Monday, January 7, 2008

New Plan

Tricia's medical team (all 30+ of them) met today at 1:30 and presented an alternate plan which we are going to go with. Tricia will be intubated and ventilated tomorrow morning at 10:30am. They will watch her for a few hours. If everything looks good, they'll give her a tracheotomy. They'll leave her on the ventilator for a few days, allowing her body to regain strength and her lungs to get cleaned out, and then will perform the c section on Friday.

If her body does not like the ventilator, they will perform an emergency c section then and there.

All of the prayer from the post below remains the same...only the timing has changed.

We continue to be amazed at the number of people praying and the very cool stories coming our way. Thank you.

Here are this mornings pics of Gwyneth Rose. She has Tricia's nose and my lips for sure.


Nate

75 comments:

shelly said...

love the pictures of gwyneth rose--she is beautiful just like her mama!

Susanna said...

baby gwyneth is so precious!!! thanks for updating...praying here in Mexico...love you all!!!

Adam & Mommy said...

Beautiful photos and (what seems to be) good news from the doctors. Time for Tricia to rest and for Gwyneth to grow. Our continued prayers are with you all!

Anonymous said...

Many prayers continue for your family. God Bless.

Myra in Florida

WTHughes said...

I love seeing the pictures of little Gwyneth Rose. What a lovely name.
I have been praying and will continue to lift you all up in prayer.

~Tina H.

Katelyn said...

I have to admit I check the blog at least 4 or 5 times a day. Our Bible class at church is lifting your family up this week and I'm praying for Friday delivery!

Anonymous said...

Our prayers continue. May Gwyneth gain additional strength and weight in the next few days and may you and Tricia be comfortable.

Jen P said...

Your blog was passed along in a prayer request. Gwyneth is beautiful and I am praying!

Anonymous said...

Hope you don't mind a question. Will Tricia remain awake during the intubation and the time on the vent?

Anonymous said...

praying for all to go well tomorrow...those ultrasound pics are amazing. Will pass the request on!
Hubbards in Maine

Jane-Jane said...

still praying...love how Gwyneth has her arm over her eyes..."stop looking at me!"
Beautiful name for a beautiful girl.

Spreading the word to all I know for prayer.

Lord, please hear our prayers.

Anonymous said...

I think Gwyneth Rose is saying, "Oh not another picture." I bet she's gonna hate the camera when she's born. :D OR be a camera hog.

happy gram said...

the casting crowns song is incredible. your little girl's name is beautiful! you are in my prayers. jan

Anonymous said...

My prayers are with you and your family during this critical time. I completely understand the power of prayer....my son's story was featured on the front page of the Christmas Day News & Observer paper and I truly believe if it wasnt for all the people praying for him, he would not be here. Be strong and know that God will take care of you all.
Melissa

Emily said...

I heard about you and your wife from Susanna--you have been in my thoughts and prayers ever since. I am continually praying for your family! I am a pediatric nurse practitioner and have seen many patients struggle with CF, so I understand (sort of) what you are going through. How amazing that your wife has such a supportive husband and family!
~Emily (Los Angeles, CA)

Marti said...

Thinking of you both - love the name. got to your site from Asher and Jacob. Praying in Atlanta.

Debra said...

Love the pictures of your baby daughter!

I posted your update on cf.com again, to save you time from doing that and they can pray accordingly. Prayers sent from GA! Aspiemom

TruePraise said...

Oh, thank you for the update...i have checked this blog off and on all day long...and prayed and prayed....May God show is grace and mercy to you....all of you...and may his might name be praised and glorified....

wereart said...

Sounds like a great plan the doctors have divised. Rest for the Mommy and Daddy and a few more days of growth for beautiful little Gwyneth. Keeping you in prayer.......

Anonymous said...

We are praying for the three of you constantly...we continue passing on each blog and asking everyone we know to join us in praying without ceasing for your precious family.
Thank you for taking the time to update us. I must admit I also check the blog several times a day...
Gwyneth Rose is so beautiful...We can't wait to meet her some day.
Lots of love, Dana and Wil Haupfear

Anonymous said...

Continued prayers coming your way. Your little Gwyneth is beautiful like her mommy. Only good thoughts for tomorrow.

Amy said...

I will be praying that Tricia handles the vent well and that she is able to regain some strength.

