Tricia got about 10 hours of sleep last night! She's already getting sleepy at 8:30 tonight. She sill has some catching up to do. She was feeling a little sick earlier, but is feeling better now. She received a blood transfusion today because she has been Anemic for several days...this will help prepare her for the transplant.
No word from the transplant team today, so we'll assume that we haven't been listed...
Gwyneth was back on the CPAP today...didn't do so hot on the nasal cannula last night, but that's not surprising at all at her age. Other than that, she's having a great day.
Time for some more Q&A!
> I use a Mac software called iMovie to make the videos that you've seen on this blog. As far as video editing software goes, it's junk, but it gets the job done for what I'm doing on this blog.
> When Tricia was born in 1982, the age expectancy of a CFer was in the lower 20's...the life expectancy for a CFer born today is in the mid 30's. It's because of this reason that CF has been labeled as a pediatric disease, and why it does not get nearly the exposure as other terminal diseases. So, Tricia has lived beyond her age expectancy. We have heard of a few CFers who are still alive past 50, but as I've mentioned before, every CF case is different...some are incredibly aggressive, and others are so mild they're not even diagnosed until adulthood.
> Tricia has a horrible memory for dates and times, so those of you who think she's all right about her side of our story are suckas... ;)
> We did get several weeks while Gwyneth was still in the oven to feel her kicking and moving around. Most mothers can begin to feel their baby moving around week 17. Tricia felt her for the first time on Thanksgiving day, here in the hospital.
> This blog is not one on which I want to get into deep theological discussions...that doesn't fit it's purpose, and I'm not smart enough to answer most of your questions anyway.
> I did send an email out to the K-Love contest, but only because somebody asked me to via email a few days ago. I don't listen, so if they mention our name, please let us know.
Joe and Kendra's preemie boys continue to do well. BJ and Tonya's preemie boy was having some difficulties this past weekend, but I haven't seen them in a few days. I know they would all appreciate your continued prayers.
Alice continues to do incredibly well...she was actually discharge from the hospital, which is amazing. If you want to read some great insight on what a TX patient experiences, check out Her Blog!