With each new hurdle for Gwyneth and Tricia comes a new opportunity to learn and grow and enter into community with new people. Just a little over two years ago, we were primarily focused on Cystic Fibrosis and were just getting familiar with Organ Donation and Transplantation. In the time since, we've also become personally familiar with Diabetes, Premature Birth, Lymphoma, and several other health-related topics.
As of yesterday, we have a new topic to become invested it. Gwyneth's ABR shows that she has severe hearing loss in her right ear and mild to moderate hearing loss in her left ear. The hearing loss in both ears is most likely premanent. We're adjusting to this news very well, but we are just getting our feet wet to the idea that our daughter is definitely "hearing impaired", so there is a lot of new information and possibilities to sort through.
There is still a lot of unkown, as two of the tests yesterday showed conflicting results. Over the next few weeks, we'll be working with her at home to try and get a handle on exactly what hertz and decibels she can and can't hear with either/both ears, taking her to a few more hearing tests, and getting her fitted for hearing aids. We're ready for this new challenge, and we are very glad to know for certain about her hearing loss so that we can begin to learn how best to accommodate her needs. With every new challenge, we continually remind ourselves of the joy that Gwyneth brings to our lives and the simple fact that the odds were against her even being alive when she was given to us. We continue to be thankful.
Some good news...Gwyneth was totally in a great mood, although a little loopy, when she came out of the sedation yesterday. She's still sleeping this morning as I write this.
Thanks for your prayer and encouragement as we adjust to this new adventure. I'll post more when I have the time and after we've been able to wrap our minds around it. In the meantime, we'll be driving to Durham today...Tricia's regularly scheduled transplant clini begins early tomorrow morning. We're hoping to be able to see Gwyneth's doctors with this new information while we're there.