Gweneth Rose is beautiful!

hemidemisemiquaver said...

Yes...she looks JUST like Tricia. I thought so from the first time I saw the pics before. Just breathtakingly beautiful.
Becky

Paul & Angela Jenkins said...

I came upon your blog from Jordan and Patience. I'm praying for you all and believe that nothing is too great for God.

Four years ago I had pulmonary hypertension and got pregnant. Duke's doctors had 4 meetings with me to abort but my husband and I decided not to. When I went into the hospital w/ heart & lung complications we were informed that either my son or I would die (the chance of both of us living was ZERO). I actually signed papers telling Duke what to do with my corpse.

We still trusted that God would perform some miracle that no one would understand. During delivery I did die and was miracously revived and now both my four year old and I are alive today.

Even in the darkest hours keep your face toward the heavens for the light that only God can shine. The verse that God kept speaking to us was Jeremiah 29:11. He knew the plans for us not the doctors nor anyone else. Him, God alone, knew them.

Colleen Moulton said...

I will keep your entire family in my thoughts and prayers. Our family has been personally touched by CF and know how difficult it can be to live with. Best wishes for Tricia and Gwyneth.

Emmie said...

Messages of support being left from members of the CF family in the UK here: http://www.cftrust.org.uk/forum/viewtopic.php?p=44799#44799
xxxxxx

mir422 said...

I'm praying that you and your family are blessed with a healthy baby and the strength to tackle your next obstacle with grace.

thinking of you in CA!!!
xoxo
mir

CJolly said...

Thanks for the update. New plan sounds hopeful for all. We'll pray that Tricia does well on the ventilator. Gwyneth Rose...name is beautiful, pics are amazing!
Bro Bill says you can add Grace Lutheran to the list of churches praying for you guys.

Zach and Brandie Crossland said...

Tricia, You are amazing. Your strength these last several weeks has been truly inspirational. I know your timing for this baby will be perfect because God knows when Gwyneth should be delivered and I know you are completely in His will. I ask God for perfect little lungs and heart for Gwyneth. I ask God for cooperation between your body and the intubation. God blessed you and Nathan with such a wonderful gift and He will not stop there.. I know you both will be blessed to soon become and enjoy being a family together. I love you Tricia, and continue to lift you up to our Lord.

Anonymous said...

Praying hard in NJ...
Sheryl

Anonymous said...

PRAYING PRAYING PRAYING!!!

Anonymous said...

Gwyneth...... a beautiful name! Our prayers continue for sleep and a peaceful night for everyone. May you be surrounded by God's love and protection tomorrow.

from Agnes' "old old" friend Judy in Philadelphia

Wendy said...

I have seen this site mentioned and links on so many blogs so I HAD to come over. Gwyneth is beautiful! My family is praying each night for your soon to be family of three.

Anonymous said...

The pics of Gwyneth Rose are amazing...
Still praying like never before...
Showering Tricia,Gwyneth,Nathan
and families lovingly with prayer
Long Island, New York

Mandy said...

Wow! What beautiful photos of this precious girl. My prayers are with you. May the God of peace wrap His arms around you this week and always and may you feel his miraculous presence throughout this delivery! May your words and actions be a ministering tool sent to the doctors and nurses and everyone involved!

Anonymous said...

Prayers coming your way from Lynchburg, VA...

God bless.

tuna4luvrs said...

Hey! my name is Dakota and I have just started going to NHC and let me tell ya about the prayer and lov eI keep seeing come out of that church for you and your family. It 's amazing!! My prayers and love are also with you always during this time.

michrn said...

God bless you all! I'm a NICU nurse and have also worked in pediatrics. Praying hard for God's will!

Anonymous said...

Thank you for the update. Will be praying for Tricia and Gwyneth Rose.

Sister in Christ
Annapolis, MD

Anonymous said...

Praying for you and your family!

Anonymous said...

Sending prayers from England for the strength of your wife, you, and the wee one! God bless!

Anonymous said...

from Ohio . . .friends of friends of the Leinos. This song comes to mind...
Blessed be Your name
When the sun's shining down on me
When the world's "all as it should be"
Blessed be You name
And blessed be Your name
On the road marked with suffering
Though there's pain in the offering
Blessed be Your name.
Praying for you all - for strength, healing and blessing God through all of this, as I know you are - a sister in Christ in Ohio

Rich and Lauren said...

