On our way home, we stopped to attend the annual Cystic Fibrosis Foundation meeting in Raleigh. We were invited to attend because they were going to present Tricia and I with an award...our Great Strides Walk last year was the highest earning, first-year walk of '07 in NC ($32,000). We appreciate the recognition, and, of course, say "thank you!" to everyone who helped in any way last year (because they deserve most of the credit)!
Anyway, the meeting took place at the Inspire (a company that focuses on developing new drugs for CF) headquarters. They have some incredibly exciting news about a new drug that is in the testing phase (I'll explain more later).
Anyway, we have a lot going on this weekend, and I'll try to update when I can. Tricia is feeling good, taking her nausea meds on a regular basis. And, Gwyneth slept better last night than she had the two previous nights, which gave me chance to do some catching up myself.
Thanks!
Nate
42 comments:
Woot -- for getting sprung
Woot -- for getting home safely
Woot -- for getting to work from home
Woot -- for the award
Woot -- for the new drug
God is good... Have a great weekend!
and here's another 'cause I finally got a first post! WHEEEEE!
So glad Tricia is feeling at least okay and that her nausea is being managed! Praying this keeps up for all her treatments!!
If you would pray for us, we recently found out our newest baby (I'm 23 weeks pregnant) has serious heart issues and I am going in today again to have his little thumper checked out.
Keeping up with you guys always; so glad Tricia is OUT of the hospital again!!!
Great news. So glad to hear everything went well so that you all could leave. Will continue to pray for your family and health.
Elaine from MT
I don't often comment on your Blog, but I read it every day and felt I just had to send you some special (((((hugs)))) from me and my family. You have all been through so much and still keep on updating this Blog to let everyone know how Trisha and Gwyneth are doing. You are one extra special family and truly deserve some happiness and luck - I wish with all my heart that you get that luck because you deserve it.
All the best,
L xxx
Glad you all are home!!! Hugs to you and your girls!!
Glad to hear your all *Home!*
Thats always a good thing! Glad to hear Tricia is doing well to, staying on top of the nausea meds is so important.
Sending prayers.
Glad you are home! What an incredible award to receive! It is through YOUR generousity by sharing your story and experiences that gather the donations. We are just blessed enough to be a small part of it. I hope you have a great weekend and that Tricia feels better soon.
you guys are just amazing. Praying for you.
yay for some good news all around!
Praying fervently for God's close presence, perfect peace, and miraculous healing at this time.
Much love,
Becky (Fletcher) Holloway
More prayers coming your way!
I will anxiously be waiting for news on the new drug!!!
Hi Nate,
I just got caught up on all your post. We were vacationing at the OBX this week. We've been going for the past 15 years. We love it there so I can totally see why you all love it so much.
I will be praying for you and your girls.
Praying as always that things can go as well as can be expected. Glad that you are home. You are all amazing people!
Love, Tricia (N.VA)
I was wondering if you'd made it home. I'm glad you did. :)
I am glad you are back at home and Tricia is feeling okay. I am praying for this new med to work for her. I hope the house hunt is successful for you guys. Have a wonderful weekend and prayers continue here for you all.
Love, Laurie in Ca.
So glad that Tricia is out of the hospital and you guys are together at home. Congrats on the award! Hopefully the house hunting is successful
So excited about that potential drug! Yay for sleep, and for being able to handle chemo relatively well.
Awww, Gwyneth was just wanting to give you a run for your money the past couple nights!:o) Glad you are home, hope you stay there a while!!
There's no place like HOME! Glad you are back home.
Congratulations Nate and Tricia for the award!! WOW! You guys did awesome, and I'm sure you'll raise even more this year.
I am so thankful that Tricia is feeling ok after getting the chemo. I am praying for success and no side effects.
I am so glad Tricia feels well enough to go out and do stuff...praise the Lord, I pray it will continue for her this way.
There is a french researcher in Poitier who is testing a new drug in Spain. It is called Miglustat. Is it the one?
