Nate
Showing posts with label Home. Show all posts
Showing posts with label Home. Show all posts
Friday, February 18, 2011
Snow At The Beach
Here are a few shots of a recent little snow storm that rolled our way a few weeks ago. We don't get much of the white stuff, and even when we do, it doesn't stick around for long. But, it sure is pretty to look at.
Nate
Nate
Friday, October 16, 2009
Answers
Some really great questions this time, and we've had fun answering all of them!
Because a lot of questions were about and for Tricia, I thought I'd let her answer those...
How about a "Tricia" update? How are her lungs? Is she feeling healthy and able to do everything she wants to do? What about her other CF-related issues? Is life after transplant better, worse or exactly what she thought it would be?
My lungs are doing well. They are not at %100 function, which still make exercise difficult for me, but I can't complain. The only thing I feel restricted by is full cardio workouts. I have other CF related issues and transplant related issues, but I don't feel like discussing those. Life post-transplant is definitely easier than pre-transplant and I wouldn't change it for anything.
What's the one thing you'd say to the parent of a child with CF?
Be consistent, encouraging, creative and show discipline when needed. I needed to be shown discipline a lot during my high school years (to keep on my meds and treatments). Be involved with the CF community and don't limit your child if possible. Allow them to dream and achieve all their dreams!
What's a typical day in your families life? Is Gwyneth a good sleeper? What do the girls do during the cold season (when they have to hibernate away from germs) to keep busy and entertained?
A typical day-there is none. Many days involve medical appointments, visiting friends, family, errands, going to the YMCA or park, traveling to church to visit papa or one of his games he is refereeing. Spending our evenings together for dinner, then bath, play, reading time and bed. During the MLB games, we visit G and G at night since we don't have cable.
What are your favorite parts about motherhood? What activities are her bonding times with Gwyneth?
I love all parts of motherhood except when Gwyn is sick. It's nice relating to both my mom and sisters during this season in life and sharing mothering experiences. It is also nice spending play dates with my friends who are also mothers.
I wondered how you were taught about Jesus when you were younger, and how you share your faith with Gwyneth?
Look at My Blog regarding the first question. Right now, just sharing my life and being an example. Using books like the Jesus Bible and some other stories that share values and character traits we hold dear. Lastly, spending time with friends and family who share the same Christian values we share.
Personality wise, who is Gwynethth more like?
I don't know yet. She is strong willed, silly, and very loving. I guess a lot like her papa now.
How do you manage anxiety about the future?
I trust in God daily and don't worry about the future. My personality tends to worry about daily, insignificant things.
The rest of the answers are from me (Nate).
I just want to know how that sweet baby girl of yours got to be so cute?!
I think that's a pretty self-explanatory question, considering most people say she looks "just like her papa".
I'd love a big Gwyneth update! How is she growing and what milestones is she hitting? Do you have any long-term concerns for her?
Gwyneth has actually been growing very little for the past few months. She has been plateaued around 18-19 lbs since July. When you see her in person, you immediately notice that she is very long and slender for a baby of her general weight, which means she doesn't have any of the usual fat rolls of a baby her size. She has three cousins who are all about a year younger than her and about her same weight right now, but they're all a few inches shorter than Gwyneth and much "chubbier".
Recently, she's learned to say "up" when she wants to be picked up (which gives her two words now). She's also recently learned to make a G sound, which sometimes sounds like a K instead. She's crawling all over the place, although her crawl is a little awkward looking (have you ever seen a Komodo Dragon walk?). She is scooting really well along our furniture, and she'll do a pull-up (with her feet coming off the ground) hanging from the kitchen table if you let her. Her upper body is very strong and pretty well coordinated, and we're hoping her legs catch up soon. And, she's learned how to blow kisses with her hand.
We don't have any long-term concerns for her.
Does Gwyneth still drink any kind of formula or is she on regular milk now, and baby food/real food?
Gwyneth still drinks formula to give her as many calories as possible. She's a picky eater, but we think that's in large part because of her other developmental issues. She's just now learning to feed herself with a spoon and fork, and we try to feed her just about anything we want to along with the formula. She's not big into baby food.
How do you/will you handle Halloween as Christian parents? Do you have any Scripture-based evidence to avoid Halloween, or do you see it as harmless fun?
We view Halloween as a neutral thing. Some people use it for evil, others for good, and some just like to have harmless, but pointless fun with it. Our church uses this holiday to serve our community by offering Trunk or Treat every Halloween night (click the link to learn more). We offer a safe and family friendly opportunity for people in our community to do traditional trick or treating with a twist. We offer carnival games, cotton candy, hotdogs, drinks, popcorn, giant moon bounces, and tons of other stuff, all for free. This year, we're expecting over 2500 people to come through our event, most of whom do not attend church anywhere and do not have a relationship with God. It's so much more fun and eternally impacting than barricading ourselves in our home out of fear, or even simply going out trick or treating just to serve ourselves. Anyone with children under 18 who is reading this is welcome to come!
What are your favorite parts about fatherhood and what do your bonding times with Gwyneth entail?
I love watching Gwyneth explore and learn new things. Since her growth and development has been so slow, we've had more time than most parents to enjoy having a small, dependent baby, and every new thing she learns to do is that much more exciting. I love her kisses and her smiles and laughs. I love caring for her...I hog most of her nightly baths, and enjoy fixing her bottles and medications (much the same way I enjoy caring for Tricia's medical needs). And, I love coming home for lunch and after work to see her smile and reach up to have me to take her in my arms. I also enjoy any opportunity that I get to spend with her by myself out in public...especially now that she's wearing her glasses...she attracts a lot of "what a cute baby" attention. :)
Also, how'd you pick you G's glasses?
Tricia picked out her glasses, and let me tell you, there is apparently an incredibly small market for tiny glasses because it took her forever to find what she was looking for. The brand is Miraflex. They're incredibly flexible and very difficult to break. We bought a size that fit her now but also has lots of room to grow. We've also ordered another pair from a different manufacturer, which we're hoping will arrive soon.