We are still praying for y'all! Ty is having a good night at our house! We love you guys!

Rich and Lauren said...

i forgot to let you know that my dad's step-mom called and is starting you on the prayer chain at their church!

The Weiss Family said...

Praise God! It's still a scary time, but He is in control and every day extra for Baby Gwyneth will be good. We're praying!

Anonymous said...

Mikaela's first question every morning for the last week or so has been "How's Mrs. Tricia this morning?" We check on you many times a day and pray even more. Tricia, you have made such an impact in my daughter's life, and your daughter is so blessed to have you for her mother. We'll be praying hard!!! We love you guys!

The Ramos Family

So Blessed said...

Prayers continue for all of you...

Amanda said...

I know that I don't know either of you, or your soon to be precious child, but we are praying for you. May God bless, and keep you!

Lisa said...

Tricia and Nathan - still praying for you guys! Everyone I know is constantly asking how you are - which means everyone we know is praying for and thinking of you guys! We love you guys and know God will work everything out! Still praying!
~Love you guys!
- Lisa and Mike (in NJ)

P.s. Tricia - I was trying to come up with some funny times we've shared to distract you for a few seconds - remember when Jess, Suse, and I came down to visit and we all hung our head out the window of someone's (?) car and sang "I'm Like a Bird"? Hahaha...just thought that was funny! Hahaha...I also remember taking Bio I at CCC with Dr. Winkie, but that wasn't as funny!

Brian and Rachel said...

We will be anxiously waiting the news after 1030 tomorrow. Praying for your miracle. Blessings from Florida.

Anonymous said...

Trisha-
This is Jill (Hebler) Loucy (one of the twins from FBC :-)). Just wanted you to know that I am praying for you and your family. I am also praying that through your's and Nate's testimony, many people will come to Christ. Your daughter is beautiful. She is blessed to have a mom and dad who love the Lord and bring glory to Him through even the hardest times.

Anonymous said...

praying for you all

hello and welcome to nhc said...

Tricia, Nathan & Gwyneth! Praying for good, clear, sound decisions being made. Praying for your doctors and staff, especially the ones who remain by your side. Hang in there and hang on to your precious faith! We are hanging in there with you. Love you, Steve & Judi

Adriana said...

I am praying for you all.

Adriana
10 years old.

BuckeyeNP said...

Finally Free - Nichole Nordeman

No chain is strong enough
No choice is wrong enough
No mountain high enough that He
can't climb

No shadow dark enough
No night is black enough
No road is lost enough that He can't find

And if the Son has set us free
Then we must be, free indeed
Let the chains fall away, starting today
Everything has changed
I'm finally free

No pain is deep enough
No heart could bleed enough
Nothing but Jesus' love can make a way

And if the Son has set us free
Then we must be, free indeed
Let the chains fall away, starting today
Everything has changed
I'm finally free

-Tonight I'm praying for freedom from anxiety, fear and doubt that must be crushing at times. Instead I pray for a peace that passes all understanding to envelop your ICU room, the OR, and every place that your family abides.

Emily said...

Nate, Tricia, and Gwyneth-
I have been so touched by your unfailing faith throughout everything, and I want you to know that you are in my thoughts and prayers often! Your faith has inspired me to look at my own and question if I would be able to have the same attitude. God bless you and I will be sharing your story with others to gain prayers for you.

Emily Bear
LU alum (and friend of Sarah)

swright said...

Praying continually for your family. Richmond, VA

Deb @ Knapp & Lowman said...

Trisha and Natan, Wanted you to know the prayer chain at OBX Pres is praying for you guys. Mark and I have been saying prayers every night and day. Love the name Gwyneth!!
All of my office is praying for you as well.

We will continue to pray.

Anonymous said...

Prayers from NY...looking forward to photos of that precious little baby.

Teacher in the middle said...

Hi Nathan and Tricia,
I have found your blog and love it...I can't wait to check for updates each day. Anyway, I have a brand new blog at http://middleteacher.blogspot.com. I have posted your prayer requests and blog address on my blog. I hope I can get more and more people to begin praying for all of you!!!

God bless you all!
Robin

Muriel and Jerry said...

