Saturday, July 21, 2012

Cochlear Implant Surgery Report

Warning...a photo with blood below...

Gwyneth's surgery went very well.  Took about 3 hours, and before they woke her up, they tested the device and took an x-ray to make sure it was positioned and working correctly.  It was an outpatient surgery, so we were at our hotel no more than two hours after the surgery ended.

Gwyneth always wakes up from anesthesia very grumpy (we've been told some people react this way).  She remained grumpy until she fell to sleep late that night.  She was feeling a little better on Friday morning.

Tricia spent Friday morning at Duke beginning the transplant evaluation process.  And, we were back home by 3:30 that day.  By bedtime last night, we had weened Gwyneth off the heavy pain meds and she was showing signs of "normalcy".  This morning, Gwyneth woke up feeling much better, and we were able to take her bandage off.  By bedtime tonight, she was full of energy and laughter...amazing how quickly she recovers.

We return next week for a post-op appointment to make sure everything is healing well.  In 3-4 weeks, we return again to activate the cochlear implant and run some tests to get it set up to best help her.  We are very excited!  Thank you for your prayers!


Thursday, July 19, 2012

Wednesday, July 18, 2012

Cochlear Implant Surgery

After about a year of research and discussion and prayer, we have decided to move forward with a cochlear implant surgery for Gwyneth.  While she only has moderate hearing loss in her left ear, she has all but complete hearing loss in her right ear.  Because of her hearing loss, her speech is very delayed, and only those who spend a great deal of time with her are able to understand more than a few of her words.

Gwyneth will receive an implant only in her right ear and will continue to use her hearing aid in her left ear.  The surgery is schedule for tomorrow, July 19, and about a month later we will return to the hospital to have the implant "activated".


Tuesday, July 17, 2012


Some amazing friends approached me last week to inform me that they have organized a fundraiser to help with Tricia's medical bills. Such amazing friends we have!  The information is below in case you would like to attend. You can also find out more by checking the Facebook Event Page.


Monday, July 16, 2012


We got word a few weeks ago that Tricia's medical team is moving forward with a plan to get Tricia back on the transplant list for a second double lung transplant.  We are waiting for the word from her team to know what the timeline is, so we really don't have much to tell you other than that.  We are still praying that the CAMPATH will work and reverse this rejection, and would appreciate your continued prayers about this as well.


Friday, July 13, 2012

July 13 Update

Nothing much new to share with you.  Tricia is feeling about the same, about every other day is a "good" or "bad" day.  On the good days, she is able to get out of the house and spend some time with friends and family, on the bad days she spends a lot of time in bed.  Our friends and family have been a huge help, spending time with the kids so I can keep as "normal" a work schedule as possible, providing meals and just spending time with Tricia.

We are blessed.


Tuesday, July 3, 2012

Bad Report

We were back at Duke yesterday, and the report was not good.  If the CAMPATH is working, her Pulmonary Function Tests should be showing improvement and her weight should be stabilized if not increasing.  But, her PFTs and weight have both dropped since our last visit a few weeks ago.  In addition, she has developed a sinus infection, which will be incredibly dangerous if it is not dealt with quickly.

Tricia needs things to turn around very soon and very quickly.