How do they work out the prescription for Gwyneth's glasses?
I can't tell you exactly how it works, but with some eye drops, prisms and other equipment, the doctor can determine her prescription. I can tell you that she has some fairly thick lenses.
Personality wise, who is Gwyneth more like?
We see a lot of both of us in her. She's definitely goofy like me, and very sweet like her mother. She's a sleepy-head and a talker like Tricia, and nosy and intense like me.
I was just wondering if Gwyneth is in early intervention?
Gwyneth sees an occupational therapist and a physical therapist once a week for an hour each. She also sees a speech therapist once every two weeks for an hour. Based on our experience, we'd encourage any family with a child who is qualified to receive early intervention to take advantage of it.
I wondered how you and Tricia were taught about Jesus when you were younger, and how you share your faith with Gwyneth?
We were taught, and we're teaching Gwyneth, that our faith in the living God is about life, about a moment by moment relationship with Him and those around us. Every decision we make comes out of our world view, and we hope that world view comes out of our relationship with God and our trust in the sacrifice of Jesus Christ. Like our parents before us, neither are we perfect...but, we're continually learning about loving God and loving others, and we hope that, as Gwyneth grows older, she'll hear and see our faith in action in the big and small ways in the things we say and do. We hope that our relationships with our family and friends will reflect God's love for Gwyneth, and that those same people will also help us to show Gwyneth what an authentic relationship with God is all about.
Although we hope to be Gwyneth's most effective teachers for many years, we also believe that more is caught than taught. Practically speaking, Tricia has already begun to spend time reading from a children's Bible with Gwyneth, we are teaching her about God's Word through songs and stories, and we involve her, as much as she can be involved, in our family prayer. We also bring Gwyneth along in as much of our adult lives as possible...she sees us serving in ministry at church, she goes with us to serve our community, she is present at our "small group", she comes to watch our band practice on Thursday nights, etc.
Do you have any favorite high calorie foods or recipes that I could use?
Ice cream.
Does G still use oxygen?
No...she hasn't been on oxygen for about a year now.
How is your gorgeous raven haired niece doing? Do her and your blessed white rose have fun playing together?
Evaine is doing very well. She's becoming very aware of her surroundings and is beginning to sit up on her own. She and Gwyneth get to spend time together each week, and it won't be long before they're both playing together all over the place.
I wondered how Jeff was getting on?
My brother-in-law is doing very well, and, in fact, he just received a clean bill of health this past week as he continues to remain in full remission. We're very happy for him and his family!
I wondered if you have noticed a big difference in the quality of sleep that you are now getting since your surgery and are mostly healed from it?
I haven't noticed a "big" difference in the quality of sleep, but I can tell that I'm not nearly as tired during the day. Tricia says I seem to be sleeping much more soundly, and I can tell when I wake up, that I'm often waking up from extended REM, which is something I rarely used to do. I'm planning on having another sleep study in a few months when everything is completely healed up to determine how much of a difference the surgery has made. Like I've said already, the surgery and recovery were much easier than I had expected it to be, and I'd recommend it to anyone who has serious health issues due to large tonsils.
I'm wondering if Tricia is diabetic on top of everything else, or if she needs insulin because of something to do with CF. Also, if she is diabetic, did you find that hospital staff really don't seem to know much at all about diabetes and how to control it?
Tricia is diabetic...she developed gestational diabetes while she was pregnant with Gwyneth (is that redundant?), which has persisted because of the transplant meds she is now on. Many TX patients develop diabetes.
We have had more issues with Tricia's endocrine team at the hospital than any other medical team...it took them forever to figure out how to control her diabetes, and we continue to have issues whenever Tricia is admitted. We know that her case is more complicated than most, because of her health history, her high fat, high caloric diet and her medications, but it can be frustrating. But, compared to the alternative, it's not such a big deal.
How do you balance Tricia and Gwyneth's health issues with having 2 pets? I know you did some serious renovations before you moved in, but have you developed any strategies for winning the battle against pet hair?
Both of our animals shed quite a bit, and along with a few other good reasons, we decided not to have any carpet in our house. All of our new floors are tile and laminate hardwood, and although we can see dirt and hair and other stuff a lot more than if we had carpet, it's also much easier to clean. We have one area rug in the living room, but that's also very easy to clean. We also had a high-tech air filtration system installed, which is a huge help. The doctors informed us that, as long as Tricia isn't constantly rubbing her face in their fur, the dog and cat shouldn't pose any issue for her.
What's the one thing you'd say to the parent of a child with CF?
I'd say, there is a great future for your child if that's what you hope for. There is almost no reason why a child born today with CF, diagnosed early on and given quality treatment can't live a nearly normal and long life. There are a few drugs that are just months away from hitting the market...these drugs have the potential to literally double the life expectancy of a child born today with CF. And, I truly believe that we are getting very close to finding a cure.
What's a typical day in your families life? Is Gwyneth a good sleeper? What do the girls do during the cold season (when they have to hibernate away from germs) to keep busy and entertained? What TV shows do you and Tricia enjoy watching?
A typical day for us involves me getting up around 8am with Gwyneth. I'll spend a few minutes with her before taking her into our room to wake up mommy together. We'll spend some time snuggling in bed, and then get up to eat breakfast, shower, etc. I'm usually at work an hour or two later. The girls will often run errands in the morning before Gwyneth goes down for a nap around noon. I go home pretty often for lunch, and then back to work while Tricia either takes a nap or does some things around the house. Gwyneth usually sleeps for about 2 hours, and then she and Tricia will go out to spend some time with friends, at the park, beach, etc. I'm usually home from work around 5, and we eat supper together. While the weather's nice in the evenings, we take lots of walks, run errands, and spend time around the house reading books and playing with Meka. We always end the day with a bath for Gwyneth, reading a few books together, and singing a good-night song. Gwyneth is usually in bed around 9pm, and she'll usually sleep through the night until 8 the next morning.
