We are coming up on three weeks of Tricia being sick. She has not been sick for more than a few days since she was declared in remission from cancer. I refuse to worry, but it is frustrating, especially for Tricia.
Although she was discharged from the hospital last Wednesday, she was discharged with the diagnosis of RSV and (walking) pneumonia. Since coming home, she has no energy and has only left the house once and has spent almost all of her time in bed or on the couch enjoying time with our kids. She began complaining of having trouble breathing after coming home, and she has been sleeping most nights with a nasal cannula for O2. She has almost no appetite and has lost quite a bit of weight. She has had a fever off and on about every other day.
Her doctors are concerned for her, and we are scheduled to return to Duke next week unless they decide she needs to come earlier.
She is very frustrated and a little scared. It's difficult for somebody who has been through what she has been through and then to live life so well for the past few years to get sick like this again. It brings back a lot of bad memories and fears for her. And, CFers are notorious for their ability to know when something in their body (especially their lungs) is not working correctly even before the doctors can detect it.
We honestly expect that this will pass, but it is frustrating in the meantime. RSV and pneumonia are two things that take a long time to recover from for those with lung disease and a suppressed immune system. There are some very high risks that come with RSV and pneumonia, including greater lung infection and a specific type of lung rejection that is caused by RSV. Basically, Tricia is in a place where it could easily get better, or could easily get much worse.
I would appreciate your sincere prayers for Tricia.