It hits me often...the understanding of how blessed Tricia and Gwyneth and I are. To have both of my girls alive, even with their lingering medical needs, is simply unexplainable.
I have spent many hours talking with and reading the stories of people who have lost their premature children and their CF/TX loved ones. I try to empathize with their loss and pain, but I know that I can't fully understand where they find themselves.
According to medical science, I should be one of those people, in both categories.
I shouldn't be sharing pictures and stories of the three of us together.
I shouldn't be asking for you to think of my wife and daughter's needs.
I shouldn't be thinking of falling asleep in my wife's arms tonight and waking up to my daughter's laughter tomorrow morning.
According to medical science, we beat the odds...we're lucky.
According to God, I am blessed.
I can't explain to you why we are where we are and not where we were told we should be. And, although I don't fully understand why, I can share with you the blessings that have come out of our journey.
I don't take it for granted. This is why I can't complain, publicly, about our current situation. I have my moments, and my days...I've had my desperate conversations with God and family and friends. But, no matter how hard I try, I can't get passed the fact that I am blessed.