During the cold season, we'll spend more time at home than usual, and lots of time hanging out with family and friends. Because Gwyneth is mobile and good at entertaining herself, it's much easier to stay busy.
We actually don't have cable...it's too big of an expense, and we know we'd end up spending way too much time in front of the tv if we could. We do watch a few shows on the internet, and we rent DVD's from time to time (and we'll hang out with friends or family if there's something we really want to watch...like playoff baseball!). Gwyneth watches some Baby Einstein every now and then, but for the most part, we don't spend a lot of time in front of the tv.
What are some Christmas traditions you want to start with Gwyneth? What were your favorite ones? How about Tricia's?
My mom always made a big deal about Christmas...we basically started celebrating the day after Thanksgiving, and growing up, we had too many traditions to count, most of which I would love to continue with Gwyneth. Some of my favorites include picking out a new ornament every year (mine were all nutcrackers and soldiers of some kind), putting up the live tree as early as possible and making a big deal about the decorating (we had a ton of very sentimental ornaments), listening to and singing Christmas songs 24/7, watching movies like "It's A Wonderful Life", "White Christmas" and "A Christmas Carol", opening one gift on Christmas Eve, reading the nativity story from Luke on Christmas morning, and going out to watch a movie on Christmas Day.
What denomination is Nags Head Church? And what do you like most about being a worship leader/pastor?
Nags Head Church is affiliated with the Southern Baptist Convention, although we're about as un-traditionally Southern Baptist as any SBC church. I love investing my life and gifts into the lives of others...I believe that there is no greater calling than to use the resources God has given you to show love to others. It doesn't hurt that I get to rock with an awesome band a few times every week either.
You mentioned on twitter a while ago that your work at NHC was going to be cut back to more "seasonal" work. What are your hours like and how does it affect your family life?
I'm basically working a very part-time job right now...any hours I spend there and any money I make there is deducted from my work time and pay from the church. This gives me more opportunities to be out in the community and gives our church some extra financial help during these difficult economic times. This was a decision that our staff made to help our church family through this season, and it's also giving me some good exercise. It's not affecting my family life at all, except that my hours away from home are moved around a bit during the week.
What is one major thing that you would like to accomplish in the next few months?
Hmmm...I would love to lose at least 20 more lbs. I've lost a total of 30 lbs in the past three months, half of that before my surgery and half since.
Having seen a show on the OBX, I wonder if you talk like them?
Not sure exactly what that means...the OBX is very much a melting pot. Before my generation, there were very few people who we born and raised here...growing up, I only knew of a few people my age who were born here on the beach. My mom is from VA and has a bit of a southern accent...my dad was in a military family and lived in a few different places around the country, so I, and most young people who grew up here, really don't have a heavy accent. You will find some very strange accents if you talk with the older generations who were born and bred in places like Ocracoke and Wanchese, but there are very few of those folks left.
How do you - both of you - manage anxiety about the future?
To be honest, neither of us has much anxiety about the future. Yes, we have our moments, but we believe that our future is secure because of Christ, and that God always wants what is best for us, even if it doesn't appear so at the time. We certainly have a responsibility to make wise and healthy decisions that can affect our future, but none of us really has much control over what tomorrow will bring...so, why worry about it? Any time that we spend worrying about what could happen in the future is time we're stealing from our present. We accept the lot we've been given and the life we've already lived...Tricia's CF and Gwyneth's prematurity are as much a part of who we are as anything else in our lives, and based on the faithfulness of God in our past, to worry about the future would seem silly.
Is there anything specific we could pray for?
If you want to pray with us, we're praying that several things will fall in place very soon that will allow Gwyneth's growth and development to speed up. We're hoping that her glasses, her upcoming eye surgery, her upcoming ear tubes, and some new meds that she is on to help with some digestion issues (which should help with her appetite) will all help to spark her development.
Thanks again for the great questions! Answering them kept me busy this week while my girls were away in NJ. BTW, if you have any good follow-up questions based on this post, I'll be more than happy to try to answer them in the comments section.
Nate & Tricia
Because a lot of questions were about and for Tricia, I thought I'd let her answer those...
How about a "Tricia" update? How are her lungs? Is she feeling healthy and able to do everything she wants to do? What about her other CF-related issues? Is life after transplant better, worse or exactly what she thought it would be?
My lungs are doing well. They are not at %100 function, which still make exercise difficult for me, but I can't complain. The only thing I feel restricted by is full cardio workouts. I have other CF related issues and transplant related issues, but I don't feel like discussing those. Life post-transplant is definitely easier than pre-transplant and I wouldn't change it for anything.
What's the one thing you'd say to the parent of a child with CF?
Be consistent, encouraging, creative and show discipline when needed. I needed to be shown discipline a lot during my high school years (to keep on my meds and treatments). Be involved with the CF community and don't limit your child if possible. Allow them to dream and achieve all their dreams!
What's a typical day in your families life? Is Gwyneth a good sleeper? What do the girls do during the cold season (when they have to hibernate away from germs) to keep busy and entertained?
A typical day-there is none. Many days involve medical appointments, visiting friends, family, errands, going to the YMCA or park, traveling to church to visit papa or one of his games he is refereeing. Spending our evenings together for dinner, then bath, play, reading time and bed. During the MLB games, we visit G and G at night since we don't have cable.
What are your favorite parts about motherhood? What activities are her bonding times with Gwyneth?
I love all parts of motherhood except when Gwyn is sick. It's nice relating to both my mom and sisters during this season in life and sharing mothering experiences. It is also nice spending play dates with my friends who are also mothers.
I wondered how you were taught about Jesus when you were younger, and how you share your faith with Gwyneth?
