Gwyneth's Great Strides Page!

Gwyneth is three and a half, and with our Great Strides Walk for Cystic Fibrosis coming up this Saturday, we thought she was old enough to begin helping us raise money to find a cure for CF. Please, take the time to check out Gwyneth's Great Strides Page and consider donating to help us find a cure for CF!!!

Nate

Come Outside and Play

Chatting Live Right Now

Tricia and I are chatting live with you right now about CF at http://www.justin.tv/dukecfcenter#/w/1746729760

Nate

Live Video - Duke's Cystic Fibrosis Education Day

From the kind people at Duke:

For those interested in following CF Education Day this Saturday via the web, we use a free (advertising-funded) website that is not affiliated with Duke to carry the broadcast. The web link is http://www.justin.tv/dukecfcenter and it will be live on Saturday when the speakers are presenting. There is also a text chat window where people at home can type questions. One of our CF center staff will be monitoring the chat and can read the questions aloud when the presenters take questions.

Users at home do not need an account log in to Justin.tv. The chat is open to "anonymous" users, and they will appear as "justintv42738965" or some combination of numbers. This is beneficial in protecting our patients' privacy, but the risk is that sometimes random users (not affiliated with our CF center) will drop by and post in our chat area.

With that in mind, and knowing that we can't control what ads are presented by the service, I do recommend parental guidance if families are watching at home. I would hate for a child to see something that their parents would not want them to view (violent video game ad or similar). It is possible to view the video in fullscreen mode and this may limit the intrusiveness of advertisements.

Hurricane Irene

We are safe and sound, out house is dry. But, the flooding here is historic, never been anything like it. Many people are still without power, some without water or any help because of damaged roads. Thank you for prayer for our community. It will take a long time to recover from this. I'll post some photos and links when I can.

Nate

CF Education Day Update

Below is the flier (click on it to view larger size) for the event with all the information you should need to attend. Again, this is a free event, but they do want you to register so they can anticipate the number of people attending and can order the correct number of lunches. Thanks!

New Glasses

First, thank you for praying for Tricia. She is nearly fully recovered from her surgery. Yet to know if the surgery has made a difference, but we're just happy that she's back on her feet and back to "normal".

Gwyneth's new glasses arrived yesterday! Her prescription changed, and we were told that it would be cheaper to purchase new frames than to change the lenses. So, we let her pick out the color. We decided to try rectangle frames this time, and she picked the purple, even over the same pink color as her old frames. We love them! The color is actually a darker purple than what showed up in this photo, so I'll try to take a better photo for you later.

Update - Duke's Cystic Fibrosis Education Day

10:30am - 2:00pm

We will be speaking around 1pm. I will post more information about the other speakers when I receive it.

You are welcome to come for the entire event or just to hear us speak, but they do want you to RSVP. As soon as I have the RSVP info, I will share it here. You can also "attend" the Facebook Event and invite others who might be interested.

Nate

Duke's Cystic Fibrosis Education Day

Tricia and I have been invited to be the keynote speakers at this year's Cystic Fibrosis Education Day at Duke University Medical Center on Saturday, September 10. I will post more details later, but I wanted to let you know now in case anyone would like to attend with us and say hello.

Nate

Surgery Today

1:25 - Tricia is in her room, feeling some pain, and throwing up from the pain meds.

12:50 - Tricia is being moved to her room. She got her wish to stay on the CF floor. Should see plenty of familiar faces! I still haven't seen her...

9:40 - Surgery went well. Waiting to see her.

9:35am - Tricia is out of surgery. Waiting for the consult with the surgeon.

8:00am - Surgery just began.

7:30am - They just rolled Tricia into the OR. Should be about 2.5 hours.

We report to the hospital at 5:30am (who picks these times?!?!) for a 7:30am surgery. I'll update on this post throughout the day, although we don't expect anything very exciting to happen. Thanks for your prayers!

Nate