Friday, April 4, 2008

"Confessions"

I've been writing this post over the course of the past few days...

Over the past few months, I've had several people question my judgment in being so willing to be as transparent and open about our story as we have been. Several have simply asked why, many have raised concerns, and some have even outright criticized and condemned.

There are great risks in putting out so much info, especially on the internet in this day and age (as I have written about on a few occasions). We understand the risks that we are taking, and we have certainly felt and seen some of the negative consequences of those risks (not the least of which are people criticizing us for taking risks...go figure...).

We also understand the potential for great things, and we have seen, beyond anything we could have ever imagined, this potential become reality.

Since telling you of the first TX call this past Sunday (the dry run):

I have received over 7000 comments and 400 emails (and, nearly every one has been an incredible encouragement).

The blog has averaged over 50,000 hits per day (compared to around 20,000 the past few months), and yesterday alone got over 100,000 hits (which is just mind-boggling).

Basically, all of those numbers just means that a whole lot of people were spending a whole lot of time caring about and praying for and thinking about Tricia and our families the past several days.

Since my birthday morning, you have donated over $5500 to my Personal Great Strides Goal of $10,000. My family and I are amazed at your generosity.

Since January, Tricia's Trust Fund has more than doubled, almost completely from the gifts of total strangers like you!

I have received over 500 emails and comments from people who have decided to become organ donors because of reading this blog, and I have no doubt that there may be hundreds more who have made the decision without telling me.

I have received thousands more emails of stories that I can't even begin to tell you about.

It is for these reasons and so many more that we have been so open. The blessings far outweigh the risks, both for our own family and who knows how many others. And, this is why I titles the blog "Confessions Of A CF Husband". More than anything, I'm simply looking to share the good bad and ugly (at least as much as I feel comfortable sharing) of our journey so that others who are and will go through similar journeys can and will be encouraged to know they're not alone. I often confess some very ugly, but real things (as I just did in the last post), but it is always with the hope that it will help somebody else. If you can't handle the ugly with the beautiful, you can always (quietly) get off the boat.

Thank you for taking this ride with us. Thanks, especially to those of you who have ALWAYS been encouraging and sensitive to the boundaries that we have set up. We are forever in debt.

Nathan, Tricia & Gwyneth

(PS. I've opened comments under my last post because, on second thought (ie. after just receiving an email from somebody telling me I sounded "whiny" in my posts today), I want everyone to see that I am not alone in my feelings and actions)

167 comments:

Het said...

Whiny? Oh goodness. You sound amazing for what you and your family have been through. I wish people could take a step back, put themselves in someone elses shoes for a moment and really think before they speak (or type). There is enough ugliness in the world to spread it in this manner. Your post is amazing. Thank you for sharing it with all of us. You and your family are in our prayers. Stay strong and take care of that beautiful family.

Mrs. Wilson said...

Wow. The benefits FAR outweigh the risks!

You're an amazing man of God, Nathan. As always, I'm continuing to hold your family in my prayers.

vandyformeplease said...

Thank you for ALLOWING us on this journey! I look forward to each new day waiting to see what God has done in Tricia, Gwyneth and yourself as well! I have enjoyed this ride and I'm staying on the boat!!! Thanks for sharing with us- we appreciate your HONESTY!

Much love and prayers!
Annie- Nashville

Andria and Co. said...

You are such an amazing man, married to an amazing woman and spirited little girl. Anyone who could have the AUDACITY to say something illwilled... well, needs to get a check on life.

Emilee said...

Hang in there, hopefully the best is yet to come

Mariahs Mom said...

Whiny...not in a million years. I have had a tough year this year too and you need to share how you feel, kindly, when others are "giving advice". Thanks for being so open and sharing your thoughts and heart. We are praying

Tricia :)

Mrs. Wilson said...

Oh yea, and I didn't think you sounded "whiny" at all! I think you sound like the concerned protector of a gorgeous woman and beautiful daughter.

Keep up the good work, you're doing an amazing job!

The Tranas said...

I actually commented on your Just Don't post on the one before. You are definitely NOT whiny! I've been in your shoes with my daughter. Thankfully, not very often (as usually the doctors and nurses are so wonderful about listening to my input), but back in February we had a couple of negative experiences. You definitely have to be an advocate for your wife and daughter. No one knows them like you do.

I've only been visiting your blog a few days, and I anxiously check several times a day to see if there have been any updates. You, Tricia, and Gwyneth have been in my prayers since I first read your story. Every time I think of your family throughout my day, I say a prayer.

After my twins were born and one of them was very, very sick, I remember just how overwhelming it would be sometimes just knowing that there were people out there I would never meet (on this earth) that were praying for us. It was definitely a comfort for me. I appreciate you sharing your story, as much as you want to share.

I'll keep you all in my prayers.
Robin

Cheryl said...

I left a comment on your previous post and I'll say it again here, NEVER let anyone try and stop you from taking care of your family. You are their best advocate, no matter how experienced the medical staff.

You have every right to be miffed. You handle these matters much better than I ever could. I used to be an advocate for children with special needs, especially ones with mental illnesses. I always told the parents that they must never take NO for an answer when trying to get help for their child. You must never stop speaking for the people in your life that need you.

God bless!

Sheila said...

I'm honored that you and Tricia have chosen to be as open and honest as you have been about your journey.

I posted about it on my blog back in March, but reading your story has really made me focus on what is most important in my life.

My God
My Faith
My Husband
My Children
My Health

Tricia has inspired me in so many ways, I can only hope and dream that one day I might inspire someone too.

Heather and Ted said...

"Whiny" is complaining that you have a hang nail or that it took your waiter 5 minutes to bring out your food or that you can't find matching socks.

It is certainly not whining to talk about how grueling this journey is or to remind people that your call is to be an advocate for your family. That's real life, and if people can't read about it without being hyper-critical, then might I respectfully suggest they don't say anything at all.

Lee said...

You are AMAZING and please dont let these people that say these things upset you...You truly inspire me...

Jennifer Burgett said...

I just want you to know that I think YOU ROCK!

megasam said...

I have learned so much from reading your blog and have grown closer to my faith in God as well. I am going to be forever grateful that you opened your life to total strangers and that I was lucky enough to have found you. Your story has touched my heart and I will forever pray for your family. My husband will eventually go through transplant (I think I have mentioned that before) and you have given me such a perspective on how to deal with it when the time comes. Thank you so much!!

Erin said...

In my personal opinion, you have every right to be whiny, crabby, stinky, picky, even down right rude.

Of course, that won't stop me from going back and making sure that I didn't inadvertently say something ignorant!

Bless all of you. It is because of your story that many of us, myself included, are reconsidering our relationships with God. Words can't express how thankful I am that I can 'be here' for you during this time.

Cori said...

I thank you for allowing us to travel this amazing journey with you. I can tell you that my faith and relationship with God has changed, for the better, since I started following your blog.

Thank you for helping me find my way again....thank you.

Sun said...

Absolutely you are doing the right thing! I want to thank you for allowing us to read - for being so open and for sharing - I feel blessed to be able to watch and pray from afar! Continuing in prayer! Sunshine

Carrie said...

Thank you for being so honest and transparent.

Julie said...

I think that your blog is a wonderful thing. My husband lost his battle with CF while waiting for transpant in 2005. Not only do I think that what you have to share is important for others to hear, I also think that being able to share it with others is going to benefit you as well.

I will keep you all in my prayers.

TORI said...

I think you are amazing and not whiny at all. After all, I cannot even stay awake for 18 hours much less 37, I was in awe. Well, in awe of a lot more than that, but I literally said "I would be dead if I stayed awake that long" to myself.

I am sorry some people/person said hurtful things. that just makes me sad for you.

When will Tricia get to see Gwenyth again? Is Tricia walking today? I wish we had live video feed, I am so insanely curious (in a good way, not a stalker way :-)

God Bless

The Beaver Bunch said...

It is hard to put into words just how grateful I feel for you letting us on board. I am so blown away, that b/c of your openness, I am having conversations and prayers over your family with some of my dearest friends. "Tricia" has become a name in my home and w/ my friends that conjures up emotions of thankfulness, awe, empathy, faith and hope. Thank you for sharing so much of your life, and poo on the the people who think you're "whiny." ;)

daynawalker said...