Look at My Blog regarding the first question. Right now, just sharing my life and being an example. Using books like the Jesus Bible and some other stories that share values and character traits we hold dear. Lastly, spending time with friends and family who share the same Christian values we share.
Personality wise, who is Gwynethth more like?
I don't know yet. She is strong willed, silly, and very loving. I guess a lot like her papa now.
How do you manage anxiety about the future?
I trust in God daily and don't worry about the future. My personality tends to worry about daily, insignificant things.
The rest of the answers are from me (Nate).
I just want to know how that sweet baby girl of yours got to be so cute?!
I think that's a pretty self-explanatory question, considering most people say she looks "just like her papa".
I'd love a big Gwyneth update! How is she growing and what milestones is she hitting? Do you have any long-term concerns for her?
Gwyneth has actually been growing very little for the past few months. She has been plateaued around 18-19 lbs since July. When you see her in person, you immediately notice that she is very long and slender for a baby of her general weight, which means she doesn't have any of the usual fat rolls of a baby her size. She has three cousins who are all about a year younger than her and about her same weight right now, but they're all a few inches shorter than Gwyneth and much "chubbier".
Recently, she's learned to say "up" when she wants to be picked up (which gives her two words now). She's also recently learned to make a G sound, which sometimes sounds like a K instead. She's crawling all over the place, although her crawl is a little awkward looking (have you ever seen a Komodo Dragon walk?). She is scooting really well along our furniture, and she'll do a pull-up (with her feet coming off the ground) hanging from the kitchen table if you let her. Her upper body is very strong and pretty well coordinated, and we're hoping her legs catch up soon. And, she's learned how to blow kisses with her hand.
We don't have any long-term concerns for her.
Does Gwyneth still drink any kind of formula or is she on regular milk now, and baby food/real food?
Gwyneth still drinks formula to give her as many calories as possible. She's a picky eater, but we think that's in large part because of her other developmental issues. She's just now learning to feed herself with a spoon and fork, and we try to feed her just about anything we want to along with the formula. She's not big into baby food.
How do you/will you handle Halloween as Christian parents? Do you have any Scripture-based evidence to avoid Halloween, or do you see it as harmless fun?
We view Halloween as a neutral thing. Some people use it for evil, others for good, and some just like to have harmless, but pointless fun with it. Our church uses this holiday to serve our community by offering Trunk or Treat every Halloween night (click the link to learn more). We offer a safe and family friendly opportunity for people in our community to do traditional trick or treating with a twist. We offer carnival games, cotton candy, hotdogs, drinks, popcorn, giant moon bounces, and tons of other stuff, all for free. This year, we're expecting over 2500 people to come through our event, most of whom do not attend church anywhere and do not have a relationship with God. It's so much more fun and eternally impacting than barricading ourselves in our home out of fear, or even simply going out trick or treating just to serve ourselves. Anyone with children under 18 who is reading this is welcome to come!
What are your favorite parts about fatherhood and what do your bonding times with Gwyneth entail?
I love watching Gwyneth explore and learn new things. Since her growth and development has been so slow, we've had more time than most parents to enjoy having a small, dependent baby, and every new thing she learns to do is that much more exciting. I love her kisses and her smiles and laughs. I love caring for her...I hog most of her nightly baths, and enjoy fixing her bottles and medications (much the same way I enjoy caring for Tricia's medical needs). And, I love coming home for lunch and after work to see her smile and reach up to have me to take her in my arms. I also enjoy any opportunity that I get to spend with her by myself out in public...especially now that she's wearing her glasses...she attracts a lot of "what a cute baby" attention. :)
Also, how'd you pick you G's glasses?
Tricia picked out her glasses, and let me tell you, there is apparently an incredibly small market for tiny glasses because it took her forever to find what she was looking for. The brand is Miraflex. They're incredibly flexible and very difficult to break. We bought a size that fit her now but also has lots of room to grow. We've also ordered another pair from a different manufacturer, which we're hoping will arrive soon.
How do they work out the prescription for Gwyneth's glasses?
I can't tell you exactly how it works, but with some eye drops, prisms and other equipment, the doctor can determine her prescription. I can tell you that she has some fairly thick lenses.
Personality wise, who is Gwyneth more like?
We see a lot of both of us in her. She's definitely goofy like me, and very sweet like her mother. She's a sleepy-head and a talker like Tricia, and nosy and intense like me.
I was just wondering if Gwyneth is in early intervention?
Gwyneth sees an occupational therapist and a physical therapist once a week for an hour each. She also sees a speech therapist once every two weeks for an hour. Based on our experience, we'd encourage any family with a child who is qualified to receive early intervention to take advantage of it.
I wondered how you and Tricia were taught about Jesus when you were younger, and how you share your faith with Gwyneth?
We were taught, and we're teaching Gwyneth, that our faith in the living God is about life, about a moment by moment relationship with Him and those around us. Every decision we make comes out of our world view, and we hope that world view comes out of our relationship with God and our trust in the sacrifice of Jesus Christ. Like our parents before us, neither are we perfect...but, we're continually learning about loving God and loving others, and we hope that, as Gwyneth grows older, she'll hear and see our faith in action in the big and small ways in the things we say and do. We hope that our relationships with our family and friends will reflect God's love for Gwyneth, and that those same people will also help us to show Gwyneth what an authentic relationship with God is all about.
Although we hope to be Gwyneth's most effective teachers for many years, we also believe that more is caught than taught. Practically speaking, Tricia has already begun to spend time reading from a children's Bible with Gwyneth, we are teaching her about God's Word through songs and stories, and we involve her, as much as she can be involved, in our family prayer. We also bring Gwyneth along in as much of our adult lives as possible...she sees us serving in ministry at church, she goes with us to serve our community, she is present at our "small group", she comes to watch our band practice on Thursday nights, etc.
Do you have any favorite high calorie foods or recipes that I could use?
Ice cream.
Does G still use oxygen?
No...she hasn't been on oxygen for about a year now.
