Tricia was discharged from the hospital yesterday afternoon. She has been placed on several new meds to help maintain her "health" and to help rid her body of the C Diff. As long as she is healthy enough, she will be receiving the CAMPATH this Friday morning around 11am at Duke. We are staying with some awesome friends until then, and if everything goes well with the CAMPATH treatment, we will be home by Friday evening.
Specifically, please pray that the C Diff is gone by Friday and that there are no other infections in her body before or after. Any infection could be life-threatening with the CAMPATH.
As it has been explained to us, CAMPATH is a type of chemotherapy that attacks the same cells that AIDS attacks, so being treated with CAMPATH is very similar to having AIDS. Tricia's immune system will be shot for a long time, even up to a year, which means she will be a huge risk to become sick from any number of other illnesses. She will be wearing a mask out in public and will be avoiding anywhere and anybody that could make her sick. Also, CAMPATH can cause severe fatigue...this was Tricia's biggest issue with her cancer treatment 4 years ago.
The goal with the CAMPATH treatment is that the rejection will be stopped, that her PFT's will improve, and that she will be able to regain some of her lost body weight. We have been told though, before things get better, they more than likely will get worse.
Our life is about to drastically change. We would appreciate your prayers for Tricia's safety over the next several months. The slightest infection or illness could quickly lead to very bad things. Also, your prayers for me as I relearn how to balance my life around Tricia's health needs. For our extended family as they provide us with support and help, especially in caring for Gwyneth.