReplyDeleteToOdLeS.
so happy for the good news!! gwyneth is true beauty all around...we love you guys!
ReplyDeleteWhat sweet, sweet pictures!!!
ReplyDeleteI am seeing more of her mom in the pictures you take of her....I used to think she looked like you. I think she is a remarkable little girl!
ReplyDeleteGwenyth is soooo cute! Congrats on the good reports for both of your girls!
ReplyDeleteGreat news - Love the pictures - so cute!
ReplyDeleteI check in on your blog now and then - and I just can't get over that Gwyneth is not a baby anymore! She's got that big girl look! What a sweetheart she is.
ReplyDeleteGlad Tricia is so healthy and hopefully the eye and ear surgeries will be a breeze for Gwyneth. God bless!
Gwyneth just continues to grow more beautiful with every picture you post. Keep those pictures coming! And congratulations on all the good reports!
ReplyDeleteGwenyth has such a sweet face. I hope it is a relief to get confirmation of what you suspected. Personally I think it's best to know the truth and move on with the business of living life. I'm glad to hear Tricia's still doing well. Good luck with the surgeries.
ReplyDeleteSo glad that the girls are doing well. I will pray for a good outcome and swift recovery for the little one and for Tricia and her lungs. My little one has CP too, hers is more involved than Gwyneth.
ReplyDeleteSuch a sweet, joyful, beautiful, face. Gwyneth is perfection. Hopefully having this official diagnosis will only make it easier for her to get the kinds of appointments and services she needs. So glad she and Tricia got good reports.
ReplyDeleteShe is just precious!!! My little one has mild cp as well and I remember being SO upset with the original diagnosis but she is now 7 and thriving!! :-)
ReplyDeleteHer sweet smile makes me smile.
ReplyDeleteGwyneth's just as beautiful as ever! So glad both ladies got good reports!
ReplyDeleteoh my she is getting so big and so pretty! i just can't get over every time i see her the changes. also, so happy to hear the good health report for Trica. I will keep praying for both your girls! God is good!
ReplyDeleteoh my she is getting so big and so pretty! i just can't get over every time i see her the changes. also, so happy to hear the good health report for Trica. I will keep praying for both your girls! God is good!
ReplyDeleteSo who's taught her to jump over the cracks in the pavement? Walking with her through the parking lot at the pier the other day she had to stop and jump over the cracks.
ReplyDeleteGod is so good! That is awesome to hear all is going well!
ReplyDeleteI am so thankful for the update! I continue to follow your family and appreciate it!
ReplyDeleteI am glad everyone is well, I rarely comment but the Duke Gardens..........the memories I have of that place! Thanks for sharing.
ReplyDeleteNate, she is so beautiful - truly a miracle and such a blessing!
ReplyDeleteMy Addie just had that same eye surgery and her second set of tubes put in a month ago! She also has mild hearing loss.
ReplyDeleteI hope they can do the surgery's at the same time, it makes everything so much easier.
Gwyneth is just beautiful! I love these new pictures!
I love, love, love your updates! Gwyneth is doing so well! I find inspiration in reading of her progress. My husband and I adopted a large sibling group last year, and our daughter is the same age as Gwyneth. She also has mild Cerebral Palsy, wears leg braces, glasses and had the stabismus surgery last year. Though our little Peanut isn't walking on her own yet and also has hydrocephalus, I see so many similarities. It is comforting in just knowing we are not alone in this journey. Miracle babies (not to mention Tricia's journey) certainly do make you all the more aware of the preciousness of life and love.
ReplyDeleteHappy 4th of July to you all!
Glad to hear the good reports! I think Gwenyth is doing amazingly fantastic! And Tricia too.
ReplyDeleteI'm a CP parent also. My Elena is older than your little girl, but we share some of the same challenges. One thing is for sure--we celebrate each little mile (inch?) stone as they come along!
Hello. I have been reading your blog for a while (since your little girl was born). I work with children with autism (some have other special needs too). I am glad that she is healthy and doing so well even though she does have a few challenges. I think with wondeful parents to fight with her and her determination, your little girl has a bright future. My biggest advice (as someone who grew up with a different disability, Asperger's Syndrome) is to do everything possible to prevent bullying and to educate Gwenyth when she is old enough how to advocate for herself.
ReplyDeleteI've been following your blog since Gwenyth was born and it just warms my heart to see her grow into such a beautiful little girl. Diagnosis aside, she is a miracle and I know you both treasure her!
ReplyDeleteI haven't checked in on you in a long time and it's fun to see your little girl so grown up!
ReplyDeleteI can't believe how big Gwyneth is getting! She looks so much like both you and Tricia. My daughter Lily had Sure Step AFO's for a few months, and they were wonderful for her. She doesn't have CP, but she does have reflex integration delays, which can affect gait patterns, coordination, speech, etc. (You mentioned the falling. I know all about that.) Within 5-6 months, Lily had completely outgrown her need for AFO's. She still needed some additional foot support, but we found that Keens and kinesio tape/e-stim nearly eliminated the need for foot orthotics. We still could have gotten them, but in other ways they were limiting her progress, so we opted not to. I know how my heart swells when I see how much Lily can do now that she couldn't have done even a few months ago. I'm sure you guys are so excited with Gwyneth's progress as well! She looks great, and I'm so happy for your family!
ReplyDeleteWow, it's so incredible to watch Gwyneth grow. She is such a big girl now! Much love to you all! xoxo
ReplyDeleteI have been reading your blog for a long time... I just wanted to tell you what a sweet family you are and what an encouragement you are. Little miss is just a doll. Be blessed!
ReplyDeleteI'm new to your site, but I just had to tell you how beautiful your daughter is!
ReplyDeleteprecious! Her glasses remind me of my little Joshua. He had severe cerebral palsey due to a placental abruption at birth. Will keep you in prayer.....Myra Vidal...http://triumphantjoshua.blogspot.com
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