How is your gorgeous raven haired niece doing? Do her and your blessed white rose have fun playing together?
Evaine is doing very well. She's becoming very aware of her surroundings and is beginning to sit up on her own. She and Gwyneth get to spend time together each week, and it won't be long before they're both playing together all over the place.
I wondered how Jeff was getting on?
My brother-in-law is doing very well, and, in fact, he just received a clean bill of health this past week as he continues to remain in full remission. We're very happy for him and his family!
I wondered if you have noticed a big difference in the quality of sleep that you are now getting since your surgery and are mostly healed from it?
I haven't noticed a "big" difference in the quality of sleep, but I can tell that I'm not nearly as tired during the day. Tricia says I seem to be sleeping much more soundly, and I can tell when I wake up, that I'm often waking up from extended REM, which is something I rarely used to do. I'm planning on having another sleep study in a few months when everything is completely healed up to determine how much of a difference the surgery has made. Like I've said already, the surgery and recovery were much easier than I had expected it to be, and I'd recommend it to anyone who has serious health issues due to large tonsils.
I'm wondering if Tricia is diabetic on top of everything else, or if she needs insulin because of something to do with CF. Also, if she is diabetic, did you find that hospital staff really don't seem to know much at all about diabetes and how to control it?
Tricia is diabetic...she developed gestational diabetes while she was pregnant with Gwyneth (is that redundant?), which has persisted because of the transplant meds she is now on. Many TX patients develop diabetes.
We have had more issues with Tricia's endocrine team at the hospital than any other medical team...it took them forever to figure out how to control her diabetes, and we continue to have issues whenever Tricia is admitted. We know that her case is more complicated than most, because of her health history, her high fat, high caloric diet and her medications, but it can be frustrating. But, compared to the alternative, it's not such a big deal.
How do you balance Tricia and Gwyneth's health issues with having 2 pets? I know you did some serious renovations before you moved in, but have you developed any strategies for winning the battle against pet hair?
Both of our animals shed quite a bit, and along with a few other good reasons, we decided not to have any carpet in our house. All of our new floors are tile and laminate hardwood, and although we can see dirt and hair and other stuff a lot more than if we had carpet, it's also much easier to clean. We have one area rug in the living room, but that's also very easy to clean. We also had a high-tech air filtration system installed, which is a huge help. The doctors informed us that, as long as Tricia isn't constantly rubbing her face in their fur, the dog and cat shouldn't pose any issue for her.
What's the one thing you'd say to the parent of a child with CF?
I'd say, there is a great future for your child if that's what you hope for. There is almost no reason why a child born today with CF, diagnosed early on and given quality treatment can't live a nearly normal and long life. There are a few drugs that are just months away from hitting the market...these drugs have the potential to literally double the life expectancy of a child born today with CF. And, I truly believe that we are getting very close to finding a cure.
Are you guys getting a swine flu vaccine?
No, but we did all get the "normal" flu shot.What's a typical day in your families life? Is Gwyneth a good sleeper? What do the girls do during the cold season (when they have to hibernate away from germs) to keep busy and entertained? What TV shows do you and Tricia enjoy watching?
A typical day for us involves me getting up around 8am with Gwyneth. I'll spend a few minutes with her before taking her into our room to wake up mommy together. We'll spend some time snuggling in bed, and then get up to eat breakfast, shower, etc. I'm usually at work an hour or two later. The girls will often run errands in the morning before Gwyneth goes down for a nap around noon. I go home pretty often for lunch, and then back to work while Tricia either takes a nap or does some things around the house. Gwyneth usually sleeps for about 2 hours, and then she and Tricia will go out to spend some time with friends, at the park, beach, etc. I'm usually home from work around 5, and we eat supper together. While the weather's nice in the evenings, we take lots of walks, run errands, and spend time around the house reading books and playing with Meka. We always end the day with a bath for Gwyneth, reading a few books together, and singing a good-night song. Gwyneth is usually in bed around 9pm, and she'll usually sleep through the night until 8 the next morning.
During the cold season, we'll spend more time at home than usual, and lots of time hanging out with family and friends. Because Gwyneth is mobile and good at entertaining herself, it's much easier to stay busy.
We actually don't have cable...it's too big of an expense, and we know we'd end up spending way too much time in front of the tv if we could. We do watch a few shows on the internet, and we rent DVD's from time to time (and we'll hang out with friends or family if there's something we really want to watch...like playoff baseball!). Gwyneth watches some Baby Einstein every now and then, but for the most part, we don't spend a lot of time in front of the tv.
What are some Christmas traditions you want to start with Gwyneth? What were your favorite ones? How about Tricia's?
My mom always made a big deal about Christmas...we basically started celebrating the day after Thanksgiving, and growing up, we had too many traditions to count, most of which I would love to continue with Gwyneth. Some of my favorites include picking out a new ornament every year (mine were all nutcrackers and soldiers of some kind), putting up the live tree as early as possible and making a big deal about the decorating (we had a ton of very sentimental ornaments), listening to and singing Christmas songs 24/7, watching movies like "It's A Wonderful Life", "White Christmas" and "A Christmas Carol", opening one gift on Christmas Eve, reading the nativity story from Luke on Christmas morning, and going out to watch a movie on Christmas Day.
What denomination is Nags Head Church? And what do you like most about being a worship leader/pastor?
Nags Head Church is affiliated with the Southern Baptist Convention, although we're about as un-traditionally Southern Baptist as any SBC church. I love investing my life and gifts into the lives of others...I believe that there is no greater calling than to use the resources God has given you to show love to others. It doesn't hurt that I get to rock with an awesome band a few times every week either.
You mentioned on twitter a while ago that your work at NHC was going to be cut back to more "seasonal" work. What are your hours like and how does it affect your family life?