Nate- How do you twist the arms of these people to read your blog? Oh that's right you aren't they come here by choice. I would be more than happy to take care of some of these people for you, though you are doing it with much more grace than I would.
I apperciate you sharing this journey with the rest of us, without the internet there would be many people who would never have known about your story and that would be a shame.
THANK YOU for sharing your families story so that others can understand all the challenges you all have faced.

The Hager Happenings said...

Nate- Tricia and Gwyneth are blessed for having you speak on their behalf. I am firmly convinced that had we not said anything regarding our first child's birth, he may not be here today. We knew something was wrong, but had an intern who thought he was God. After 2 days of labor, a real Doctor can in took one look at me and within 5 min. we had a baby via c-section. His poor face was bruised and beat up. Never apologize for the decisions that you will make for your two beautiful girls. Keep up the good work. May God continue to grant you the peace and wisdom you need in making these tough decisions.

Love, The Hagers in Michigan

Jen in Al said...

100% not whiny!!!! that has really got to be a joke. so thankful for the privilege of praying for Tricia, Gwyneth, and you! Thank you so much for seeking to glorify God in everything. Only in eternity will you see the huge impact for the Cross of Christ your story has made. praying...jen in al

Teacher in the middle said...

Nate,
You ROCK!

Rojas said...

You are such an amazing person. Your wife and baby girl are blessed to have you in their lifes like them in yours. I have been reading your blog for a very long time. I pray for you and your family every night and put your names at my church every Sunday so that we all pray for you all. Keep strong for your precious family. Your baby girl is really starting to look like her daddy.

Momof2bz said...

Anyone who questions anything about your decisions obviously doesn't know how hard one would/should fight for their family when pressed against a wall. I love how you hope against hope and have faith that God in his infinite wisdom make the best decision. You are all inspiring to me. It is hard not to love you all and pray for you all. Seeing God's love and miracles through you are amazing. Thank you for sharing!

taramooo said...

Simply put - YOU ARE AN AMAZING MAN! The love you have for your wife and daughter is exceptional! They are very lucky to have you in their lives. They are beautiful, as are you.
Thanks for letting us in on yor journey.

amy smith said...

Okay, seriously, whiny? I would say pationate, caring, in love, and christ minded. But whiny? Not so much.

Kristen Hamilton said...

And you know what...even if you "suffered" for doing this blog, you have brought God so much glory. Eternity is what counts and there is no doubt in my mind that God is so pleased with you and Tricia and your families.
As others have said - it's our privilege.

Em said...

Oh Dear.....Anyone who may think that of you, I say to them "SHAME ON YOU" You have been through so much, and to let everyone into your life by doing this is most amazing.
I, THANK YOU for allowing me to be a part of this.
My prayers to your family.
Have some ((((( HUGS )))))

amys_a_hoot said...

Nate I don't think you are being whiny at all I admire the way to take care of them I think you have a lot of strength. And, you are right people shouldn't be telling you what is right and what isn't things are different at different hositals different protocals plain and simple. So keep your chink up and keep on doing what you are doing. Praying for you in Missouri.
Amy

Shari said...

Definitely NOT whiney, but making a very good point on things that needed addressed. I have tried to put myself in your shoes, but I can't really do that because I am not walking in them. I hope to encourage and be a blessing on here and that's it. That's my goal. That last post was well put together and to the point. Nuff said.

seekingfaithfulness said...

Whiny? You're kidding! After what you've been through?

Nate, I came back on-line because I just wanted to encourage you regarding how you are feeling in being separate from Tricia.

My husband had a major surgery last year. Not THIS major...but big. His surgery time was about 8 hours, during which I heard nothing, either. Having him back behind those doors, without me, was one of the hardest things I'd ever dealt with. I was supposed to trust people who had already made mistakes...trust that they would do everything right without me watching out for him.

In the days following, he was unavailable, unreachable, and yes, psychotic due to surgery and drugs. That was the coldest, darkest, loneliest time I have ever experienced. I didn't want anyone else, didn't want to share with anyone else...even though everyone wanted to know how he was. I soon learned how stupid people can be when it comes to hospital visits and the strange things they will say to someone who just went through the hardest time in their lives.

I had no perspective, really. I just wanted things back like they were...without the problem that caused the surgery in the first place. I didn't want to feel so dark, so angry and so cold. (And I'm a Christian...but yes, it was still hard.)

Things WILL improve. A couple of weeks will make all of the difference in the world. Keep holding on, Nate.

Terry said...

I've never understood why people can't just not read instead of leaving rude comments.

Whiny? Absolutely not!

Thank you SO MUCH for sharing your family's story. I'm sure it's touched more lives than you will ever know, including mine.

And by the way...

Add one more to the list of people that have decided to become organ donors thanks to your story. Thanks to Tricia, my made the decision to become one on the night of her transplant.

Goodboy Norman Featherstone said...

Anyone who would criticize you for this blog is just trolling to start an argument. Some people just want to crush beautiful things. It's sad, but true, and most evident here in the world of cyberspace where your critics can remain anonymous and thus protected. You never have to justify yourself to your readers. I hope you know that. You and your family are beautiful people and I am so honored to get a glimpse into your journey, as are the hundreds (possibly thousands) of other people who refresh this page 20 times a day.

Nan said...

Your transparency allows us ALL to see Jesus and to know that it is not on your strength that you stand, but on the strength and power of the gosepl. Thank you for being willing to be so transparent. I pray it is healing and/or theraputic in some ways for you and Tricia. Blessings and Prayers lifted high!

sara said...

Nathan, Tricia & Gwenyth -

Thank You for being so open & transparent. I pray for your protection as well as you are so generous with your emotions & your personal story. I pray that your hearts are guarded and that more good than bad comes from you sharing. God has led me to PRAY fervently for you & to share your story with so many others; others that don't even know what a "blog" is. You are being covered in prayer because of your authenticity & for that; you are loved.

Still praying :)

shaninvb said...

Praying for you and your whole family.

Thad & Ann said...

OY!! whiny...that's just so rude to say, yes.. please Nate be sunshine & roses(rolling my eyes here) all.the.time. :) I love that you are so honest in your posts, I don't think anyone can say "oh, this what you should do or this is how you should've handled it" until they are in your shoes. I'm sorry for the ugly things that have been said regaurding desisions you guys have made, what you would have missed had you not taken risks! God has used your story & blog in such a huge way to glorify Him & thats what is most important(I know you know that;) ). Still praying

The Case Family said...

I know that me personally...check this blog about 10 times a day! I'm hooked! I just feel like I know you and your family.

Sheila said...

I for one am so glad that you are open and willing to share. I am the kind of person that is amazed by the strength you can gain from others. In the last few months I have learned how to pray for those I do not even know...blogs have been able to put a face with a name. Also a life story with that person. People I may not have the privilege of knowing were it not for the 'blog world' (internet) and people like your family so willing to share. There is truth in the statement...Strength in numbers. I also like this scripture. Matt. 5: 15
Neither do men light a candle, and put it under a bushel, but on a candlestick; and it giveth light unto all that are in the house.
You have shared the kind of light with us, your human family, that we could all use more of. I admire your bravery, courage, strength, and thank you for sharing your light and not hiding it under a bushel. May the Lord continue to bless and heal, protect and comfort your family. I do & will continue to pray for all of you. Hang in There! With Love & Understanding... Sheila in Nevada.

marcia said...

Whiny? absolutely NOT! Open, honest, transparent, and putting the needs of everyone else above your own...yes! "Raw" was a gift to us...when you were beyond words exhausted you chose to reach out with one last report at the end of a marathon two days, to give one last update. And your last post was pure and simple truth. Thank you for who you are and what you do!

Shannon said...

I can't even BEGIN to know how you are feeling though all of this, but your faith is so amazing. I have cried tears of sorrow (the dry run) and tears of joy (the past few days), thank you, thank you, thank you for sharing with all of us. Our prayers continue for all three of you and your extended families.