Okay so everyone I know is praying for you. Some of my friends who do not even know eachother already knew about your story before I posted it on my blog. Honestly, the amount of people praying for you is awesome. Tomorrow you will be in my prayers!

Anonymous said...

God bless you all. As always, you are in our prayers.

Jerry & Maria, NHC

Anonymous said...

I don't know you but I want you to know that I am praying for your family.

Kelly from Wisconsin

No Nonsense Girl said...

Hello Nate and trish,

JUst a quick message to let you know I've posted an entry on my blog about your situation.

You are in my prayers!!!! My heart is sad for you....

Love, blessing and God'd warming love around you, trish and baby gwyneth. :)

Anonymous said...

Hey guys, just wanted to let you know that I am so happy whit and I were able to make it up there to see the two of you. Glad we could make you laugh a little. Nothin' like a little girl time! Tricia you looked so beautiful! You are so strong...and Nathan you are an awesome husband. You two are so lucky to have each other. I will continue praying for you guys and the little one. SMILE and Stay strong! Get lots of rest guys. Tomorrow is a big day! Love you!

Margot J.

Anonymous said...

We continue praying in Conyers, GA. My name is Lisa Collinsworth. My husband and I have prayed so hard for you guys and have had our church praying for you as well. (And just so you know who we are...www.discoverpoint.org, www.myspace.com/lisacollinsworth, www.myspace.com/discoverpoint). My husband, David is also a worship leader. I learned of you through Jordan and Patience Leino's blog who I learned about from a friend on xanga. Your story has blessed my heart as you have so much faith and I know God is glorified through everything that is taking place!!! Praying for Tricia and precious Gwyneth Rose tonight and all this week especially. Thank you for taking the time to keep all of us updated. Two songs keep coming to my head as I think of you all this week...

"Blessed be Your name
On the road marked with suffering
Though there's pain in the offering
Blessed be Your name"...Blessed Be the Name of the Lord!!!

And...


Lord You seem so far away
A million miles or more it feels today
And though I haven't lost my faith
I must confess right now
That it's hard for me to pray
But I don't know what to say
And I don't know where to start
But as You give the grace
With all that's in my heart

Chorus:
I will sing I will praise
Even in my darkest hour
Through the sorrow and the pain
I will sing I will praise
Lift my hands to honor You
Because Your Word is true
I will sing

Lord it's hard for me to see
All the thoughts and plans You have for me
But I will put my trust in You
Knowing that You died to set me free
But I don't know what to say
And I don't know where to start
But as You give grace
With all that's in my heart

Sarah's In the Midst of It said...

I am praying for you and your entire family as you approach tomorrow--praying for peace, hope, joy, and a miraculous outcome!

Anonymous said...

God Bless you Trisha. You are no doubt God's messenger and have humbled many in his name. Nathan and Trish, we love you and miss you both. I check your blog Nathan several times a day and want you to know we care. Your daughter is beautiful. Smiles, hugs, and kisses to all of you.

Love, George and Paula Farah

The Young's said...

Lord Jesus in your name I pray for Tricia,Gwyneth and Nathan. May they continue to feel bathed in your love and protection. May all the people who deliver health care to this family be touched by their faith and courage to freely accept your will. With you, all things are possible and tonight many are praying for a miracle for this wonderful family.

Candy said...

One of my blog friends made a post about you and your wife and left your link so I dropped by.

My thoughts and prayers are with Tricia, baby Gwyneth, you and the rest of your family as well as all the medical staff that God is going to work His miracle through. God bless!

Anonymous said...

Gwyneth is adorable!!!
We're continually praying for all of you in NJ. We love you!
The Capano's

beth said...

What a lovely name for such a perfect little girl! Tomorrow is a big day. The prayers for you all reach around the world, and we know Who is in control of it all!!We are so BLESSED!
We are praying!

Tanya said...

What a perfect little princess! She is truly wonderfully made! Praying with you for Tricia and Gwyneth!

Emily said...

God is still a God of miracles, this we know. I'll be storming Heaven's gates for two beautiful ladies all night and I'll get a little more adamant at 10:30. Be blessed and know you are bathed in prayer.

Kate E. said...

I'm praying for you all over here in Scotland. You have been in my thoughts and prayers all day.
~Kate E.