I'm basically working a very part-time job right now...any hours I spend there and any money I make there is deducted from my work time and pay from the church. This gives me more opportunities to be out in the community and gives our church some extra financial help during these difficult economic times. This was a decision that our staff made to help our church family through this season, and it's also giving me some good exercise. It's not affecting my family life at all, except that my hours away from home are moved around a bit during the week.
What is one major thing that you would like to accomplish in the next few months?
Hmmm...I would love to lose at least 20 more lbs. I've lost a total of 30 lbs in the past three months, half of that before my surgery and half since.
Having seen a show on the OBX, I wonder if you talk like them?
Not sure exactly what that means...the OBX is very much a melting pot. Before my generation, there were very few people who we born and raised here...growing up, I only knew of a few people my age who were born here on the beach. My mom is from VA and has a bit of a southern accent...my dad was in a military family and lived in a few different places around the country, so I, and most young people who grew up here, really don't have a heavy accent. You will find some very strange accents if you talk with the older generations who were born and bred in places like Ocracoke and Wanchese, but there are very few of those folks left.
How do you - both of you - manage anxiety about the future?
To be honest, neither of us has much anxiety about the future. Yes, we have our moments, but we believe that our future is secure because of Christ, and that God always wants what is best for us, even if it doesn't appear so at the time. We certainly have a responsibility to make wise and healthy decisions that can affect our future, but none of us really has much control over what tomorrow will bring...so, why worry about it? Any time that we spend worrying about what could happen in the future is time we're stealing from our present. We accept the lot we've been given and the life we've already lived...Tricia's CF and Gwyneth's prematurity are as much a part of who we are as anything else in our lives, and based on the faithfulness of God in our past, to worry about the future would seem silly.
Is there anything specific we could pray for?
If you want to pray with us, we're praying that several things will fall in place very soon that will allow Gwyneth's growth and development to speed up. We're hoping that her glasses, her upcoming eye surgery, her upcoming ear tubes, and some new meds that she is on to help with some digestion issues (which should help with her appetite) will all help to spark her development.
Thanks again for the great questions! Answering them kept me busy this week while my girls were away in NJ. BTW, if you have any good follow-up questions based on this post, I'll be more than happy to try to answer them in the comments section.
Nate & Tricia
Friday, August 7, 2009
Battle Ready
It might not look it, but this is a sign of trouble....
As most parents know, and as we're learning, once they start crawling and standing and exploring, the battle dominance and safety between parents and children over has only just begun. After over a month of putting it off, Tricia and I decided this morning (with Gwyneth's help) that our project over the weekend must be Gwyneth-proofing the house.
Just this morning our fearless, diapered, red-kneed trouble maker rediscovered the cat food, learned how to open the kitchen cabinets and decided that a very tall study lamb had to be more fun parallel to the floor. So, we're off to Home Depot and Walmart to stock up.
Got any tips, products, resources or creative battle strategies to share with us? Now's your chance to help us get starting with a victory!
Nate
As most parents know, and as we're learning, once they start crawling and standing and exploring, the battle dominance and safety between parents and children over has only just begun. After over a month of putting it off, Tricia and I decided this morning (with Gwyneth's help) that our project over the weekend must be Gwyneth-proofing the house.
Just this morning our fearless, diapered, red-kneed trouble maker rediscovered the cat food, learned how to open the kitchen cabinets and decided that a very tall study lamb had to be more fun parallel to the floor. So, we're off to Home Depot and Walmart to stock up.
Got any tips, products, resources or creative battle strategies to share with us? Now's your chance to help us get starting with a victory!
Nate
Thursday, May 28, 2009
Friday, May 15, 2009
May 15
On May 15, 2008, we brought you home for good from the hospital!
One year later, and we're pretty sure that we're never letting you go!
Monday, May 11, 2009
11:54pm
Gwyneth hasn't slept well for the past two nights, and it looks like tonight will be more of the same...according to her ped doc, she has Hand Foot and Mouth Disease (not to be confused with foot and mouth disease), with some strep throat type soars on the back of her mouth and throat...eating is not much fun, and sleeping is only possible at about 1-2 hours at a time...
Nate
Nate
Sunday, May 10, 2009
Perfect
This is what our Mother's Day looked like today...
Other than a feverish daughter and a bruised wife, it was basically perfect.
Nate
Other than a feverish daughter and a bruised wife, it was basically perfect.Nate
Tuesday, April 14, 2009
Falling To Sleep: The Step by Step Guide
Step 1: Be Happy and Playful
Step 2: Be Lethargic and Tired
Step 3: Be Grumpy
Step 4: Be Stubborn and Whiny
Step 5: Be Peaceful and Beautiful
Nate
Friday, April 3, 2009
A Nice Day
If nothing else, my birthday was much more relaxing this year than last. I spent most of the day at home with my girls, cleaning the house, watching movies, snuggling with Tricia, tickling Gwyneth. It was a very nice day.
Nate
Nate
Tuesday, March 17, 2009
A Few Of My Favorite Things (OBX)
Having grown up on the Outer Banks (OBX), I've just about seen and done it all. And, because the OBX is such a popular destination, I'm always getting emails and comments from people who are heading our way for a vacation. So I figured I'd write a post to offer some of my suggestions concerning my beautiful home. Note that most of the following is based on what you'll find during the summer...
Restaurants
Mama Kwans - The Pork Plate is one of the best meals ever. Tricia loves the Jawaiian Spiced Chicken. Great family atmosphere, although ask to sit away from the bar if you don't like smoke. Dinner and lunch are the same, except lunch is smaller and cheaper.
Grits Grill - Best breakfast and friendliest staff on the beach. Fun diner atmosphere (which you don't find very often down south). Not open after mid-afternoon. Tell Patrick I said "hi".
Basnight's Lone Cedar Cafe - Best southern cooking and great seafood. Call ahead as they're not open some days for lunch. You'll leave full. Best club sandwich ever, and the mashed potatoes are excellent. Tricia loves the sweet potato crunch) Great view of the sound...ask for a seat with a view.