Alanna said...

On the our Church Bulletin last week was the following little blurb...

Those that matter do not judge, those that judge do not matter...

You are not whinny, but a brave young man with so much to give......GOD IS GOOD!

Alanna

april said...

Nathan you are not whiny at all, you are keeping it real! thank you for sharing your story! wow 500 donors! think of all the lives you have touched! seriously! your family is a blessing!

jmgarnet76 said...

Those numbers are AMAZING. Bless you for being completely honest with all of us. I hope that I have never hurt or offended in any of my comments or emails or crossed any lines. I would feel absolutely horrible if I hurt someone else.

You will far surpass your goal. I know it. God is using you for an advocate for ALL CF patients not just Tricia. It's amazing that you had 100,000 in one day. That is crazy amazing.

God Bless and I am still praying for both of your girls.

Tasha said...

I am so grateful for this blog. I only just discovered it today, and am wiped out just reading about you and your family's journey. Your strength is amazing. Even though I am a healthy person and I don't have any children, I am still inspired by your stories and writing and especially the strong, hopeful pictures. I can only imagine how much your blog must help someone involved in a similar struggle. I look forward to the post where you and your girls are able to spend a calm, quiet evening at HOME :)

Sheryl said...

Whiny? I am about to get up on my high horse and start preaching! You are an inspiration to SO many. There are raw emotions that are a part of your reality right now. Those of us taking this journey "with" you through this blog wouldn't expect anything less than pure honesty.

The good that has come from you sharing your experience will never all be known until we get to heaven. But when I see comments from people who say they have never prayed but they think they'll give it a try. HALLELUJAH!

Continuing to pray you through.
Sheryl

amathyst-eyes said...

Just wanted to say that I'm thinking about you all today. I can only think that whoever said you sound "whiny" has never been through what you've experienced. I think you're doing amazing, thank you for sharing so much with us.

ps-I like that your post was from all three of you.

grey like snuffie said...

Well if you want to whine go for it. :) You guys may have thought on your own or a leading from God that your blog was to highlight the CF world and organ donation. There have been other outcomes. While God has stirred in me to pray and put info about organ donation on my blog He has also awakened some dry bones in this child of His. 6 years of going through something and waiting on God and several of your blogs zapped me, through scripture and your specific lives. If we're looking for God in all of this He can always be found. Thanks for putting yourselves out there.

Lee said...

WHINY? Funny, but I feel "big sister-esque" towards all of you and that got my back up! WHINY-SHMINY!

Oh, and at one point in this post you said "the risks outweigh the blessings"...I am assuming you meant that the other way around.

If it weren't for your story, I would not be a registered organ donor. We would not have had as many very honest adn real suppertime discussions with our children had it not been for your posts prompting discussion. I am praying more fervently, reading my Bible daily and admitting to myself finally tht I am not in control....God is. Those may seem minute to you, but they are HUGE for me. I cannot even imagine what yiour story has done for so many thousands more!
KEEP ON KEEPIN' ON!

Nadine said...

Tired, mentally drained people are allowed to be whiny. Although I didn't think you were that way at all.

I again want to thank you for sharing your story. I've been following along for a while now and feel somewhat of an emotional attachment to you all although we've never met.

I will continue to pray for Tricia, Gwyneth, you and your entire family.

Oh, and feel free to whine away. :)

Club Sammich Cafe -Art,Angels and Miracles. said...

Whiny!! Don't think so.
Some people just will never understand what its like to deal with a chronic and critical illness. Nor will they understand what its like to go through what you have with Tricia or Gwyneth.
What you have been through is grueling . When you wrote the post *Raw* that said it all. And rightly so Nate.
As for whiny no...I don't see that in you at all. If any thing you are one of the strongest caregivers and advocates out there. STanding tall for Tricia and Gwyneth and sharing your families story. Is for the good. I feel that daily coming here to read.
My only hope is to encourage you with prayers and thoughts. Its my privilege to be on board daily.
I really think your blog is to much of a reality check for some and thats how they handle themselves with stupid remarks as that. I sure wouldn't let it bother me.
Stay strong and hold fast.
Kerry Michigan

Kupiec Baby Blog said...

God's best and most beautiful presence to you all. You truly are an inspiration to many!

Slade said...

seriously at this point, I think there are just some incredibly heartless people out there who are simply trying to get a rise out of you...it's like they are playing a game...they know you are a Christian and they are trying to crush you.

To those people: stop wasting your time! Go somewhere else and be a pain!

Jill in Raleigh said...

Nate,
This is the first blog I have ever read, and I feel humbled to have been able to share in your journey thus far. Your openness is one way you are using your story to bless those of us who wish you well.
Most of us you will never meet. You will never know the stories of our lives. You will never know the number of people we have shared your story with...or those we have asked to pray for you. But, you WILL know that your story has become a beautiful thread throughout the lives of strangers...that your story will serve to make each of us and this world a better place.

Your commitment to your wife and daughter is awesome! Your whole family is serving as examples to those of us who only stumbled by your blog in the beginning and now wait anxiously to hear your good news each day.

God bless you!

ford1206 said...

This is a form of tharapy, and yes you have helped countless others in your journy and as always you are your best advocate for your family. For those who dont want to see this for what it is, then they can just be ignored. May God keep you and your family safe and together and give you so many more great blessings, we are all saying countless prayers for Patty Sue and Gwyneith. May he also console the Doner's family in knowing a part of them lives on.

Andie said...

I don't think you sound whiny at all...you sound passionate. You sound caring. You sound loving. You sound like a husband who knows what is best for his wife, and is out to get that best! I wish all husbands were as in tune with what their wives need as you are...I know in a previous post you said you are not as good a husband when Trisha isn't in the hospital...but that is when she needs you the most. I'm so glad that she has you to look out for her. She is one blessed lady when it comes to the husband department!
Blessings-Andie

Marge Sexton said...

I for one would like to personally thank you and Tricia for sharing your journey with the world. There are many lives that you have been an inspiration to, many that have learned of the faithfulness of our heavenly Father and have seen the faith and trust that we are to put in him. You are a true Blessing, above and beyond what I could ever imagine. Thanks You, and May God continue to bless you as you are a blessing to others. I continue to lift your family in prayer!

Ruthanne said...

Thank you for taking the time to write your story!
I have been checking your blog a few times a day. I have been informed and challenged. I think that you are a loving husband and it is very moving to go through all of this with you. I have been prompted to pray for you several times a day and when I wake up at night. It is good to see the Lord answering the prayers of so many. You are an excellent writer - just yourself - honest, transparent.

Casa de Castro said...

Although I'd discussed my desire to be an organ donor with my family some years ago, I had never
"made it official" until last month. Tricia's story and your beautifully written blog inspired me (and my boss who is a physician) to take the steps to officially register in our state for organ donation. In telling my family what my boss and I had done, several of them have now also registered with our state to be organ donors. Should the issue be raised, no one will ever have to guess or wonder about our intentions. Thank you for helping raise awareness for the need for organ donation in a compassionate way.

You rock!

mommaof2girls said...

I have to say that your family has given me strength. I have prayed for your whole family for the past few months after discovering your link on a friend's page. Keep up your postings, don't let anyone tell you differently. God knows your heart, and it is certainly ok to open it up. By no means do you sound whiny! Let them be in your shoes for just one day...You and your family will be in my prayers.

Donna said...

THANK YOU!

Becca said...

I too never saw whiny in any of your posts. You would have a right to be feeling ANYTHING you are feeling but all I have EVER seen is an open, kind man who dearly loves his wife and daughter.

I thank God every day when I pray for you that I have had the chance to "know" you and your gorgeous girls. You have done so much, helped so many with your generosity.

May God always bless you for doing His work so well and so willingly! Thank you, thank you, thank you.

Maddy said...

Oh hun don't apologize for one single word. I just found your blog and have been praying for all of you.

Your daughter is beautiful and a true miracle. I am praying that the road ahead is as smooth as possible for Tricia.