I am following his work closely and already send him an email to thank him, ... and to ad a little pressure! :-)
Glad you could go back home! :-)
Praising God you are home and that Tricia is feeling ok! Praising God that Gwyneth is gaining weight and progressing so much!
Blessings!
Jill
Glad you are home. You guys don't miss a beat do you? ;)
Good news on all fronts...yippee!
Prayers continuing to come at you from WA.
And congrats on your award - very cool :)
Greetings! I found your blog at mommylife,net back in April. I have followed your story since and just wanted to let you know that I am holding all of you in my prayers daily. Congrats on the award!
God bless you!
Amelia
Just completed your reading your confessions...from the beginning, and it only took a few days after stumbling across your site! (mostly at work, I'm afraid...)
Funny how reading the posts and information you've chosen to share can make a complete stranger, like me, feel that they know you and your family.
As I read, I couldn't help but find common bonds that lead me to continue reading. For instance, I love the OBX having vacationed there several times in the houses on stilts you spoke of. My husband of 20 years and I adopted our daughter from India just 10 months ago and her name is Devi Rose! Devi is having trouble gaining weight, so our doc mentioned testing her at some point for CF, although it is not common in people of her ethnicity. I lost my mother to lung cancer (I was one of her caregivers and advocates for 4 years), although a different kind of cancer than Tricia's, the memories of chemo appts. and long hospital stays are still very fresh. I too, have wild hair...I wear mine in dreads :)
With that, I wish you, Tricia, Gwyneth, Meka and Ralphie continue to enjoy your life's adventure, where ever it may lead you. Also sending prayers for Tricia's and Gwyneth's good health.
Julie
bornofindia.blogspot.com is our site...not nearly as entertaining as yours but we are biased as we are completely in love with the subject!
Does Tricia know sign language? It comes in handy in so many situations! I am fluent in it and my husband knows a bunch too. We have taught our baby some and he can sign about 20 words now and he's only 14 months old...
Anyway, I was thinking that it might come in handy with her vocal cords on the fritz and I was just wondering if you guys had learned any.
Way to go on the award. I hope that house hunting goes well. That is hard to do. It is nice to know that things are moving forward. I have found out that since I had cancer, they do things a lot different now. They don't take your spleen out now. I hope the new drug will make things better for a lot of people. It is a blessing to see progress. Have a best blessed night!
Congrats on the award!!!
Glad you guys are home, Enjoy your weekend!!
I am glad Tricia is feeling few side effect from the chemo, I hope that trend continues.
Good luck on the continued house hunting.
Kudos to the OBX great strides!!! That's one heck of an award! Keeping all of you in our prayers for so many things. Hope the house hunting went well!
heard a cool quote from Larry Hagman today, a liver recipient about 10 years ago...when he ask someone if they are signed up to be a donor and they say something like they don't think that is for them. He then ask them if they needed an organ, would they receive one from someone else. he then said that he typically does not need to go any farther to get them signed up. Thought it was a cool conversation that could be duplicated for the good of MANY!
Welcome home!
Congrats on the (much deserved) award.
Have a great weekend! :)
I'm happy to hear that you're home and that Tricia is feeling relatively well. I hope the house search is going well too-looking for your 1st house is such a fun (and nervewracking and down right scary!) process and I'm praying its a smooth one for the 3 of you as well! You're family is always in my prayers and thoughts.
We are a christian couple living as an expats in the center of islam, Saudi arabia. we voted for you in the blogger choice.
Wow. Thank you for raising so much for CF! And our little Froggy thanks you too!
Congrats on the award and we are thankful you are back home on the OBX. I'm excited for you to find and move into your own home! We are praying for you all and especially for an effective chemo round!
Praying for you--good to know that Tricia is making it through the chemo okay.
Glad to hear that you made it home safely! It's great that Tricia was feeling well enough to go out house hunting! Hopefully the meds continue to not be so hard on her. Yay!
That is awesome you guys are home! You both are so strong. It is amazing the strength the Lord has given you. Please let us know the drugs that are in the pipeline for CF. I try to stay updated on this since my 20 month old little boy has CF. Please can you post this info I am pumped about hearing of the new medicines.
Post a Comment