John's - The local favorite. Best milkshakes in the world (peanutbutter chocolate is our fav), and located right on the beach. Try the dolphin (mahi mahi) boat for a local taste. Only open in the summer, never open on Wednesdays. (they open this weekend for the first time since last fall!!!)
Kill Devil's - Great frozen custard (a yankee import)...try the coffee flavor if it's available. If you like food from the Jersey boardwalk, this is the place to go.
Rita's - Gilati are the ONLY thing I get here...not because nothing else is good, but because they are the best. Unless, of course, the Bahama Mama Mysto is available... *drool*
Orange Blossom Bakery - The BEST Apple Uglies you'll ever eat in your life...I've been eating them since I was young. If you're ever down near Hatteras (in Buxton), stop by for breakfast or brunch.
You can't go wrong if you pick a local restaurant that's been around for more than a few years (and there are plenty of options). Try the NC BBQ at least once (one of my favorite things to eat, ever), and stay away from all-you-can-eat seafood places (unless you enjoy waiting in line for an hour to eat in a loud, messy, cramped environment). The weekends are the busiest time for local restaurants in the summer, so I highly recommend you plan on eating out during the middle of the week.
And, if you're planning on bringing your own food so that you can save some money by not eating out every meal, don't wait until you arrive on Saturday or Sunday afternoon to go to the grocery store. Especially if you're arriving on the weekend, it's probably cheaper and guaranteed to be a lot less stressful if you bring your groceries with you instead of joining every other tourist waiting in line at Food Lion.
Beaches
Although none of our beaches are incredibly crowded, the further south you go, the fewer people you'll see. Nags Head beaches are our favorites because of this. Kill Devil Hills are typically the most crowded and smallest. For a full day at the beach, a drive north to Corolla (don't attempt this on the weekends) or a drive south to Coquina Beach or Hatteras are the best...very few people and lots of big open spaces.
The great thing about beaches here is you'll never have to pay for parking, never have to pay to be on the beach, never have to deal with people telling you where exactly to swim (unless the red flag is up), never have to deal with a lot of trash. Parking can be hard to find at times, but you'll find it eventually, and it will probably never be more than 50 yards from the sand. The beach is the busiest between 11am and 3pm, so go early or late if you want to easily find parking and avoid the biggest crowds.
If you're looking for the good surf spots, ask around in the local surf shops (although, we'll never tell you where the best spots are). Because our surf is dictated by the ever-shifting sandbars and other factors, good surfing can literally change from one week to the next.
Local Attractions
The Outer Banks is full of great history and unique attractions, including several national parks. Here are a few of my favorites.
Wright Brothers National Memorial - If you're into history, you can easily spend the better part of a day in the museum and walking around the park. (hint - wear shoes and socks to make the short hike up the monument hill easier and to avoid getting pricked by the dense cactus that cover most of the lawn)
Jockey's Ridge - The tallest, natural sand dune system on the East Coast. One of my favorite places in the world. (hint - park in the national park parking lot to visit the museum, park at Kitty Hawk Kites to visit the kite store, or visit the park in the morning or evening so that the sand is cool)
Fort Raleigh / The Lost Colony - The first English colony in the New World. A large national park as well as a great live show. (hint - bring a few extra bucks and schedule a few extra hours to walk through the adjacent Elizabethan Gardens)
The Graveyard of the Atlantic Museum - If you're into shipwrecks (the coast of NC has thousands of shipwrecks), ghost stories and pirates, check it out!
Chicamacomico Life Saving Station - One of the old lifesaving stations set up along the coast to rescue victims of shipwrecks...one of the coolest reenactments you'll ever see. (hint - check the website for daily/weekly schedule of events)
Lighthouses - NC is famous for it's lighthouses, and there are no less than four within driving distance. The Hatteras Lighthouse is the most famous and interesting. (hint - plan for a full day if you're going to try and see more than one lighthouse)
Downtown Manteo - This is Tricia's favorite spot to get away and walk and shop. A small, "quaint" little area directly on the water, with bookstores, art galleries and coffee shops and more. (hint - park near the water and make the short walk over to the Roanoke Island Festival Park for some history, and eat at Poor Richard's for lunch)
There is so much more to see and do, especially if you love history and the outdoors, so make sure you do your research and find out all that the OBX has to offer.
A Few Other Things
> Lodging - No, I can't tell you what hotel or condo or beach house is the best and cheapest place to stay...I live here, which means I don't pay attention to those kinds of things... If you can read this blog, you can also do a quick search on the internet to determine your options...and there are plenty of options, but not so much if you wait until you arrive to book a room.
> Please, always swim near a lifeguard, ask about red flags and rip currents, and respect the ocean. My dad is the chaplain for Nags Head, which means he hears about any emergency situation that takes place up and down the beach. Nearly every day, people (almost always tourists) are seriously injured or killed here because they don't respect the power of the ocean. The ocean is always dangerous, but risks can be reduced if you know what you're doing and heed the advice of those who know. (and, don't try skimboarding if you're old and overweight...I promise it won't end well)
> Please, don't leave your trash on our beaches. If you really must litter, take it home with you and throw it in YOUR lawn. Enough said.
> Please, know where you're going and how to get there before you get in your car... The number one cause of the daily traffic accidents here are tourists who get confused and do something stupid out on the roads. There are FREE local maps available in just about every shop and restaurant. I'm tempted to say a lot more here, but I'll be nice.
Nate
Restaurants
Mama Kwans - The Pork Plate is one of the best meals ever. Tricia loves the Jawaiian Spiced Chicken. Great family atmosphere, although ask to sit away from the bar if you don't like smoke. Dinner and lunch are the same, except lunch is smaller and cheaper.
Grits Grill - Best breakfast and friendliest staff on the beach. Fun diner atmosphere (which you don't find very often down south). Not open after mid-afternoon. Tell Patrick I said "hi".