I was diagnosed with Pulomonary Hypertension last October (I'm 37, very happily married, and the mother of two boys ages 6 and 2). There is no cure and eventually, lung transplant (possibly a heart/lung transplant) is probably in my future. I follow your story probably for selfish reasons.

But I had to reply to your post and say that I will pray my husband will be as strong and vocal for me if/when the time comes.

Hold your head high and thank you for sharing it all on the blog. I will continue to pray for you and yours.

Madeline
Pope AFB (just down the road from Duke)

Debra said...

You didn't sound "whiny"! What's with people that they optionally come here to your blog and then think it's their place to criticize you? I think you're doing a great job on Tricia and Gwyn's behalf and they are SOOOO fortunate to have you! (I have CF and when I'm in the hospital my husband drops me off and picks me up and that's about it!)

Lots of good has come from your blog. Plus it's a good outlet for you!

I'm anxious to hear how Tricia's day was today!
Aspiemom

asplashofsunshine said...

Whine???? Not in the slightest! Strong, human, and emotional, but come on, not whiny. My breath is taken away with every entry you create. Your words, the gorgeous photos, and thoughts. What a fabulous caregiver, husband, Daddy, friend, and son you must be to those who have the opportunity to know you. Thanks for all you do! I am sure Tricia would tell you that right now too, and little adorable Gwyneth too!

Jen said...

Wow, the nerve to say you've been whiny....please continue to express your feelings in any way you need to. You are HUMAN and you are certainly going through more than the average person right now with Tricia and Gwyneth.

My life has been blessed with finding this blog and following your story.

I talk about your family to my friends and family as if I know you personally, your story touches many.

You are amazing!

Lou Ann said...

Your blog is amazing and you are commended for sharing it with the world. You and your family have made a difference in my life - and for that I am forever grateful. God Bless You.

Anji said...

I want to say "yeah for the readers" keep up the great work guys :)

Nate you are pretty cool too ;)

seriously the support that "the readers" has shown Nate, Tricia and Gwyneth has been amazing to watch and another way to demonstrate the amazing way that God is working

praying hard for Nathan and his girls still

Julie said...

I'm glad you continue to post, and that you allow us to comment when it's appropriate, and that you are happy to tell us when our comments are not desired.

I have yet to read something you've posted and thought, "He did that wrong" - it's been clear all along(to me, and many others I'm sure) that you are doing the best you can to make sure your wife and daughter are getting the best possible care.

Doctors and nurses DO sometimes make mistakes - they're human, just like us. Only their mistakes, if not corrected by someone who knows the difference, could potentially cause unneccessary discomfort or even death. It's GOOD to be an advocate for your loved ones!!

Still praying for you all!!!

Shann said...

Thank you for allowing us to see right into the heart of this journey you are on.

I have been so blessed by finding this blog, and continue to pray for you and your girls.

Somer Love said...

WOW!!!! Someone really called you Whiney????

Hmmm I would like them to walk in your shoes for lets see maybe just one minute. Imagine if they walked in Tricias shoes for 5 seconds.....

Keep your chin up Nate you are doing an amazing job with both your girls. Your journey has touched thousands and thousands.

I am sure it has touched hundreds of Cfers like myself. I thank you for sharing with us each and every detail and feeling. It gives us a glimpse of what we as in Cfers might have to go through one day.

My prayers will continue for you 3, your families, and the donors family and the medical staff.

Breathe easy Tricia, as you begin your new journey with your new breathers. I am so proud of all your accomplishments all ready after surgery. You are doing great!!!!

Michelle said...

Great risks often lead to great rewards...as you have seen. I am praying.

Rebecca said...

You know, Nate? I don't think you sound whiny. You sound tired, frustrated, worried, raw.

And I don't blame you.

But if you did sound whiny? That would be o.k. I think you deserve the occasional whine.

Hugs...

LauraD said...

And just think of all the people like me, who have been reading for months and praying like crazy but never took the time to sign up with Google/Blogger so that I could leave a comment! That ups your numbers A TON!

God is just amazing!

I appreciate too you admitting to some anxiety /depression issues. As a Christian, I always felt like I should be able to handle my anxiety better.

Alice said...

Don't let the turkeys get you down. You are doing exactally what you need to be doing for your wife, your daughter and yourself. Hang in there!

Nora said...

God bless you and may the attacks cease. Don't let it rob your joy, Nate. You are not whiny. You are doing an amazing job in UNBELIEVABLE circumstances. God bless each and every one of you involved in this right now and may God bind these idiots from saying anything less than encouraging.

Candace said...

Thank you for allowing us in. It has been amazing (and will continue).

We pray for you often.

Jeri said...

Your willingness to share the ups and downs with the world is awe-inspiring. I appreciate that you have allowed us into your world. To get to know you, Tricia and Gwyneth Rose, is a blessing. You have not maintained an attitude of "I am such a perfect person, look at my martyred life", far from it.... you've registered angst and humor, fear and fearlessness, joy and despair...hmmm, you've been a human being living in extraordinary circumstances who doesn't sit around and whine, you do something about it! Raising funds and awareness for CF while becoming a first time dad and waiting for the next phase in your magical life to begin. Thanks for the invite!

sandra said...

I can honestly say that your story has made a difference in my life as well. I am due for my licence renewal and i WILL be checking the organ donor box this time. You are an amazing family. Thank you for sharing your life with us.

cmziall said...

I sure am glad you both were (are) brave enough to put your story out there! Of course you're going to get that minority that will criticize you, but like you said, look at your numbers! I'm sure there are many people that have not only changed their minds about organ donation, premature birth and CF, but many that have brought themselves to the Lord! God has continued to bless your family and I pray that He continues!

God Bless,
Michelle in MO

Kim... said...

I am constantly amazed at the sheer amount of Faith, love, support, and prayer here! You are pushed to you're limit of every emotion possible...please don't let hurtful comments bother you - you have thousands that cancel that person's comment out anyway!
You have made me find Faith again Nate! I find myself praying at the most random times for you...tears flowing at 3 in the morning just thinking of how great the power of prayer and grace truly is (I fell away from that understanding along the way...I found it again!)
You have touched people so deeper than I'm sure you have ever imagined, and I couldn't thank you more.
All of these beautiful people who love, pray, cry, and feel for you has touched my life beyond belief...it's simply amazing
Thank You,
Kim
Wilmington, NC

brenda said...

Nate-as you and all of us can see, most of us are greatful for your sharing your family. Don't let those who are "jealous" ruin your day. They don't have anything better to do than put a great man of God down, then I feel sorry for them. You keep up the good work of taking care of your family. I can't wait till I check your site to find out how the girls are doing. I have shared your site with my co-workers and we all have been praying. God Bless you and hang in there and be their mouth piece, while they can't. I belive that is what God wants you to do.
Hugs to all, expecially that beautiful baby girl.

Lu said...

All I can say after reading your last posts is God bless your beautiful soul and all your family and thank you with all my heart for sharing your family with all of us. Your story made me a better person and more than this my faith is twice as much stronger now because of you Tricia and baby Rose again and again THANK YOU!!! Always praying
Luciana - ( Lu ) Rio de Janeiro - Brazil ( www.farfalles.com )

John & Michelle said...

This could get long...I apologize in advance!

My first husband had a brain tumor. The first surgery was botched and the resulting scare tissue caused him to have grand mall seizures without warning. A second surgery was done that finally did remove the tumor. We were told to get him to the ER asap if he had a seizure. We visited at least 6 different ER's and received very different treatments in each one. We lived far from our families and had no support system. I was the caregiver and it was very hard. At first I trusted every person that came in to treat him. As I grew more comfortable in my role I would ask more questions and demand to see someone else if I disagreed with a nurse/doctor.

One a weekend night in a nice suburb of Detroit, we ended up in the ER. He had a bad seizure and need iv drugs to stablize his drug levels. Took forever but finally got the drugs going. He complained terribly that it burned going in and this had never happened before,and I begged someone to help us. I grabbed a doctor that was walking by and refused to let him go. This doctor yelled for help. The rushed nurse had hung the wrong drug and could have killed him.

Never fear asking questions and demanding more information!

Catherine said...

