I got a call a few weeks ago from a family vacationing on the Outer Banks...they wanted to know if they could meet me while they were here...their one-year old son has Cystic Fibrosis, and they've been following our blog since learning of his diagnosis several months ago.
I'm always up for meeting other CFers and their families, especially if I can help give young parents and children hope for the future. Of course, meeting Levi was just as much a blessing for me. Levi is at about the same place developmentally as Gwyneth (I think they even look very much alike), and he did nothing but smile during the time I spent with him and his parents. He even game me a kiss on the cheek goodbye!
Levi's parents asked me if it were true that all CFers tend to be as happy as Levi...of course! As I have mentioned before, there is something very special about CFers...especially the younger patients. I have never met a CFer who didn't have an overly-abundant love for life and for others...it's as if God gives each of them an extra capacity to experience joy to balance out the difficulty of living with CF. Levi is obviosuly no exception!
It's 2009, and Levi's future with CF is much brighter than his predecesors because of the efforts of the Cystic Fibrosis Foundation and the donations of thousands of people just like you and me. And even though there are promises that we are getting closer, there is still no cure for CF. It is for Levi and the thousands of other CFers that Tricia and I continue to be so passionate about raising money and awareness. One of our dreams is to help find a cure in Tricia's lifetime.
My personal goal this year is to raise $10,000 for our Great Strides Walk for Cystic Fibrosis. I would be forever grateful if you would consider donating to help me reach my goal by visiting my donation page Here. Every penny goes directly to the CFF and their search for a cure, and even $1 can make an incredible difference!