Basnight's Lone Cedar Cafe - Best southern cooking and great seafood. Call ahead as they're not open some days for lunch. You'll leave full. Best club sandwich ever, and the mashed potatoes are excellent. Tricia loves the sweet potato crunch) Great view of the sound...ask for a seat with a view.
John's - The local favorite. Best milkshakes in the world (peanutbutter chocolate is our fav), and located right on the beach. Try the dolphin (mahi mahi) boat for a local taste. Only open in the summer, never open on Wednesdays. (they open this weekend for the first time since last fall!!!)
Kill Devil's - Great frozen custard (a yankee import)...try the coffee flavor if it's available. If you like food from the Jersey boardwalk, this is the place to go.
Rita's - Gilati are the ONLY thing I get here...not because nothing else is good, but because they are the best. Unless, of course, the Bahama Mama Mysto is available... *drool*
Orange Blossom Bakery - The BEST Apple Uglies you'll ever eat in your life...I've been eating them since I was young. If you're ever down near Hatteras (in Buxton), stop by for breakfast or brunch.
You can't go wrong if you pick a local restaurant that's been around for more than a few years (and there are plenty of options). Try the NC BBQ at least once (one of my favorite things to eat, ever), and stay away from all-you-can-eat seafood places (unless you enjoy waiting in line for an hour to eat in a loud, messy, cramped environment). The weekends are the busiest time for local restaurants in the summer, so I highly recommend you plan on eating out during the middle of the week.
And, if you're planning on bringing your own food so that you can save some money by not eating out every meal, don't wait until you arrive on Saturday or Sunday afternoon to go to the grocery store. Especially if you're arriving on the weekend, it's probably cheaper and guaranteed to be a lot less stressful if you bring your groceries with you instead of joining every other tourist waiting in line at Food Lion.
Beaches
Although none of our beaches are incredibly crowded, the further south you go, the fewer people you'll see. Nags Head beaches are our favorites because of this. Kill Devil Hills are typically the most crowded and smallest. For a full day at the beach, a drive north to Corolla (don't attempt this on the weekends) or a drive south to Coquina Beach or Hatteras are the best...very few people and lots of big open spaces.
The great thing about beaches here is you'll never have to pay for parking, never have to pay to be on the beach, never have to deal with people telling you where exactly to swim (unless the red flag is up), never have to deal with a lot of trash. Parking can be hard to find at times, but you'll find it eventually, and it will probably never be more than 50 yards from the sand. The beach is the busiest between 11am and 3pm, so go early or late if you want to easily find parking and avoid the biggest crowds.
If you're looking for the good surf spots, ask around in the local surf shops (although, we'll never tell you where the best spots are). Because our surf is dictated by the ever-shifting sandbars and other factors, good surfing can literally change from one week to the next.
Local Attractions
The Outer Banks is full of great history and unique attractions, including several national parks. Here are a few of my favorites.
Wright Brothers National Memorial - If you're into history, you can easily spend the better part of a day in the museum and walking around the park. (hint - wear shoes and socks to make the short hike up the monument hill easier and to avoid getting pricked by the dense cactus that cover most of the lawn)
Jockey's Ridge - The tallest, natural sand dune system on the East Coast. One of my favorite places in the world. (hint - park in the national park parking lot to visit the museum, park at Kitty Hawk Kites to visit the kite store, or visit the park in the morning or evening so that the sand is cool)
Fort Raleigh / The Lost Colony - The first English colony in the New World. A large national park as well as a great live show. (hint - bring a few extra bucks and schedule a few extra hours to walk through the adjacent Elizabethan Gardens)
The Graveyard of the Atlantic Museum - If you're into shipwrecks (the coast of NC has thousands of shipwrecks), ghost stories and pirates, check it out!
Chicamacomico Life Saving Station - One of the old lifesaving stations set up along the coast to rescue victims of shipwrecks...one of the coolest reenactments you'll ever see. (hint - check the website for daily/weekly schedule of events)
Lighthouses - NC is famous for it's lighthouses, and there are no less than four within driving distance. The Hatteras Lighthouse is the most famous and interesting. (hint - plan for a full day if you're going to try and see more than one lighthouse)
Downtown Manteo - This is Tricia's favorite spot to get away and walk and shop. A small, "quaint" little area directly on the water, with bookstores, art galleries and coffee shops and more. (hint - park near the water and make the short walk over to the Roanoke Island Festival Park for some history, and eat at Poor Richard's for lunch)
There is so much more to see and do, especially if you love history and the outdoors, so make sure you do your research and find out all that the OBX has to offer.
A Few Other Things
> Lodging - No, I can't tell you what hotel or condo or beach house is the best and cheapest place to stay...I live here, which means I don't pay attention to those kinds of things... If you can read this blog, you can also do a quick search on the internet to determine your options...and there are plenty of options, but not so much if you wait until you arrive to book a room.
> Please, always swim near a lifeguard, ask about red flags and rip currents, and respect the ocean. My dad is the chaplain for Nags Head, which means he hears about any emergency situation that takes place up and down the beach. Nearly every day, people (almost always tourists) are seriously injured or killed here because they don't respect the power of the ocean. The ocean is always dangerous, but risks can be reduced if you know what you're doing and heed the advice of those who know. (and, don't try skimboarding if you're old and overweight...I promise it won't end well)
> Please, don't leave your trash on our beaches. If you really must litter, take it home with you and throw it in YOUR lawn. Enough said.
> Please, know where you're going and how to get there before you get in your car... The number one cause of the daily traffic accidents here are tourists who get confused and do something stupid out on the roads. There are FREE local maps available in just about every shop and restaurant. I'm tempted to say a lot more here, but I'll be nice.
Nate
Saturday, March 14, 2009
Friday, February 20, 2009
Meka & Ralphie
Ralphie the cat has settled in nicely to the new house and he and Meka the pug are back to being good friends...they play and wrestle several times a day, and sometimes they just like to sit around and do nothing...
Nate
Nate