Whiny??? Please tell me someone did NOT call you that!!!!! You are so far the OPPOSITE of whiny!! How you are holding it together is amazing to me! Having a new baby is stressful enough but going through what you are going through with Tricia on top of all of that-you deserve a medal (and I know you aren't doing it for that reason). I am extremely proud of who you are and what you are doing and I don't even know you. You make ME a better person....and you don't even whine about it!!! :)

The Dukes Family said...

You don't sound whiny, but it's your blog and you can whine if you want to ... you've certainly been through enough to justify it. Hang in there and thanks for taking the risk in sharing your life and allowing us the blessing and privilege of praying for you.

jenniferlee5 said...

Thank you!! A million times over. Your risks have made a huge difference for me. I have only been following your story for about a week now but that week has has really touched me. My 5 month old son was diagnosed with CF at birth and being allowed to follow your story has given me hope and strength for ours. I have learned so much from you and your family. I am praying for you and yours!

Dennis & Leesa said...

I just want you and Tricia to know that this blog has been an INCREDIBLE ministry to me and my family- thank you for your honesty and "realness". i have been amazed at God's working in your lives and know that millions have been blessed because of your honesty. Thanks you.

a_weak_rose said...

Whiny!?!?!? Shouldn't be your wife's advocate???? Are you kidding me?

Ah Nate, I'm sorry you have to get this kind of stuff when you are SO exhausted and drained emotionally.

I too have gotten flack for "sharing too much on my blog" (i.e. my testimony) but have decided just recently, after alot of positive feedback and dialogue with God, that the pros definitely outweigh the cons!
At night, I fall asleep knowing I'm ok with God and that whenever I open up my heart and share it's to ultimately bring Him glory. . . so I keep writing.
You are gifted in your writing and I hope you never stop! You have taught so many of us so much and we can see Jesus radiate from you and Tricia because of your honesty and authenticity! Praise God!
Melissa
PS---add donors 501 and 502 as hubby and I have signed up for organ donation!

Kristina said...

I am amazed at your honesty and transparency during this entire process, and I think much good will come of it. I believe that more good can come if more people would tackle their difficult situations with such honesty and openness. I can totally see a future transplant family coming across this blog and being relieved to be able to relate to your struggle, the good, bad and the ugly!

Risha said...

A few of my thoughts...
I don't feel you have been whiny. As you said, you share the good, the bad and the ugly. But perhaps the emailer was someone you know who expects differently from you.
It continues to amaze me that you have continued sharing after the "abuse" from complete strangers.
Actually, it continues to amaze me that people think they have the right to say rude and ignorant things to you.
Mostly, it continues to amaze me when I see all that God is doing through you and your family. Praise almighty God!
Your honesty in all things has specifically challenged my own relationship with the Lord.
Thank you for sharing this journey with us and allowing complete strangers to witness miracle after miracle. To God be all the glory!
As always, remembering you in prayer.
Risha

Melissa said...

I have heard it say that people often like to exault the good, hide the bad and rearrange the ugly in their stories. Thank you for doing none of that when it comes to sharing the story that God is writing for your family at this time.

Auntie G said...

Keep up the good work Nate!!
You are an amazing testimony of our awesome God!
Gail

theragan3 said...

you have blessed my heart in more ways than I could possibly put into words. The way you are so honest with your feelings to complete strangers... the way that you speak the truth in love... I have talked about you to co-workers who look at me in disbelief, wondering how you are able to make it through such a difficult time without collapsing They don't understand the HOPE we have in Christ, but your story has opened the door for me to share HIS life, love and hope with them.

That is what this is all about. And I thank you from the bottom of my heart for being the vessel that God has used to bring me back to HIM.

Nora said...

P.s. When my daughter was 6 months old, she had been coughing and just having cold symptoms for over a month and I'd had her to the doctor a few times to get it checked out--things seemed fine.

One evening, she began coughing and gasping for air, turning blue and just basically scaring her father and I to death. We rushed her to the emergency room and as soon as we walked in the doors she gained her composure and acted pretty normal. The nurses/doctors looked at us like we were crazy for bringing her in. I now know what they should have done--they should have checked her blood/oxygen levels and at least given her a breathing treatment based on what I'd told them. They did neither. They did do a chest xray that revealed a touch of pneumonia. The ER doc actually said he thought she'd be fine without antibiotics, but would give us a script for z-pack anyway.

I did not feel comfortable with that... I prayed and grabbed my cell and immediately called her pediatrician (at 3:30 a.m.). After telling her the events of the evening, she asked me to take my daughter directly to the PEDS department. There, we discovered her oxygen levels were in the 80's and she required oxygen for 4 days. It turned out she had asthma and after treatments and STRONG antibiotics to get rid of the pneumonia, she was much better. More than likely, if I had taken the advice of the 12 year-old ER doc and gone home, she would have died in her sleep and they would have written it off as SIDS. I don't care how crazy they thought I was that night because my daughter got the treatment that she needed.

We still deal with asthma, but it's not a big deal.

NYDarlene said...

I have been following your blog for a while. I have been praying for you, Tricia and Gwyneth as well as the donor family and the healthcare professionals taking care of your girls. Continued prayers for health and well being for you and your beautiful family. May God continue to bless you.

Mary Kay said...

I want to thank you for sharing your story with us; total strangers in blogland. Please excuse the negative and know-it-alls out here and continue to share your story of faith and love.

Sagga02 said...

HAH! Whiny?

You know what, if you wanna whine, which i dont think you are btw then go ahead and whine all you want you guys have had a big week, and i reckon you can whine all you want. Tell them to kindly bite you :)

I have personally been touched by your family and story. My now 5 month old at birth came back that he was a carrier of CF. At the time we didnt know if he had it, so went went through the sweat test and waiting and that was the hardest time of my life. I am so thankful you are sharing your story about CF, organ donation and preemie births. THANK YOU for touching my life!

HUGS

Christine said...

There will always be people who don't agree with the choices you make but it is important to follow your heart and do what is best for you and your family. To live a life without risk would be very dull and unfulfilling. Sharing your journey has been beneficial to you and the people you have touched. You guys are in my prayers.

jamie said...

Nate Ditto on all the points that have already been made. I really do feel like this is an extremely powerful blog. I've been reading since around the 2nd week it was up. I can only tell you for me what it has meant. At first, a very interesting story, as a nurse interesting medical story. Then your Gwyneth was born. I begin to have concern for this little premy. Long story short Nate(cause I could write a whole story)This has renewed my faith, renewed my relationship with God, in short, it has made a tremendous differnce to me-this one person. (I was already organ donor) But I believe I'm not the only one whose life has been changed. So..to whoever thinks you have shared too much, is at least one soul,probably more,worth it? I'd answer yes. Thank you so much.

God Bless you all
Jamie in Texas

for Sarah... said...

Satan prowls around like a lion. Your family is a huge threat to him. Shake it off and run your race as you have with pride, knowing our Lord smiles on you and your precious family. Even if you have only reached 1 for Christ it would all be worth it.. I think we ALL know your family has reached MANY.. There will be MANY waiting in heaven to thank you..
God is so proud of you for stepping out in faith and letting your light shine.. Your blessings show that..

Praying with you
Rhonda B

maggie said...

Whiny? Pfft. I whined today because Starbucks gave me the wrong latte. Now that's whiny. And bratty, too. Compare that to you boldly and bravely protecting your family in ways I can't even fathom, and, well, nope, not even remotely whiny.

Ava said...

I admire your willingness to share so much! I along with everyone else share your heartfelt passion to see things done the right way. May God be the lifter of your head and may He show Himself to you in incredible ways!

Kristen said...

I read the other post...GOOD JOB!!! You are a good role model for people who could be in the same place you are...
I read cause I want knowledge and hope for my child with CF.
You arent a saint but just a good role model and I hope my daugther finds a husband like you...in at least 15 years! (then she will be 18 and thats ok...)
Thanks for sharing your story.

marimac said...

