The TX coordinator just came by again. Tricia signed the papers. She told us it will definitely be by the weekend, maybe tomorrow. I'll let you know.
> As always, I say this with love... I've been asked several transplant related questions that I've already answered several times...I want to encourage you, if you're new to the blog to use the "Labels" over there on the right of your screen to do a little research. Also, Google is a great tool. I would love to answer every question, but I just don't have the time or energy, so I hope you understand. But, just to be nice...
> There is no way to know how long Tricia will be on the list...the average double lung TX wait here at Duke is a few months. The odds of Tricia being alive this time next year without a transplant are very, very small, and her window of opportunity is even smaller, so we don't have much time. It could be the minute after she gets listed, or it could never happen.
> The vent that Tricia is on is not portable. Like I said, without a new set of lungs, her CF will kill her in the near future.
> Gwyneth "sleeps" probably 22 hours a day right now (that's just my guess from observing). The only times she seems to be truly awake is when the nurses or other staff are messing with her...every now and then she'll be awake on her own for a few minutes. She does look around, but I've been told that she has little control over her eye motion, and that she probably doesn't register with anything she's seeing yet. I do think she can recognize the sound of mine and Tricia's voices (although Tricia can't speak when she's on the portable vent in the nursery).
> There's another great question that was asked that I'm going to devote an entire post to later.