Wednesday, November 26, 2008

Paint!

Here's a quick little update on the painting. The two bedrooms pictured below are just about done, except for the trim. The living room still needs a few more coats, especially the red.

Gwyneth's Room


Guest Bedroom



Living Room



Didn't even realize it until after that our paint matches our door
(not for long, as the door is getting a face-lift as well)


Nate

Tuesday, November 25, 2008

CF Ignorance

It continues to amaze me how so many people can be so ignorant about the most common, fatal, genetically inherited disease among children in North America...

Raising awareness about Cystic Fibrosis might be the biggest reason I started and continue this blog...and, even though stories like the one above are sad, many people up north are being educated about the disease for the first time because of the national publicity this story is receiving. And, for that, I'm thankful.

Nate

Monday, November 24, 2008

More House Pics

Here are a few more pics of the renovations from last week...

The Living Room Ceiling


The Floors, Post-Popcorn


The Kitchen


The Master Closet


The Backyard




Nate

Sunday, November 23, 2008

House Tour (Part 2)

This was filmed last night...hoping to start on the floors this week and have most of the painting done by next weekend!



Nate

Saturday, November 22, 2008

House Update

The house is moving along faster than I expected, especially considering that I've been sick...we've had a ton of help from some pro friends and family (painters, drywallers, paper hangers, etc.). I am feeling better today (36 hours seems to be about how long it usually takes for a fever to break for me), and I was able to get in on the painting fun.

We've got most of the house primed now that all of the popcorn ceiling has been removed and replaced with knockdown. Tricia and I purchased most of our paint today, and the living room ceiling is done and the guest bedroom now has it's first coat.

Tomorrow, I'll post the next edition of the video house tour...you should see a remarkable difference.

Gwyneth is also doing better...a little bit of snot and a scratchy throat seem to be all that is remaining.

Thanks!

Nate

Thursday, November 20, 2008

Finally...Good News!

OK, this is about to get even more confusing...

It APPEARS (key word here) that the lymphoma is gone from Tricia's body! The last few biopsies have shown no lymphoma, and the x-rays from yesterday show the spots in her lungs and the spot in her chest to be shrinking. The last biopsy of her chest DOES SHOW an infection, which Tricia has been receiving antibiotics for since last week.

The doctors believe that the spot in Tricia's chest (outside of the lungs) that showed up for the first time a month ago never was lymphoma. They also believe that the spots in Tricia's lungs (where the lymphoma had been) are now infection spots as well. It is ASSUMED that the chemo did indeed do it's job, and that the infection is presenting itself in some of the same spots as the lymphoma.

Trust me, after having been told over a month ago that the cancer was still present in her lungs, we were also confused...we have spent the last month assuming that was true, when, in fact, that was only what was assumed to be true by the doctors (see This Post).

To better help us understand, we asked the oncologist to draw out the time-line of events...

June 16 - Tricia is diagnosed with PTLD (Lymphoma) when a biopsy comes back positive.

June 18 - Tricia receives the first of four rounds of Rituximab.

July 22 - Via a CT Scan, it is determined that the Rituximab did not do anything to the lymphoma.

July 23 - Tricia receives the first of six planned rounds of R + CHOP, a more aggressive form of chemotherapy.

October 15 - After four rounds of R + CHOP, a scan shows that some of the spots in Tricia's lungs are gone, while others have grown. A new spot around a lymph node in Tricia's chest outside of the lungs has developed. It is assumed that the spots in her lungs are still the lymphoma, and that the spot in her chest is either lymphoma or an infection. The remaining two rounds of chemo are terminated. A successful biopsy of the area in the chest is performed.

November 10 - We finally learn that the results of the chest biopsy shows that this spot is an infection and not lymphoma. We are still told that the spots in her lungs are assumed to be lymphoma.

November 19 - We are told by the oncologist that, in fact, they now believe the lymphoma was gone by October 15. It is now assumed, due to the biopsies showing no cancer and the x-rays showing a reduction in size of the spots that an infection has taken over some of the spots where the cancer was.

The oncologist explained to us that they can't be positive about knowing if Tricia's body is cancer free until either a more invasive, successful biopsy is performed or until the scans and x-rays show no more spots...he explained, at this point, there are three immediate options:

1) Start an even more aggressive regimen of chemo leading up to a bone marrow transplant.

2) Perform an invasive, surgical biopsy (which includes deflating a lung and inserting a chest tube) to get some samples from the remaining spots of the lungs to determine if the lymphoma is still present.

3) Wait until the end of Tricia's current 30 day anti-biotic treatment (for the infection) and rescan to determine if the spots continue to shrink.

Because the first option would be incredibly risky, especially due to the fact that the doctors now assume the cancer is gone, and the second option might also prove worthless, the obvious choice (of the docs and Tricia) is to wait. It's been too long since her last chemo treatment to restart the remaining two treatments (not completing all six of the chemo rounds could prove to be detrimental in the future), so we'll return to Duke in about a month, hoping for some more good news.

Anyway, I hope all of this info helps to make the turn of events more clear for you. The bottom line is that the doctors are very optimistic that Tricia is now cancer free. It was surprising news to us, and I think it might take longer for this good to set in, especially considering that we will continue to be cautiously optimistic until we know for certain that the lymphoma is gone.

Thank you for your encouragement and prayer, and Thank God for providing some good news! We look forward to enjoying Tricia's health as we prepare to move into the new house and spend lots of time with family over the upcoming holidays!

Nate

BTW, I now have a cold and fever (and have been quarantined), which is why I haven't had a good chance to collect my thoughts and post until now. Thanks for your patience.

Tuesday, November 18, 2008

Sick Baby

Gwyneth has her first cold (which is amazing at 10 months old). Lot's of nose snot and eye boogies and a little bit of drainage and coughing. Fortunately, she was already scheduled for an appointment with her ped today...the doc said it's only in her head and not in her chest, so we'll just keep her nose clear and wait it out and let her build up some antibodies.

Also, Gwyneth was weighed today...11lbs 12oz!!! She has literally gained about one pound per month since January, which is great.

We're heading to Durham this afternoon. Tricia has two appointments at Duke tomorrow, one with her TX team and one with the cancer docs. We're assuming we'll be told what the next step is for her lymphoma treatment, but at this point (having waited over a month for this info), nothing would surprise us. With Gwyneth in tow, you may not hear from me again about the latest news until Wednesday night or even Thursday morning.

Thanks!

Nate

Monday, November 17, 2008

New Pics










Nate

Demo!

Yes, there are easier ways to remove tile, but not when it's been adhered to cement which has been tacked onto pre-existing vinyl...plus, a hammer is a lot more fun.


This is the partition that Tricia and I were arguing about in the video...and yes, there are better ways to remove it, but again, this is a lot more fun.

Nate

Sunday, November 16, 2008

First Toy Assembly

On Wednesday, I embarked on my first large toy assembly. Not nearly as complicated, frustrating or time consuming as I expected.










Good practice for laminate flooring, me thinks...

Nate