Dear brother, I'm sorry people use such clumsy, hurtful words. Christ is in and with you and your family, that is very evident. You and your beautiful girls have been in one of the most stressful times imaginable for quite a long time, so you are right to listen only to words that give you grace and peace. Anyone who has the audacity to question/criticize your actions on behalf of your girls is, in the words of my seven year old, a big poopy headed snail mouth. As a healthcare provider myself, I KNOW we drop the ball and pretend we didn't, and an on the ball family member is more important to a good outcome than all the medicine in the world. You keep on trucking and keep your eyes on the prize. I'm so excited for Tricia to have new lungs - is she all pink? ;-) The pix of her with GR just fill my heart with praises to God - and with prayers for the donor's family. I cannot for the life of me understand why anyone wouldn't want to be an organ donor. Imagine if we can see the world after we leave it - someone is grinning from ear to ear at Tricia's progress, as they wallow in their new perfect "body"! You are an amazing wonderment, Nathan. Live it up!!

Bethany said...

Whiny? For goodness' sake! Even if you were, you have good reason for it, thanks to the emotional intensity of the last two-three days.

Thank you-

for advocating

for updating

for truthfulness and honesty

and for refusing to be put down by those who speak when they should remain silent.

May God bless you and yours.

Heather N said...

We thank YOU for sharing your story!

Stacy said...

I cannot believe someone would call you whiny. I'm shocked. I also cannot believe people would be so callous and critical of you and your blog. Tricia is so blessed to have you as her advocate!! Right on for standing up on her behalf to the nurses, doctors, and others in charge of her at the hospital. Kudos, Nate!! You've done nothing wrong. I had never considered organ donation before reading this blog, but now I'm having second thoughts about this. I clearly see how benefitial organ donation is and how it is truly a blessing. You are brave, patient, kind, and a wonderful person. You blog with a purpose and that is a good thing. All the best!
Stacy :-)

Tricia Moran said...

Wow! I just don't understand anyone who could email you and use that term?! Like after what you've just been through for the past months? As if though they've walked in your shoes and had to be you - the strong advocate and loving husband and caring father - ALL AT ONCE? I am incensed, which I know is no good to you :) but just wanted to get it down there with the rest of the people who care more about you and your family and the miracles and challenges that you've been brave enough to share. Yes Nate, I have often gotten in trouble for being honest too. But your testimony to faith, to living life in a whole and loving way, encouraging education about CF, organ donation and premature birth is just awesome. Think about how exhausted, overwhelmed and raw you feel right now and when you don't feel like that - realise that there will ALWAYS be those out there who have no empathy or who maybe just haven't been given the grace of sensitivity.
Now, I'll get off my soapbox :) and focus on what I really want to. Tricia, you and Gywneth. YOU are what is important and you are their advocate always. Just keep up the great job and keep focused on the end result. God is working in you and through you and He is in charge. All we are doing tonight is praying for healing, peace and some pain-free hours of sleep for Tricia. We hope that you can rest too. And we pray that Gywneth, who is a little fighter like her mother will continue to thrive and get to go home - all three of you together. Save your energy for those who really care (and those you love) and the prayers will do the rest. Your blog has changed my perspective on so many things for me and millions of others. Hang in there. Still praying - especially my children - they are delighted about the new lungs and love looking at pics of gorgeous Gywneth. Wishing you peace and rest tonight. With love, hope and prayer - Tricia and Clan :) (N.VA)

Karen said...

This is ridiculous. I think this is the third time I have posted today, but I have felt urged. It is ridiculous to have to explain your position. The internet makes people say and do things they might not otherwise, but we must realize this is your online 'home.' I would never go to your physical home and criticize you. Nor should I go to your web home and criticize. It actually upsets me that you are feeling the need to justify, but that goes back to one of the great qualities you have...protecting them. And you fiercely do that, and do it well.

TruePraise said...

Your updates and such are so inspiring and I know they are helping people! Keep it up! God is using you!

Jessica mommy to Alex/ RTS said...

Praying for you!

Glo said...

I was told about this blog around the time your precious little girl was born and have been keeping up ever since.

I have to say you guys are amazing. Your faith is inspiring. I am keeping you all in my thoughts and prayers.

walkingbyfaith said...

Why are you thanking "us" the readers when we should be thanking you, Tricia, Gwyneth, and your families? You've shared SO much valuable information. With as many people that have read this [which is a great deal going by the hits] there has to be someone who will someday go through a transplant, or people dealing with CF, or people who need to experience the raw emotions that you've shared. I can't even imagine how many people have been helped in one way or another by your willingness to share your story. The Lord has really spoken through your sweet family. I am so grateful to have the privilege to "go through" this with y'all.

So Nathan, Tricia, and Gwyneth, Thank YOU for sharing your life with all of us. :)

Still praying...

hdietz said...

Nathan,

Anyone who has ever loved someone in pain knows that there are times that you have to trust your instincts, and sometimes you have to shout from the rooftops. There is no one better qualified and suited to be your wife's angel and guardian right now than you, and I have faith that you are ensuring her very best care.

Every day my heart sends prayers to keep your family safe and secure.

Trisha said...

God bless you Nate....continue being the advocate...continue sticking up for Tricia when need be. I admire your strength and tenacity...and for those who heaven-forbid should ever have to bear witness to all that you have...they should be ashamed...REALLY ashamed. You gotta love those Monday morning quaterbacks...especially the ones who were third string...benchwarming quaterbacks!

Love you guys...God bless...Keeping the faith in San Diego!

Trisha

La Familia Garcia said...

Your passion for Tricia and Gwyneth is what draws the numbers so high. Your willingness to share the journey with us has brought a the internet together into a community praising God together! Your blog says "Praise the Lord" all over..of course you will get criticized for proclaiming God. Your blog has also challenged others (like myself) to share the everyday struggles of walking with the Lord..not near as big as what your family is going through...but to be transparent as Christians pointing to God. Keep testifying! To God be the Glory!
"But I consider my life worth nothing to me, if only I may finish the race and complete the task the Lord Jesus has given me, the task of testifying to the gospel of God's grace."
-Acts 20:24

Kelly Brown said...

WOW...miss a day of reading your blog and I SURE DID MISS A LOT!! I am SO excited for your family and we will definitely be praying for each of you, as we have been for a while!!

Kelly Brown

~j~ said...

This journey you have allowed all of us on has been one that has changed not only my own life but that of thousands. I have loved and cherished every moment on board. I have grown in my own faith and perserverance through your hard moments and rejoiced and cried tears of joy in your lighter ones.
So thank you Nate for making the decision to "confess", we are all the better for it. Keep it up!

SierraJen said...

I have followed your blog since before Tricia gave birth to your beautiful daughter. I have been praying for you all and will continue to do so. You are an amazing family. God bless you!!

munchkinsmommy said...

I know first hand that doctors and nurses can be wrong sometimes, but they are just human and we are not all made the same. :) I had to remember that when I was in the hospital and had problems with the doctors and nurses not believing that I knew what my body was doing. Good for you to advocate for your wife!

I've been following your story for a few months now (I don't even remember where I found out about your blog) and have been amazed by all you have experienced and the faith that you have. Our God is amazing and has blessed you greatly.

Praying for you,
Chris

Mom to Trevor & Joshua said...
This comment has been removed by the author.
Mom to Trevor & Joshua said...
This comment has been removed by the author.
Marci said...

You are leaving a well in the desert for others to drink from. No one can judge you unless they have walked in your shoes.

Mom to Trevor & Joshua said...

Nate, first and formost GOOD FOR YOU! And praise God that you still have a beautiful wife and adorable daughter! Where would Tricia be if it was not for you? I find such strength from your family. I will admit that I have been a CF maniac since January when I was introduced to your link. I check it every day at least twice and pray every morning and night for you and your family. My relationship with God has been the best that it ever has been and listening and watching the updates that you post makes me feel that my relationship with God is the best thing that I could have ever done for myself and my own family.
Thank you so much for being so open and honest with your family. Your faith is wonderful and I am truly blessed that I was introduced to your blog.

Heidi said...

Hang in there Nate, you are doing the right thing! If one person walked away from this a donor, that wasn't before...that's a huge accomplishment...but you are far exceeding that! Also, exposure to what CF is like...and raising money for it. Hang in there and know that you are educating people about CF, transplant, and donor awareness. Stay strong!

rita said...

