Tricia and I have been invited to be the keynote speakers at this year's Cystic Fibrosis Education Day at Duke University Medical Center on Saturday, September 10. I will post more details later, but I wanted to let you know now in case anyone would like to attend with us and say hello.
Nate
Tuesday, August 2, 2011
Monday, August 1, 2011
Surgery Today
1:25 - Tricia is in her room, feeling some pain, and throwing up from the pain meds.
12:50 - Tricia is being moved to her room. She got her wish to stay on the CF floor. Should see plenty of familiar faces! I still haven't seen her...
9:40 - Surgery went well. Waiting to see her.
9:35am - Tricia is out of surgery. Waiting for the consult with the surgeon.
8:00am - Surgery just began.
7:30am - They just rolled Tricia into the OR. Should be about 2.5 hours.
We report to the hospital at 5:30am (who picks these times?!?!) for a 7:30am surgery. I'll update on this post throughout the day, although we don't expect anything very exciting to happen. Thanks for your prayers!
Nate
12:50 - Tricia is being moved to her room. She got her wish to stay on the CF floor. Should see plenty of familiar faces! I still haven't seen her...
9:40 - Surgery went well. Waiting to see her.
9:35am - Tricia is out of surgery. Waiting for the consult with the surgeon.
8:00am - Surgery just began.
7:30am - They just rolled Tricia into the OR. Should be about 2.5 hours.
We report to the hospital at 5:30am (who picks these times?!?!) for a 7:30am surgery. I'll update on this post throughout the day, although we don't expect anything very exciting to happen. Thanks for your prayers!
Nate
Tuesday, July 26, 2011
Counting
Gwyneth is in the stage where she counts everything. So fun! She can count all the way to ten, if you can understand what she's saying, although she skips seven every time.
Nate
Nate
Another Surgery
Tricia will be having surgery next Tuesday at Duke to remove her gall bladder. The way it has been explained to us is, her gall bladder is basically not functioning. This could be the cause of the stomach pain she's been experiencing, and we're hoping that this surgery will take that pain away. This is not an emergency surgery, as we've known about it for several weeks now. She's been told to expect to be in the hospital for at least one night, maybe more.
Nate
Nate
Thursday, July 21, 2011
A Warning to Apple Mac Customers!
If you're not an Apple customer, just skip ahead to the photo of Gwyneth...
I've been a huge and loyal Apple customer for 6 years...never once have I had any major issues. Today, I upgraded to the new Apple OS X Lion operating system on my very new work computer. After installing the $29 upgrade, I discovered that none of my Microsoft Office 2004 applications are compatible with Lion.
95% of my work is done using these applications: Word, PowerPoint, Entourage (email), Excel, which means, my nearly brand new Apple computer is now useless to me unless I either want to spend the money to purchase an external hard drive and reinstall OSX Snow Leopard or if I want to spend another $150 for the newest version of the Office suite.
I thought I had done my research, but not once did I read any kind of warning from Apple telling me these issues would take place if I went ahead with the upgrade (yes, there are warnings out there, but I missed them all and none of them were communicated to me during the upgrade process). Apple customer no-service was completely unwilling to take responsibility or to offer me any direct help to resolve this issue. To say I'm disappointed in Apple (as a huge and loyal Apple customer) is an incredible understatement.
All of that to say, maybe this short blog post will keep one of you from making this same mistake and losing faith in Apple.
Now, here's a photo of Gwyneth that makes me feel happy and helps me remember that even Apple can't steal my joy.
Nate
I've been a huge and loyal Apple customer for 6 years...never once have I had any major issues. Today, I upgraded to the new Apple OS X Lion operating system on my very new work computer. After installing the $29 upgrade, I discovered that none of my Microsoft Office 2004 applications are compatible with Lion.
95% of my work is done using these applications: Word, PowerPoint, Entourage (email), Excel, which means, my nearly brand new Apple computer is now useless to me unless I either want to spend the money to purchase an external hard drive and reinstall OSX Snow Leopard or if I want to spend another $150 for the newest version of the Office suite.
I thought I had done my research, but not once did I read any kind of warning from Apple telling me these issues would take place if I went ahead with the upgrade (yes, there are warnings out there, but I missed them all and none of them were communicated to me during the upgrade process). Apple customer no-service was completely unwilling to take responsibility or to offer me any direct help to resolve this issue. To say I'm disappointed in Apple (as a huge and loyal Apple customer) is an incredible understatement.
All of that to say, maybe this short blog post will keep one of you from making this same mistake and losing faith in Apple.
Now, here's a photo of Gwyneth that makes me feel happy and helps me remember that even Apple can't steal my joy.
Nate
Tuesday, July 19, 2011
Tuesday, July 5, 2011
Friday, June 24, 2011
Good Reports
We made another 24 hr trip to Duke this week for several appointments for both girls. Good reports all around. Tricia lungs continue to show no signs of infection. Gwyneth continues to grow and develop, and she has finally broken the 25 lb mark...only took her about 2 years to go from 20 to 25!
Gwyneth had her first visit with a new doctor. She is now officially diagnosed with mild cerebral palsy, which we had assumed for a now. She continues to wear her AFO (ankle braces), but is making great progress. She is falling less and less while walking on her own, and is now able to step up and down short steps.
We're also making plans for Gwyneth to have another dual surgery...eye muscle surgery for her stabismus which has returned, and another ear tube placement as her first set has recently fallen out and she is continuing to experience ear infections. Hopefully these can both happen on the same day in the same ER as before.
While we were at Duke waiting for mommy to get done with her appointments, Gwyneth and I walked over the the gardens for a few shots...
Nate
Gwyneth had her first visit with a new doctor. She is now officially diagnosed with mild cerebral palsy, which we had assumed for a now. She continues to wear her AFO (ankle braces), but is making great progress. She is falling less and less while walking on her own, and is now able to step up and down short steps.
We're also making plans for Gwyneth to have another dual surgery...eye muscle surgery for her stabismus which has returned, and another ear tube placement as her first set has recently fallen out and she is continuing to experience ear infections. Hopefully these can both happen on the same day in the same ER as before.
While we were at Duke waiting for mommy to get done with her appointments, Gwyneth and I walked over the the gardens for a few shots...
Nate