Nate -- Thanks for continuing to share your family's story.

islandgirlart said...

Dearest Nate!
Amen, Amen and Amen to your post re: advocates - I learned that 1st hand myself.

I looked up the def. for 'whiny'

whine (hwn, wn)
v. whined, whin·ing, whines
v.intr.
1. To utter a plaintive, high-pitched, protracted sound, as in pain, fear, supplication, or complaint.
2. To complain or protest in a childish fashion.
3. To produce a sustained noise of relatively high pitch: jet engines whining.
v.tr.
To utter with a whine.
n.
1. The act of whining.
2. A whining sound.
3. A complaint uttered in a plaintive tone.
[Middle English whinen, from Old English hwnan, to make a whizzing sound.]
whiner n.
whining·ly adv.
whiny, whiney adj.
The American Heritage® Dictionary of the English Language, Fourth Edition copyright ©2000 by Houghton Mifflin Company. Updated in 2003. Published by Houghton Mifflin Company. All rights reserved.

So, no, you are not 'whiny' - I teach 500+ kids every week - I KNOW Whiny!!!!
To me, there is a HUGE difference between 'STATING FACTS' and whining!!!!

Remember, you are not only Standing in the Gap for your wife and daughter - but this entire situation is totally advancing the Kingdom of God - you are involved in the front lines of kingdom work - so naturally, the enemy is going to hit/attack you when you are most vulnerable (I think this week qualifies!)
The enemy comes to 'steal, kill and destroy' - so, continue to 'stand firm, my young warrior friend'.

"57But thanks be to God! He gives us the victory through our Lord Jesus Christ.

58Therefore, my dear brothers, stand firm. Let nothing move you. Always give yourselves fully to the work of the Lord, because you know that your labor in the Lord is not in vain." I Cor 15:57-58
We are called to uphold you in prayer and to 'hold your arms' up when you are weary!
You are Much Loved and Respected!
The Lord has granted you Wisdom beyond your years and has prepared You for 'such a time as this'
Before the beginning of time, you and Tricia were selected for this 'assignment'. "He who began a good work in you will carry it on to completion until the day of Christ Jesus" Phil 1:6
Continuing to cover your entire family in prayer. May the Lord continue to carry you in His mighty hands close to His heart!
We love you
cindy w. - obx

Polka Dot said...

Whiny? Good grief. Some the audacity of some people continually amazes me.

I think you're doing what you need to do for your family. And anyone who doesn't, may very well find themselves wishing they had.

Q's NEWS said...

Maybe I am naive, but I don't understand why anyone would feel you had been too open. I don't understand how it could be dangerous but like I said, maybe I am naive.

Your openess has brought about a lot of great things - many of which you mentioned. I am one of the ones who let you know that I sent all my family members an organ donor postcard letting them know that I want to be a donor should anything happen to me.

I am also glad that you mentioned Tricia's trust fund because I had wanted to email you to ask if we needed to organize a fundraiser or anything but I wasn't sure how to ask something so personal. I wanted to make sure you had plenty of everything you needed without having to worry.

I have raised 5 children (so I have had a little experience with whining) and I have not detected any whining from you - ever. Stressed out at times? Sure, but I don't see the harm in that. Keeping it real is what you are all about and I hope you stay that way.

You are about 20 years younger than me, but wiser beyond comparison. Don't worry about what a few have to say. You don't need to be worried about anything negative right now. And whoever is dogging you needs their head examined. Most people would be in a psych ward after what you have been through. I commend your honesty and strength and the fearless way you represent our Lord.

I hope you stay as open with us as you have been so we will all know what to pray for and what you need. You have been a shining example for all of us, Nate.

Love from WV,
Susan

amyj611 said...

OK... I have been following(stalking)you for the past 2 months now (Ever since I got word of your blog)And YES I do hold you up high on your pedistal! You ARE in ALL of our eyes the true meaning of a AMAZING HUSBAND, FATHER, SON, SON OF GOD,and FRIEND!!I know that this makes you uncomfortable but....MY gosh I cry with each and every post. YOU have made me a true BELIEVER in the fact that one man can make a differance.
This path has been chosen for you. God chose You to be at Trisha's side, He chose YOU to be Gweneth's "Earthly" father. And you are making him so very proud!

With all of that being said...I want you to know that I check in on you at least 5 times a day, and I pray for you ALL.

My son was born at 28 weeks. He wasnt as small as your Miss Gwen, He was a WHOMPING 2 lbs, 7 ozs. and just as lazy, and slow at things like breathing, bottle feeding, apnea. We would see these little girls come and go through the N.I.C.U, and alll of the little boys would still be hanging out with thier tubes and wires all over the place. Your angel sure isnt an exception when it comes to how much faster the girls are at wanting OUT of N.I.C.U!! I cant believe that she is ALREADY breathing with little to NO help! IT just AMAZING!

Nathan.. Keep that humor of yours, and know that you are blessed in each and every way, and your family is SO Blessed to have you!

May God continue to bless you all!

Rose said...

First time poster Nate ...

I want you to know your blog is the sole reason why I have decided to become a doner.

Your sheer honesty, candor and openness has opened my eyes to CF. I never knew what CF meant and have started reading about it.

You and your family are incredibly aspiring. Never doubt yourself or what God is leading you to share about yourself and your family.

Frankie, Marianna and Reyna said...

Not to mention spreading the TRUTH of His Love, & Grace. What a testimony you have.

Kristi said...

Nate,
I wanted to tell you that I can relate to the comments that you sometimes get on your blog. though my blog gets nowhere the traffic yours does (only around 1000 hits a day ;o)) I get hurtful, mean, and sometimes just plain stupid comments. I've had people tell me anything from I share too much information on my blog, to the way that I care for my kids. Just this week I had someone tell me that I packed too much when I traveled with my triplets. Excuse me??? Do YOU have triplets??? How on earth do you know what one needs then?
I do my best to try to ignore those types of comments, but it never fails. They bother me, and I always have to reply back. Funny how they almost are always "anonymous" who posts those comments too.
I just wanted to say that I think you are doing a WONDERFUL job. You are doing everything that's right for YOUR family. No one has ever been in your shoes. And I'm sure no one would hold up as well as you have throughout all of this.
We're still praying for Tricia and Gwyneth, and for you too.

Oh, and my husband just signed up this week to become an organ donor. :) Keep blogging away Nate. :)

Amy said...

Thank you again for your openess and willingness to share your story..it has changed my life and I'm sure many, many others. I am so very appreciative and thankful to "know" you and your family through this experience.

Sincerely,

Amy

MelissaK said...

I confess...I am one of the new "tons times more hits on surgery day" readers (from another Moms of multiples site). I woke up in the middle of the night after reading your story and prayed hard, prayed continuously! I checked first thing the next morning. Praise God! May God continue to pour His blessings on Tricia and you. I'm storming Heaven for your family. We also endoured the incredibly hard NICU days with preemie triplets I pray for your beautiful and strong Gwyneth. A big strong Southern cheer: "Ya'll can do this!!!"

jheatherdefoor said...

I just want to say how amazed I have been throughout this journey of yours and your familys. Sorry that people have to be cruel and illwilled during this most difficult time. I cant imagine what your going through. I thank you for your open heart and mind. I greatly appreciate what you share with thousands each day! I'm going to start praying that some people will think twice before they email you or comment.

I'm praying for you and your family!!
:-) H. Defoor

Kim said...

Thank you for letting us in and being a vessel of God's word and love by your example and your journey.
Whiny? Who gets that from this blog? And who would say such a negative and hurtful comment. Give me a break. Seriously. Stop.

Kim said...

Did I just misspell vessel? Misspell? Oh well.

sportygirl102495 said...

Nate, don't let anybody tell you you are being whiny or you just want people to feel sorry for you..... you are a great man and you have a great family and is blessed by GOD!

Denise said...

I wanted to let you know that just recently renewed my drivers liscense and for the first time since I've had my liscense it now says "Organ Donor" on it. Thanks for dispelling many of the myths out there.

Kimberly said...

You have a right to be whiny. Many people would be much more than whiny in your position. I am so grateful for sharing your family's journey with us. I have learned so much from you about God, the power of prayer, organ donation, love, devotion and strength. Thank you for allowing us a glimpse of your life. I am a faithful reader and I think of your family many times a day. As always, you are in my prayers.

Melissa P. said...

thank you so very much.

A Dusty Frame said...

WHINY!? You've been through a major ordeal.

For some reason, and I speak from personal experience here, people say the stupidest things when you are suffering.


I'm sorry.

Please know that you can be down, low, whiny, sad, questioning and frustrated and STILL be trusting God.

Some people who say such things have never dealt with mind numbing life experiences. Maybe they should be thankful for that rather than criticizing how others handle their hard times.

Lizzie

cottagekeepers said...

Dear Nate, Tricia, and Gwyneth~

Since a friend of mine shared your blog with me 2 months ago, my family and I have prayed for you every day. We are praiseing God for your trasnplant! We will continue to pray for you daily. I wanted you to know that my husband and I, along with our 21 year old daughter, have been organ donors for years. Our other two daughters who are almost 14 and 16 wish to be donors as well. May the Lord bless you abundantly.

In Christ~
Denise

Brian and Amanda said...

Coming out of the wood work to say "Make that 502". :-) My husband and I mailed away our paperwork today to become organ donors. Blessings!

Rachael and Travis said...

This may sound weird, but I needed that. I've always been really open and transparent, but lately, after experiencing some rejection, I began to wonder if I really was doing the right thing. Thanks for reminding me of why.

sweptaway1220 said...

I would hardly call it whiny. I would call it shear exhaustion! You have burning the candle at both ends trying to be there for both Tricia and Gwyn, of course it was bound to catch up to you. I hope you have been getting your much needed rest and have been getting a chance to eat some good meals to keep yourself strong. Tricia will be needing you more and more when she gets back to her own room. By the way, I was wondering if you were you able to keep her old room with her things there until you get back there or did you have to move out all your stuff? I didn't know if they would need to release it to another patient in the meantime! I hope Tricia sleeps well tonight and wakes up with tons of energy and her memory back!:-) I just made a donation for her.

JoythruHisGrace said...

I think you are far from whiny. You have so much to share and have been incredibly generous in doing so. Thank you and God bless.

Mary Knapp said...

Whiny??? You sound Raw. Real. Dealing. You express thoughts and feelings that echo what is heard from other families dealing with critical care. Gratitude for the unimaginable deapth of passionate care balanced against anger and frustration at the "rub spots" where basic needs are not met and paperwork/staffing shortages seems to outrank human suffering. Personally I could not be so charitable or coherent on the sleep schedule you have had lately!

Denise said...

Your faith in our great God inspires me! We'll keep you in our prayers! Keep up the GREAT work!!! In Christ, Denise

Leslie said...

I have said this before, but THANK YOU for writing all you do and for being so transparent! I'm sure it's very hard being judged on things you write on your blog, and people should not do that. But I want to tell you personally how much your blog has meant to me. I am a mother of a precious child with CF so your story is such an encouragement to me and I am thankful for your willingness to share about Tricia and your family. God is definitely using you to glorify Him and that is what is most important! THANK YOU again!!

bpelf said...

I found your blog from another friend's. I thought it was so amazing (I told several people) that the day I found it, was the day that you found out your precious wife was getting the transplant (on Wednesday I believe). I just thought it was so awesome that I saw it that day, because I prayed for her throughout that day and the days since then. Without your openness, I would have never known how to pray or what exactly I was praying for.
I have already shared your story with several people the past few days. The thousands that you see who are actually reading your blog, do not compare to the thousands that are praying for you!
God is getting major glory through this! I'm sorry your family has to go through it, but WOW!! at the faith you have!

Cheryl said...

Oh I see there is another Cheryl posting. Can Tricia drink anything yet? Does that pic thing hurt? Can she hold Gwyneth soon again? If these lungs don't work, can they put the other ones back? Will the diabetes go away or will she have that forever?
You may not be getting enough sleep. Still praying for all of you.''

Cheryl from Fairfax

Patyrish said...

I agree whole heartedly. People don't realize how many people can be touched by such an extraordinary situation such as your family's. It changes people and blesses more than you will EVER know. I have witnessed it myself through my daughter.

Annie LuMaye said...

Whiny? That's interesting. Hmmmm. Some people!

You are doing an incredible job with this site. You have raised awareness for organ donations and first-hand shown why it is so important.

You are educating the world about CF and what sufferers go through.

You are dangling your humanity out there for everyone to see and trust me...you have changed people's lives in the process.

The way the world works...there are always non-believers, there are always people who don't understand, there are always people who feel better when they can spread a little negativity.
Such is life...I can tell you're the kind of person that won't let that stop you from doing the good that you are doing.

Rock on!

Erika and Matt said...

I think you are an awesome advocate for both Gwyn and Tricia. Way to go! Hopes and prayers for a great weekend!

Lela said...

I think it was so brave of you to share your story, and everyday, I'm inspired by you, Tricia, and Gwenyth. Thank you for sharing your experiences! Yours is an amazing testimony of God's faithfulness!

MamaBombo said...

Nathan, I am a mother of a 17 year old girl with CF, and a Critical Care RN. I have been follwing your story since seeing it posted on Cystic-L about Tricia receiving her double lung transplant. I am not sure what somebody posted to you but can see it was very disturbing. As a Mom and nurse I just wanted to say you keep right on advocating for those girls and don't let anybody stop you!As a Mom I advocate all the time for my daughter and have taught her to do the same. As a nurse I always look to the patient, family or care-giver to guide me and assist me with providing the best care possible care for that particular patient. Nobody knows their own body like a CF patient!!Your wife and baby girl are both beautiful and courageous and so lucky to have you!! Hopefully soon you will be able to take them both home and be the family you have dreamed of! Stay strong and best wishes with everything! We will keep all of you in our prayers in Massachusetts. Lee Bombardier

The Heinrichs said...

OMG- your blog is awesome! I cannot believe anyone would say you are whiny! Your posts completely give me chills! We are praying for you and your family and I look forward to the days when you will be posting stories and pictures of you, Tricia and Gwyneth playing in the park!!!
Blessings, Deanna and Brent

cheryl said...

I'm pretty sure you are entitled to be whiny on your own blog, especially considering the circumstances. I don't think you sound whiny at all, but even if you did, that's ok.

I e-mailed you the other day asking where I could donate milk for your beautiful girl. Sadly I was rejected due to the fact I am on a low dose of zoloft to protect me against PPD. I wish so much I could have helped.

Mama Bear June said...

Thank you for your openness. We may face transplant in the future with my son and it always helps to hear from those who've gone down the path how it REALLY is. God bless you.

AlishiaHutchins said...

Hey there,
i stumbled across you site when looking up Australia's website for CH. I am soooo glad to have read your stories. I lost my best friend last July to CF and reading your posts makes me, altho not the same situations makes me think a little deeper about what and how Emma would have been going thru in her last days. She was 25. And she'd had a double lung transplant and then caught infection after infection. I miss her so much and when she passed she was with only her close family, so hearing your stories, both the good and bad makes me understand alot more about how she feeling. Thank you so much Nate and i am sending thoughts and prayers to both Tricia and Gweneth. And also to you and all ur families and friends too.
Good luck. with love xoxo
Alishia Hutchins

AlishiaHutchins said...

Hey there,
i stumbled across you site when looking up Australia's website for CF. I am soooo glad to have read your stories. I lost my best friend last July to CF and reading your posts makes me, altho not the same situations makes me think a little deeper about what and how Emma would have been going thru in her last days. She was 25. And she'd had a double lung transplant and then caught infection after infection. I miss her so much and when she passed she was with only her close family, so hearing your stories, both the good and bad makes me understand alot more about how she feeling. Thank you so much Nate and i am sending thoughts and prayers to both Tricia and Gweneth. And also to you and all ur families and friends too.
Good luck. with love xoxo
Alishia Hutchins